Did you know that psoriasis cannot be transmitted through skin-to-skin contact – or any other type of interaction? August is Psoriasis Awareness Month, an annual event dedicated to highlighting the life-altering impact of psoriasis and dispelling the many myths surrounding it. Beyond the misperception that it may be contagious, another major misunderstanding is that psoriasis… Continue reading Psoriasis Isn’t Contagious…But Awareness Is
Category: Patient Experiences
What’s in Your Health Record?
If you’re living in an Internet-enabled household, chances are you have all or most of your banking information at your fingertips. Can you say the same for your health information? For many, these important records are locked away in filing cabinets or kept at your doctor’s offices. Despite the fact that patients have a legal… Continue reading What’s in Your Health Record?
What Is Big Data?
“Big data” is being discussed in the media quite a bit these days. But what exactly is it? Generally speaking, it’s a data set that’s extremely large and complex, thus requiring advanced technology to turn it into meaningful insights. Yet there’s a good reason to try to collect and interpret it. Simply put, big data… Continue reading What Is Big Data?
Marcia Hirst: Don’t Let Multiple Sclerosis Take the Joy Out of Your Life
“The benefit of sharing on PatientsLikeMe is the support. For me, it doesn’t matter what I’m going through, there are people there that understand. They’re not judgmental. They get it. They’re there too. I get lots of emotional moral support.” – Multiple Sclerosis Patient Marcia Back in June, we shared with you a video interview… Continue reading Marcia Hirst: Don’t Let Multiple Sclerosis Take the Joy Out of Your Life
Join Us Next Week at the Bubbly Bub & Grub
Are you a Boston-area Ruby programmer or Ruby on Rails developer? An open source software enthusiast? Or someone who just likes to hang out with the techie folks? PatientsLikeMe is a proud sponsor of the Boston Ruby Group’s upcoming social event, the cheekily named Bubbly Bub & Grub at a Pub in the Hub Club, which takes… Continue reading Join Us Next Week at the Bubbly Bub & Grub
PatientsLikeMe in the News: A Roundup
Check out some of the media outlets that have highlighted health social networks recently – including PatientsLikeMe and our members. Social Media a Godsend for Patients with Rare Diseases PatientsLikeMe is highlighted as a good example in this Chicago Tribune article. Medical Innovation Needs Silicon Valley Speed, Stat Fast Company cites us for providing “unprecedented… Continue reading PatientsLikeMe in the News: A Roundup
Bridging Traditional Medicine and Online Health
“The reason I’m interested in Doctors 2.0 is that it’s the intersection between those traditional healthcare establishments and the new cutting edge of the Internet, and I think the people who can bridge those two areas over the next two to three years will be the ones who will be able to empower patients and… Continue reading Bridging Traditional Medicine and Online Health
Navigating Healthcare on Twitter
More than five years after founder Jack Dorsey sent the very first “Tweet,” Twitter has exploded into a social media behemoth. Today, billions of real-time Tweets are sent each year about all manner of subjects – including healthcare. But how in the world do you keep up with all of them? That’s exactly the conundrum… Continue reading Navigating Healthcare on Twitter
The Importance of Open Access: An Interview with Patient Advocate Graham Steel
A native of Glasgow, Scotland, Graham Steel is a longtime “Guest Researcher Member” of PatientsLikeMe. Following the death of his brother Richard at the age of 33 from a rare condition known as variant Creutzfeldt-Jakob Disease (vCJD), Graham became involved in patient advocacy work, and most recently, in lobbying for open access to published scientific… Continue reading The Importance of Open Access: An Interview with Patient Advocate Graham Steel
Today’s Photo: Walking Warriors for MS
As we get deeper into summer, there are disease-related walk/run events happening almost every weekend. What they all share is an opportunity for patients, friends and family to come together in solidarity and raise money for research and patient services. For inspiration, please meet multiple sclerosis (MS) patient barneyhouse and her “Walking Warriors,” who took… Continue reading Today’s Photo: Walking Warriors for MS