At PatientsLikeMe we’re interested in bringing the voice of our patients to the attention of those who make drug products and to the regulators that approve them. Since 2008 we have conducted a series of projects to collect safety information from some of our member communities. We’ve worked with our pharmaceutical partners to help them… Continue reading Improving drug safety through the patient voice
Category: Patient Experiences
NurseTogether.com partners with PatientsLikeMe
Media Contact Steve Curtin Vice President NurseTogether.com +1 508.494.0776 stevec@nursetogether.com November 20, 2013, Charlotte, NC — NurseTogether.com, one of the premier online communities for nurses, today announced it has signed a marketing partnership with the patient network PatientsLikeMe to support and promote the importance of the nurse-to-patient care relationship. The websites will share content… Continue reading NurseTogether.com partners with PatientsLikeMe
Uniting for World Diabetes Day and American Diabetes Month
Diabetes is one of the most widespread conditions in the world.1 Globally, more than 370 million people are living with diabetes, including over 25 million in the United States alone.2 And throughout November, the American Diabetes Association (ADA) will raise awareness about everything diabetes, from risk factors and genetics to proper diet and blood sugar testing. The… Continue reading Uniting for World Diabetes Day and American Diabetes Month
Have you seen it yet?
We’re happy to unveil a new look and style for our website! Yesterday morning, patientslikeme.com got a makeover, and if you’ve got 60 seconds to spare, you can explore the new look with this tour. Kim Goodwin, our Vice President of User Experience, has also blogged about what’s changing and why – check it out.… Continue reading Have you seen it yet?
“Sleep has become a process.” Checking in with idiopathic pulmonary fibrosis patient and PatientsLikeMe member Lori
Some of you probably remember seeing her on the PatientsLikeMe blog before. Lori is living with idiopathic pulmonary fibrosis, and when we first chatted with her last July, she shared her experiences with blogging, the difficulty in finding the right diagnosis and how connecting with others has positively impacted her life. For our “Are You… Continue reading “Sleep has become a process.” Checking in with idiopathic pulmonary fibrosis patient and PatientsLikeMe member Lori
Raising awareness for epilepsy in many different ways
November is often seen as a month of transition – autumn gives way to winter, the holiday season fires up, and our short sleeves disappear for warm coats and sweaters. And as many of you know, November is also National Epilepsy Awareness Month. Many different organizations focus on epilepsy throughout the year, but this November,… Continue reading Raising awareness for epilepsy in many different ways
Stress and sleep- PatientsLikeMe co-founder Jamie Heywood’s interview on the TEDMED blog
Our co-founder Jamie Heywood was just interviewed for the TEDMED blog. Check it out! He talks more about the recent PatientsLikeMe sleep survey and some new results that show how stress can impact our sleeping habits. Here’s what’s posted up on the TEDMED blog… A new survey suggests patients’ sleep problems often… Continue reading Stress and sleep- PatientsLikeMe co-founder Jamie Heywood’s interview on the TEDMED blog
A Live Online Event: The extended effects of sleep deprivation
Recently, PatientsLikeMe co-founder Jamie Heywood and the member community were featured on TEDMED’s blog, and we’re happy to share the post with you this morning. In case you didn’t know, TEDMED is a “multi-disciplinary community of innovators and leaders who share a common determination to create a better future in health and medicine.” (Check out their… Continue reading A Live Online Event: The extended effects of sleep deprivation
Uncovering psoriasis with patients like you
This is it, the last report in our 5-part series of seasonal surveys focused on uncovering the experiences our psoriasis members. Like the seasons before it, this summer more than 300 psoriasis community members added their voices to research to help everyone understand what it’s like to live with the condition. Thanks to everyone who… Continue reading Uncovering psoriasis with patients like you
World Psoriasis Day – Global access to treatment
The international community is coming together today to raise awareness about psoriasis, and this year’s theme for World Psoriasis Day is ‘global access to treatment.’ The International Federation of Psoriasis Associations (IFPA) includes almost 50 member associations around world, including the National Psoriasis Foundation (NPF) right here in the U.S. They’re helping to spread the… Continue reading World Psoriasis Day – Global access to treatment