Did you know that 1 in 10 people worldwide have rare and genetic conditions? PatientsLikeMe was a proud sponsor of the 1st Annual Tribute to Champions of Hope, organized by our partner the Global Genes / RARE Project. Held on September 27th in Newport Beach, CA, the gala recognized outstanding individuals who are working to affect… Continue reading Recognizing the Rare Disease Community’s Champions of Hope
Category: Patient Experiences
Creating Your “A Team” for Health
Today’s guest post is written by PatientsLikeMe Vice President for Advocacy, Policy and Patient Safety Sally Okun, RN, MMHS. Getting health care can often feel like you’re trying to put together a difficult jigsaw puzzle, only to find that some of the pieces are missing. Even under the best circumstances, navigating the health care system is… Continue reading Creating Your “A Team” for Health
World Heart Day: Taking Prevention to Heart
Did your heart beat a little faster this weekend? This past Saturday was World Heart Day, sponsored by the World Heart Federation. Founded in 2000, this global event was created to educate the public about heart disease and stroke, the world’s leading cause of death, claiming 17.3 million lives each year. What’s a major concern… Continue reading World Heart Day: Taking Prevention to Heart
Today’s Photo: 2012 Ride for Dads in Minnesota
Earlier this month, we shared a video interview with PatientsLikeMe member Wayne Sticha, who founded the Ride for Dads in 2010 to raise awareness of prostate cancer. Since September is National Prostate Cancer Awareness Month, we wanted to close out the month by sharing one of Wayne’s photos from 2012 Ride for Dads, which involved… Continue reading Today’s Photo: 2012 Ride for Dads in Minnesota
PatientsLikeMe at Medicine 2.0
With more than 500 attendees from 36 countries, the 5th Annual Medicine 2.0 World Congress took place September 15-16th at Harvard Medical School here in Boston. Among these attendees were several PatientsLikeMe leaders, including keynote speaker Jamie Heywood and conference presenters Sally Okun and Paul Wicks. In an unusual twist, all three PatientsLikeMe speakers got… Continue reading PatientsLikeMe at Medicine 2.0
What We’ve Uncovered About Psoriasis in the Summertime
Want to connect with and learn from psoriasis patients like you? Join PatientsLikeMe Now! (It’s free) Are people with psoriasis more likely to cover up with pants and long sleeves in warm weather? Or are they okay with “showing some skin” in shorts and tank tops? This is just one of the things we set… Continue reading What We’ve Uncovered About Psoriasis in the Summertime
A Day in the Life of PatientsLikeMe Quality Assurance Engineer Brian Boyle
What’s it like to work at PatientsLikeMe? We are continuing to reveal just that with our monthly blog series “A Day in the Life,” which features employees from different departments. So far, we’ve interviewed User Experience Engineer Cris Necochea, Research Assistant Shivani Bhargava, Office Manager Alison Dutton, Research Scientist Timothy Vaughan, Biz Dev’er Arianne Graham, Product Manager Maureen Oakes and… Continue reading A Day in the Life of PatientsLikeMe Quality Assurance Engineer Brian Boyle
Add Your Voice During National Recovery Month
Are you in recovery from an addiction or mental health disorder – or do you know someone who is? The theme for National Recovery Month 2012, sponsored by the Substance Abuse and Mental Health Services Administration (SAMHSA), is “Join the Voices for Recovery: It’s Worth It!” There are several different ways to participate in this… Continue reading Add Your Voice During National Recovery Month
The Ride of His Life: An Interview with Prostate Cancer Survivor Wayne Sticha
“I wanted to share my story to, frankly, save other men’s lives. I discovered that very few knew anything about [prostate cancer]. Even less had had the PSA test.” – Wayne Sticha, 64, Founder of Ride for Dads Over the summer, we shared two interviews with PatientLikeMe members conducted by our partner Patient Power: one… Continue reading The Ride of His Life: An Interview with Prostate Cancer Survivor Wayne Sticha
Snapping the Glove on Prostate Cancer Awareness: An Interview with Dan Hennessey
Canadian Dan Hennessey (Goalie at PatientsLikeMe) started out as a prostate cancer patient. Today, following successful treatment, he is not only a prostate cancer survivor, but an author, speaker and activist in the prostate cancer awareness movement. In honor of National Prostate Cancer Awareness Month, we’ve interviewed Dan to learn about his experience and find… Continue reading Snapping the Glove on Prostate Cancer Awareness: An Interview with Dan Hennessey