From legality to availability, recreational use and potential use as treatment, marijuana is a hot topic. In the MS forum, members are talking about marijuana and its potential to relieve symptoms of MS like pain, tremor and spasticity. We wanted to know more, so we asked our Health Data Integrity team to take a look… Continue reading Marijuana and MS: Get the scoop
Category: Patient Experiences
Sleeping with a health condition
The elusive “good night’s sleep.” Does it exist? Or is a bad night’s sleep the norm? Catching enough Zzzs can be complicated, especially when you’re living with a chronic illness. So, how can lack of sleep impact your health? Take a look at the results from a study we did with 5,200+ members of the… Continue reading Sleeping with a health condition
Lung cancer research and treatment roundup: The latest from PatientsLikeMe Research Scientist Urvi
Sifting through cancer news and keeping tabs on the latest research can be tricky. So we turned to Urvi Mujumdar – a senior research scientist at PatientsLikeMe who specializes in oncology studies – to break down the latest research and treatments options for people with different types of lung cancer. Ongoing research, at a glance… Continue reading Lung cancer research and treatment roundup: The latest from PatientsLikeMe Research Scientist Urvi
Team of Advisors member Laura takes over the PatientsLikeMe Instagram for World Mental Health Day
In honor of World Mental Health Day, we asked PatientsLikeMe member Laura (thisdiva99) to take over our Instagram feed for the day. Laura is a professional opera singer, Massachusetts native, a member of the PatientslikeMe Team of Advisors, and is living with bipolar disorder. She gave us a glimpse into a day in her life, Check… Continue reading Team of Advisors member Laura takes over the PatientsLikeMe Instagram for World Mental Health Day
“It started tearing me down early”: Illustrator and writer Howie Noel shares about his upcoming graphic memoir on life with generalized anxiety disorder
Today is World Mental Health day, a day for education, awareness and advocacy, and that’s where Howie Noel’s story comes in. There are more than 30,000 members living with Generalized Anxiety Disorder on PatientsLikeMe, and it’s for people like these, people like him, that Noel wrote his semi-autobiographic illustrated memoir, Float. We recently sat down with him to talk… Continue reading “It started tearing me down early”: Illustrator and writer Howie Noel shares about his upcoming graphic memoir on life with generalized anxiety disorder
Ready as you can be? Disaster preparedness when you’re living with a health condition
The recent string of tragic natural disasters highlights the importance of planning ahead (as much as possible) for managing your medical needs in the wake of a crisis. So we’ve gathered some expert preparation tips and ideas for what to keep in an emergency supply kit. All the victims of these disasters are in our… Continue reading Ready as you can be? Disaster preparedness when you’re living with a health condition
How to be your best health advocate
PatientsLikeMe is pleased to announce a new collaboration with Cathy Chester, a wife, mother, advocate and the voice behind her blog, “An Empowered Spirit: Living a Healthy and Vibrant Life After 50.” You might’ve already seen Cathy’s #MoreThan story about her diagnosis and how she’s much more than MS. Here, Cathy dives into the importance of being your… Continue reading How to be your best health advocate
MS and Biotin: Is there a link?
You’ve probably heard about biotin and reports that it might improve health. Like most things on the internet, the truth isn’t always clear. To clear up some of the swirl, our Health Data Integrity team took a deep dive into the current research. So, what’s biotin and how can it impact health and MS? Take… Continue reading MS and Biotin: Is there a link?
The ALS battle forces changes: A guest blog by member Jim Burton, the ALS Warrior
A harsh reality of progressive diseases like ALS is that your body is constantly changing. After my ALS diagnosis in January 2013, I noticed that the progression seemed to happen in stages. After losing some degree of capacity, I’d settle on a new plateau, which became my norm for a while. The plateaus have become… Continue reading The ALS battle forces changes: A guest blog by member Jim Burton, the ALS Warrior
Team of Advisors member Kimberly shares part two of her insurance series
Kimberly (firefly84) is part of the PatientsLikeMe 2016-2017 Team of Advisors and is living with autonomic neuropathy, a rare disease which forced an end to her career as a Registered Nurse. In part 1 of her insurance series, she tells the story of how eight of her doctors became out-of-network overnight, and how she navigated… Continue reading Team of Advisors member Kimberly shares part two of her insurance series