As part of our “Spotlighted Blogger” series, we’re talking with people who are sharing their personal health experiences to help raise awareness of disease and change healthcare for good. For our latest interview, we’re talking with Sarah and Keith. Sarah started writing about her fiancé Keith’s journey with a rare lung disease back in July… Continue reading Keith & Sarah’s personal journey with rare lung disease. Part I, “Fine”
Category: Patient Experiences
Irritable Bowel Syndrome Awareness Month
Did you know that between 9%-23% of people around the world suffer from irritable bowel syndrome (IBS)? However, many remain undiagnosed and just aren’t aware “that their symptoms indicate a medically recognized disorder.”[1] April is IBS Awareness Month and the International Foundation for Functional Gastrointestinal Disorders (IFFGD) is working to get information out to the… Continue reading Irritable Bowel Syndrome Awareness Month
Young professionals, students and patients gather to collaborate at 5th Parkinson’s Disease Summer School
The Parkinson’s Disease Summer School was founded in 2008 by Paul de Roos of the European Medical Students’ Association and Krzysztof Nesterowicz of the European Pharmacy Students’ Association. This year, the school is leaving its European roots and relocating to Montreal, Canada. Thirty participants from around the world will work in small teams to develop… Continue reading Young professionals, students and patients gather to collaborate at 5th Parkinson’s Disease Summer School
Raising awareness to lower stress
April is National Stress Awareness Month. According to the Mayo Clinic, our bodies release a burst of hormones when they perceive the threat of stress. It’s sometimes referred to as the “fight-or-flight” response.[1] It’s not a bad thing, but too much stress on a constant basis can negatively impact our health, relationships and overall quality… Continue reading Raising awareness to lower stress
Psoriasis in winter: what we’ve learned
The winter months can mean dry air, less sunlight, indoor heating, and heavy clothing – not the best conditions for people living with psoriasis. As part of our continuing seasonal series, we conducted a survey of our psoriasis community between October and March, receiving responses from over 500 patients. We asked everything from, “How does… Continue reading Psoriasis in winter: what we’ve learned
With you every step of the way- PatientsLikeMeInMotion
Many of you are helping to raise awareness about your conditions. You’re not only encouraging support and donations, you’re spreading knowledge and eliminating stigmas. We want to help support your disease awareness efforts too, with PatientsLikeMeInMotionTM. Over the years, we’ve sponsored hundreds of fundraising teams through our PatientsLikeMeInMotion program. Let us sponsor your team next… Continue reading With you every step of the way- PatientsLikeMeInMotion
Raising Awareness for Parkinson’s Disease
Did you know that four to six million people have Parkinson’s disease (PD) worldwide? And that 50,000-60,000 new cases of PD are diagnosed each year in the US?[1] April is Parkinson’s Awareness Month and there are more ways than ever for you to “Join the Fight” against this neurodegenerative brain disorder. The Parkinson’s Disease Foundation… Continue reading Raising Awareness for Parkinson’s Disease
Finding Peace, Confidence and Lifelong Friends: An Interview with Psoriasis Patient Erica
Of all the psoriasis patients we’ve interviewed, Erica was hit by this highly stigmatized autoimmune condition the earliest – she developed visible symptoms at the tender age of 9. Now 21, she shares her decade-plus journey from being the girl that people avoided in school to an increasingly confident young woman who has finally started… Continue reading Finding Peace, Confidence and Lifelong Friends: An Interview with Psoriasis Patient Erica
Can Social Media Strengthen Science?
And more specifically, can it be used to collect patient data, raise investment funds, make scientific data more accurate and even allow regular people to access the world of venture capital? This was the provocative question posed to a five-person discussion panel at the 2012 Partnering for Cures conference last fall that included several thought… Continue reading Can Social Media Strengthen Science?
New on the PatientsLikeMe Team: Sally Okun, VP of Advocacy, Policy and Patient Safety
This week, PatientsLikeMe announced two new appointments to the team: Kim Goodwin and Sally Okun RN. Here Sally, who was promoted to Vice President of Advocacy, Policy and Patient Safety, explains how she’ll continue to make sure the patient voice is heard, collected and disseminated to affect better treatment, services and care. Look for more… Continue reading New on the PatientsLikeMe Team: Sally Okun, VP of Advocacy, Policy and Patient Safety