“Chemo brain” — the term for cognitive problems associated with chemotherapy treatment — appears to be very common, but doctors only started paying attention to it in the late 1990s. A 2012 study that finally helped elevate chemo brain as a serious and widespread issue estimated that up to 75% of breast cancer survivors experience “cognitive deficits—problems with… Continue reading “Chemo brain”: 3 surprising findings from recent research
Category: Patient Experiences
2018 National ALS Advocacy Conference: A recap from Team of Advisors members Rich & Paul
Last month, Rich and Paul from this year’s Team of Advisors attended the 2018 National ALS Advocacy Conference in Washington D.C. to learn about the latest ALS research, network, and meet with members of congress on Capitol Hill. Just over 600 people attended the event, including 100+ pALS and 240 first-time participants. The event started on Sunday with opening remarks followed… Continue reading 2018 National ALS Advocacy Conference: A recap from Team of Advisors members Rich & Paul
Dr. Rick Bedlack weighs in on telemedicine
Do you have difficulty getting to your doctor’s appointments? Ever thought about using telemedicine? Connecting online can make it easier to get the care you need. Here, Dr. Rick Bedlack (a tenured associate professor of Medicine/Neurology at Duke University and the director of the Duke ALS Clinic that’s partnering with PatientsLikeMe in the current Lunasin study) explains… Continue reading Dr. Rick Bedlack weighs in on telemedicine
Circulation issues & ALS
Do you have circulation issues like swelling (also called edema) or a burning (or cold) sensation in your legs and feet? How do you cope? From compression stockings to therapeutic massage and limiting salt intake, pALS are managing their circulation issues in some creative ways. Why do some people with ALS experience poor circulation? For many… Continue reading Circulation issues & ALS
Home Safety Month: Pointers for “aging in place”
June is National Home Safety Month and there’s a buzz around “aging in place,” so we’ve gathered tips and products that can help today’s (stylish) older adults avoid falls and live well at home for years to come. A top home-safety goal: Fall prevention Falls are a growing problem when it comes to home safety,… Continue reading Home Safety Month: Pointers for “aging in place”
Health news: What’s making headlines in June
In case you missed it, check out this round up of some of the stories making headlines in June… Parkinson’s disease: Apple Watch will now be able to monitor PD: Tech developers announced this month that the Apple Watch will now be able to track two common PD symptoms — tremors and dyskinesia —… Continue reading Health news: What’s making headlines in June
Marijuana/lung cancer: New reporting on potential risks/benefits of cannabis
Medical marijuana and cannabidiol (CBD) are getting a lot of media coverage — so what’s the latest, as it relates to lung cancer? See two recent high-profile articles that weigh the possible risks and benefits of cannabis for cancer and respiratory disease. And add your perspective. (Psst, checkout past PatientsLikeMe write-ups on medical marijuana and CBD for some background.)… Continue reading Marijuana/lung cancer: New reporting on potential risks/benefits of cannabis
Connect about pain: The new Chronic Pain forum is live on PatientsLikeMe
Our members have been asking us for years for a place to discuss chronic pain on PatientsLikeMe. We heard you. The new Chronic Pain forum is here, and it’s a place for members with any health condition(s) to connect on the topic of pain – from your treatment experiences to day-to-day living with recurring or long-lasting pain.… Continue reading Connect about pain: The new Chronic Pain forum is live on PatientsLikeMe
Age-By-Age Guide To Navigating Reproductive Health With Lupus
Lupus can affect your reproductive health in a variety of ways throughout your life and can raise the risks of complications during pregnancy. Thanks to medical advances, the chances of having a safe pregnancy have improved — the key is careful planning. Check out this timeline of gynecological and reproductive health considerations when you have… Continue reading Age-By-Age Guide To Navigating Reproductive Health With Lupus
Parenting with bipolar II: Alysia’s story
Meet Alysia, a member of the 2018 PatientsLikeMe Team of Advisors who’s living with bipolar II disorder. Here’s what she had to say about parenting with a mental health condition, learning to adapt and how she “defies the odds.” When I was younger I wrote stories about my alter ego who had kids. I lived almost… Continue reading Parenting with bipolar II: Alysia’s story