We’re more than halfway through 24 Days of Giving and we’ve been sharing how patient data has the power to create better communities, better care and a better you. So, while we’re on the subject of you – let’s talk more about how patients see themselves as the captains of their own health when it… Continue reading The power of your data: Patient empowerment
Category: Patient Experiences
The power of your data: How it works for you
For these 24 Days of Giving, we’ve been sharing how patient data has the power to change healthcare for the better. But how does the data you donate work for YOU in your own health journey? PatientsLikeMe members are starting to answer that as part of an ongoing initiative, giving us feedback about the benefits… Continue reading The power of your data: How it works for you
24 Days of Giving: Halfway checkpoint
The midpoint. The halfway mark. Call it what you want, but we’re smack in the middle of 24 Days of Giving. So, where do we stand on the data donation front? Let’s take a look: 12,340 treatment reports 90,610 symptom reports 72,593 health outcomes So if you’ve been donating, keep at it. If not, why… Continue reading 24 Days of Giving: Halfway checkpoint
Meet Kimberly from the PatientsLikeMe Team of Advisors
We’d like to introduce you to Kimberly (firefly84), another member of your 2016-2017 Team of Advisors. Kimberly lives with autonomic neuropathy and describes what it’s like to manage a condition that is at times invisible, how she tackles each day by taking “baby steps” and focusing on the moment at hand. Before becoming ill, Kimberly… Continue reading Meet Kimberly from the PatientsLikeMe Team of Advisors
The power of your data: Improving clinical trials
For these 24 Days of Giving, we’re rethinking what it means to give and how the power of patient data can change healthcare for the better. Another example of the impact your data can have? Making the clinical trial experience better for patients like you. Now let’s be real, that’s no short order. So where… Continue reading The power of your data: Improving clinical trials
Crohn’s and Colitis Awareness Week
This week is Crohn’s & Colitis Awareness Week. The Crohn’s & Colitis Foundation of America (CCFA) wants you to be #IBDvisible to raise awareness of Crohn’s disease and ulcerative colitis. Speak out, step up, and stand out. How? Join the movement: Use the hashtag “#IBDvisible” to let the IBD community know you are proud to stand strong… Continue reading Crohn’s and Colitis Awareness Week
Meet Jim from the PatientsLikeMe Team of Advisors
We recently announced the 2016-2017 Team of Advisors, and now we’ll be introducing each member so you can get to know them better as they kick off their year-long term. First up is Jim (jangrilah), a member of the MS community. Jim is a new grandfather, a husband and an international executive and leadership development… Continue reading Meet Jim from the PatientsLikeMe Team of Advisors
Ryan and Emma’s stories: Make-A-Wish® Massachusetts and Rhode Island
Last December, patients like you came together to donate more than 476,000 health data points, including nearly 30,000 treatment reports and close to 120,000 symptom reports. The data that everyone selflessly donated has a heartbeat that will keep on giving – helping other patients like you and accelerating research. And because you helped us reach… Continue reading Ryan and Emma’s stories: Make-A-Wish® Massachusetts and Rhode Island
PatientsLikeMe Kicks off 3rd Annual “24 Days of Giving”
People Living With Chronic Conditions Encouraged to Donate Health Data for 24 Days November 29, 2016 – CAMBRIDGE, Mass. – Beginning today on #GivingTuesday, PatientsLikeMe is kicking off its third-annual #24DaysofGiving to celebrate “the tradition of generosity.” Over the next 24 days, PatientsLikeMe is asking members to rally together, rethink what it means to give… Continue reading PatientsLikeMe Kicks off 3rd Annual “24 Days of Giving”
“Hope makes us strong.” Cathy opens up for National Family Caregivers Month
Are you a caregiver or do you know someone who cares for a loved one? For National Family Caregivers Month, we caught up with Cathy (Catrin), who became a caregiver for her husband after he was diagnosed with bulbar onset ALS in January of 2015. As she learns to manage the dual roles of wife… Continue reading “Hope makes us strong.” Cathy opens up for National Family Caregivers Month