Say hello to Ginny (Mrslinkgetter), a case manager and family partner with Youth Mobile Crisis Intervention living with depression and epilepsy. She’s also a member of the 2016-2017 Team of Advisors. Check out what Ginny had to say about living with depression and epilepsy, the loss of her son, and how being her own advocate… Continue reading Meet Ginny from the PatientsLikeMe Team of Advisors
Category: Patient Experiences
A PatientsLikeMe researcher’s take on the opioid crisis and new prescribing regulations
Meet Emily (EmilyMcNaughton), a PatientsLikeMe researcher with more than ten years of experience in both the private and public sector. She’s here to weigh in on the recent Boston Globe article addressing the aftermath of the opioid crisis. New prescribing regulations have some doctors hesitant to prescribe these drugs, but that could prove more harmful… Continue reading A PatientsLikeMe researcher’s take on the opioid crisis and new prescribing regulations
Thyroid Awareness Month
January is Thyroid Awareness Month. Why do we need awareness? An estimated 15 million Americans have undiagnosed thyroid problems. Women are five times more likely than men to suffer from hypothyroidism, which occurs when the gland does not produce enough thyroid hormone for the body to function properly. Who has HYPOthyroidism on PatientsLikeMe? 6,920 patients have… Continue reading Thyroid Awareness Month
Meet Cris from the PatientsLikeMe Team of Advisors
Say hello to Cris (@Criss02), another member of the 2016-2017 Team of Advisors. Cris is a proud grandparent and a vocal advocate for the ALS community. She sat down with us and opened up about what it’s really like to live with her condition. Cris recently presented at the ALS Advocacy conference in Washington D.C.,… Continue reading Meet Cris from the PatientsLikeMe Team of Advisors
Checking in with member Bev – “Laughter and comedy are still a huge part of my health management.”
Remember Bev (YumaBev), who we met back in 2012, after she’d just had deep brain stimulation (DBS) surgery? She told us about her blog Parkinson’s Humor and a book of stories from her blog, Parkinson’s Humor: Funny Stories about My Life with Parkinson’s. Well we recently caught up with her again to see how things… Continue reading Checking in with member Bev – “Laughter and comedy are still a huge part of my health management.”
Meet Gary from the PatientsLikeMe Team of Advisors
Meet Gary (tupelo), a husband, father and grandfather who lives with Parkinson’s disease. Gary’s also a member of the 2016-2017 Team of Advisors. He believes that physical exercise slows the progression of Parkinson’s and practices Tai Chi and Qigong on a regular basis. Check out Gary’s story and his outlook on life with Parkinson’s: “Accepting… Continue reading Meet Gary from the PatientsLikeMe Team of Advisors
Patients at work: Member Nancy on being her own boss
We recently launched a blog series about patients who’ve started (or are gearing up to launch) their own businesses, sparking a discussion around how to manage your health without giving up on your career goals. Say hello to Nancy (@spicerna), who sat down with us to discuss how she finds a balance between living with… Continue reading Patients at work: Member Nancy on being her own boss
Meet Jacquie from the PatientsLikeMe Team of Advisors
Say hello to Jacquie (@Jacquie1961), another member of the 2016-2017 Team of Advisors. We chatted with Jacquie recently about how she lives with her condition and what it meant to become part of this year’s Team of Advisors; “Joining the team is allowing me to…help others who are newly diagnosed or those who think they… Continue reading Meet Jacquie from the PatientsLikeMe Team of Advisors
PatientsLikeMe Partners with iCarbonX and Secures $100+ Million Investment
CAMBRIDGE, Mass., JANUARY 5, 2017— PatientsLikeMe, the world’s largest personalized health network, has entered into a broad-ranging partnership with digital life company iCarbonX to apply next generation biological measures and machine learning, and accelerate a deeper understanding of the basis of human health and disease. iCarbonX, founded in 2015 by renowned genomicist Jun Wang,… Continue reading PatientsLikeMe Partners with iCarbonX and Secures $100+ Million Investment
Meet Glenda from the PatientsLikeMe Team of Advisors
Meet Glenda (gagafor2), a member of the 2016-2017 Team of Advisors. Glenda is a wife, mother and grandmother who finds great joy in making others happy. She’s also living with idiopathic pulmonary fibrosis (IPF). Recently, Glenda told us about coming to terms with the “unknown” in her future and coping with anxiety: “PatientsLikeMe became… Continue reading Meet Glenda from the PatientsLikeMe Team of Advisors