You’ve probably heard about biotin and reports that it might improve health. Like most things on the internet, the truth isn’t always clear. To clear up some of the swirl, our Health Data Integrity team took a deep dive into the current research. So, what’s biotin and how can it impact health and MS? Take… Continue reading MS and Biotin: Is there a link?
Category: Patient Experiences
The ALS battle forces changes: A guest blog by member Jim Burton, the ALS Warrior
A harsh reality of progressive diseases like ALS is that your body is constantly changing. After my ALS diagnosis in January 2013, I noticed that the progression seemed to happen in stages. After losing some degree of capacity, I’d settle on a new plateau, which became my norm for a while. The plateaus have become… Continue reading The ALS battle forces changes: A guest blog by member Jim Burton, the ALS Warrior
Team of Advisors member Kimberly shares part two of her insurance series
Kimberly (firefly84) is part of the PatientsLikeMe 2016-2017 Team of Advisors and is living with autonomic neuropathy, a rare disease which forced an end to her career as a Registered Nurse. In part 1 of her insurance series, she tells the story of how eight of her doctors became out-of-network overnight, and how she navigated… Continue reading Team of Advisors member Kimberly shares part two of her insurance series
How cancer affects diet + pointers for trying to eat well
Many PatientsLikeMe members have talked in the forum about the dietary impact of lung cancer treatment and how it has hindered their eating. As many as 40 to 60 percent of patients with lung cancer experience unintentional weight loss. Eating well (or as best you can) during and after cancer treatment can help you keep… Continue reading How cancer affects diet + pointers for trying to eat well
MS and Bowel Incontinence
More than 14,000 members living with MS report bowel problems (difficulty in passing feces including constipation, bowel incontinence [loss of bowel control], and diarrhea). So, what’s the deal with bowel incontinence and MS? What can you do to manage symptoms? We checked in with Meaghan Zisk, RN MPH, a nurse and Health Data and Patient… Continue reading MS and Bowel Incontinence
“Dealing and healing” together: Karl and Angela Robb team up with PatientsLikeMe and share about living with young-onset Parkinson’s disease
PatientsLikeMe is pleased to announce a new collaboration with Karl and Angela Robb, the husband-and-wife team behind Karl’s blog, “A Soft Voice in a Noisy World: Dealing and Healing with Parkinson’s Disease,” and the authors of two books. You might’ve already seen Karl’s #MoreThan story. Karl and Angela recently shared even more with us in… Continue reading “Dealing and healing” together: Karl and Angela Robb team up with PatientsLikeMe and share about living with young-onset Parkinson’s disease
75k [virtual] hugs on PatientsLikeMe – and how social connections are good for your health
Newsflash: “Social Interaction Is Critical for Mental and Physical Health,” as The New York Times recently reported. Decades of research support the theory that social connections can have a positive effect on your health. Having social ties may help prevent illness and is still a boon to your health when you’re sick or living with… Continue reading 75k [virtual] hugs on PatientsLikeMe – and how social connections are good for your health
5 tips for practicing self-care when your chronic illness is trying to take over
As a woman with bipolar disorder I and PTSD, I can pretty safely say that no two days are the same. There are days when the world is sunshine and roses; life is grand! Then there are days when the inside of my brain is trying to run the show without me, and it’s leaving… Continue reading 5 tips for practicing self-care when your chronic illness is trying to take over
New graphic: See (and add to) the power of 60+ #MoreThan stories
What are all the roles you play in life beyond “patient”? When we kicked off the #MoreThan campaign – asking our members about all the ways they’re more than their diagnoses – we didn’t know just how many stories we’d hear. This new graphic captures what the PatientsLikeMe community has shared so far – about… Continue reading New graphic: See (and add to) the power of 60+ #MoreThan stories
Ocrevus: You asked, we answered
Last month, we asked the MS community to share their questions about Ocrevus. Now, PatientsLikeMe’s Maria Lowe, Pharm.D., BCPS, sheds more light on what it is, how it works and what patients need to know. Maria’s rundown is meant to give you more context so you can have better conversations with your care team –… Continue reading Ocrevus: You asked, we answered