Welcome to the latest installment of our “Spotlighted Blogger” series. This spring we’ve been focusing on psoriasis patient bloggers, starting with Lissa in March and Alisha B. and Jessica in April. Today, we’d like to introduce you to Joni (girlwithspots), a PatientsLikeMe member who writes a blog called “Just a Girl with Spots.” How has… Continue reading Spotlighted Blogger: Meet Psoriasis Patient Joni of “Just a Girl with Spots”
Category: Patient Experiences
Someone Like Me
We are pleased to present a guest post by PatientsLikeMe member Jasmine, who was diagnosed with multiple sclerosis (MS) in her mid-twenties. Don’t miss this beautiful essay about the commonalities between all patients who have lost functionality – regardless of how different their conditions might seem. I recently met someone that happened to be just like me… Continue reading Someone Like Me
Spotlighted Blogger: Meet Jessica of “Jessica and Psoriasis”
Welcome to the latest installment of our “Spotlighted Blogger” series. This spring we are focusing on psoriasis patient bloggers, starting with Lissa back in March and Alisha B. a few weeks ago. Today, we’d like to introduce you to Jessica Gough, a 19-year-old from the UK who recently started a blog called Jessica and Psoriasis.… Continue reading Spotlighted Blogger: Meet Jessica of “Jessica and Psoriasis”
Spotlighted Blogger: Psoriasis Patient Alisha B. of “Being Me in My Own Skin”
Welcome to the latest installment of our “Spotlighted Blogger” series. So far, we’ve interviewed patient bloggers living with gastroparesis, type I diabetes, bipolar I disorder, Parkinson’s disease and ALS, and today we introduce Alisha B., who felt alone in her struggles with psoriasis until “coming out” on her blog, Being Me in My Own Skin. Alisha is currently participating in… Continue reading Spotlighted Blogger: Psoriasis Patient Alisha B. of “Being Me in My Own Skin”
Love Your Scars: An Interview with Transplant Recipient Amy Tippins
After five years of dealing with undiagnosed multiple hepatic adenomas (hemorrhaging tumors), PatientsLikeMe member Amy Tippins underwent a liver transplant in 1993. Two years ago, she received a ligament allograft using donor tissue. How does she feel about it all today? Check out our interview with this transplant activist to learn how these experiences led… Continue reading Love Your Scars: An Interview with Transplant Recipient Amy Tippins
Spotlighted Blogger: Interview with Lissa of “Psoriasis Girl’s Point of View”
Want to connect with and learn from psoriasis patients like you? Join PatientsLikeMe Now! (It’s free) Welcome to the sixth installment of our “Spotlighted Blogger” series. So far, we’ve interviewed patient bloggers living with gastroparesis, type I diabetes, bipolar I disorder, Parkinson’s disease and ALS, and today we introduce Lissa, a PatientsLikeMe member who has lived… Continue reading Spotlighted Blogger: Interview with Lissa of “Psoriasis Girl’s Point of View”
Spotlighted Blogger: Parkinson’s Patient Steve Ploussard of “Attitude & Fitness Wins”
Please meet Steve Ploussard, a longtime PatientsLikeMe member who writes a blog about living with Parkinson’s disease (PD) called “Attitude & Fitness Wins.” Since the original post date, the blog no longer exists. Steve decided that blogging was the perfect way to “come out” about his Parkinson’s diagnosis and become more at ease with it.… Continue reading Spotlighted Blogger: Parkinson’s Patient Steve Ploussard of “Attitude & Fitness Wins”
What Does it Mean When You Have Cold Legs?
If you’ve experienced cold legs yourself, we encourage you to share your experiences to help other patients. PatientsLikeMe’s unique data-sharing platform allows you to share detailed data about all types of treatments, interventions, and lifestyle modifications that have helped you or simply had no effectHave you suddenly realized that your legs are cold? You’re sitting… Continue reading What Does it Mean When You Have Cold Legs?
Annoyed or Impressed By Your Therapist? PatientsLikeMe Mood Members Chime In
In a recent blog post by New York Times’ Tara Parker-Pope, PsychCentral highlights “The 12 Most Annoying Habits of Therapists.” Launched a year ago this week, our very own Mood community has more than 1,300 patients using “Individual Therapy” as a treatment for their condition. We asked them to tell us some of the habits… Continue reading Annoyed or Impressed By Your Therapist? PatientsLikeMe Mood Members Chime In
Let’s make clinical trials more rewarding for patients
I came across this Wall Street Journal article earlier this week which details how patients with life-changing illnesses are using online services such as EmergingMed to help them enroll in clinical trials. The article points out that only 3% of adult cancer patients participate in trials, citing lack of awareness as a crucial factor. They… Continue reading Let’s make clinical trials more rewarding for patients