Did you know that arthritis is the most common cause of disability in the US? Or that this disease – which affects some 50 million Americans – has more than 100 different types? May is Arthritis Awareness Month, a nationwide event sponsored by the Arthritis Foundation (AF) to raise awareness and funds. All across the… Continue reading Get Moving for Arthritis Awareness Month
Category: Patient Experiences
Jamie Heywood Is One of Hacking Work’s 100 Great Disruptive Heroes
How do you define a disruptive hero? Here is Hacking Work’s three-pronged filter: Disruptive because they are proving conventional wisdom wrong. Heroes because they are changing the rules of the game, for the better. Great because they helped to change us all for the better. Given these demanding criteria, we are pleased to announce that… Continue reading Jamie Heywood Is One of Hacking Work’s 100 Great Disruptive Heroes
A Peek at the April Newsletter for Members
What kinds of things do we cover in our monthly newsletters for members? Take a look at the excerpt below from our April edition. Also, in case you didn’t know, anyone – whether a PatientsLikeMe member or not – can view our current and past newsletters in our Newsletter Archive. See what we’ve been up… Continue reading A Peek at the April Newsletter for Members
A Day in the Life of PatientsLikeMe Research Scientist Timothy Vaughan
What’s it like to work at PatientsLikeMe? We are continuing to reveal just that with our monthly blog series “A Day in the Life,” which features employees from different departments. So far, we’ve interviewed User Experience Engineer Cris Necochea, Research Assistant Shivani Bhargava and Office Manager Alison Dutton. Today we hear from Research Scientist Timothy Vaughan,… Continue reading A Day in the Life of PatientsLikeMe Research Scientist Timothy Vaughan
PatientsLikeMe Named One of Lead411’s “Hottest Companies in Boston”
Is it getting hot in here? Earlier this month, corporate research firm Lead411 announced its 2012 “Hottest Companies in Boston” awards, which recognize the fastest growing technology companies in the Boston area. The award selection process started with over 1,776 companies and was narrowed down to the top 62. We were one of them! Headquartered… Continue reading PatientsLikeMe Named One of Lead411’s “Hottest Companies in Boston”
Spotlighted Blogger: Psoriasis Patient Alisha B. of “Being Me in My Own Skin”
Welcome to the latest installment of our “Spotlighted Blogger” series. So far, we’ve interviewed patient bloggers living with gastroparesis, type I diabetes, bipolar I disorder, Parkinson’s disease and ALS, and today we introduce Alisha B., who felt alone in her struggles with psoriasis until “coming out” on her blog, Being Me in My Own Skin. Alisha is currently participating in… Continue reading Spotlighted Blogger: Psoriasis Patient Alisha B. of “Being Me in My Own Skin”
Recognizing Autism Awareness Month
Have you seen the awareness ribbon with the puzzle pattern? It’s the symbol for autism awareness, with the puzzle pieces representing the mystery and complexity of autism spectrum disorders (ASD). The different colors and shapes also highlight the diversity of families living with this condition, which occurs in 1 in 110 births in the US… Continue reading Recognizing Autism Awareness Month
Preparing for Life After an Organ Transplant
Last week, we shared our interview with a liver transplant recipient who is living out her dreams post-transplant. Today we’d like to add the insights of 32 organ transplant recipients who took part in an online discussion hosted by PatientsLikeMe. Split equally in gender with ages ranging from 25 to 60 years old, our discussion… Continue reading Preparing for Life After an Organ Transplant
PATIENTSLIKEME ANNOUNCES NEW COMMUNITY, DOGSLIKEME
Researchers Use Open Medical Network to Analyze Canine Health CAMBRIDGE, Mass. — (April 1, 2012) — PatientsLikeMe (www.patientslikeme.com), the leading online community for people with life-changing conditions, announces the opening of its doors to canines. The initial launch will be open only to dogs (Canis lupus familiaris). Future releases will allow participation of wolves, jackals, coyotes,… Continue reading PATIENTSLIKEME ANNOUNCES NEW COMMUNITY, DOGSLIKEME
Love Your Scars: An Interview with Transplant Recipient Amy Tippins
After five years of dealing with undiagnosed multiple hepatic adenomas (hemorrhaging tumors), PatientsLikeMe member Amy Tippins underwent a liver transplant in 1993. Two years ago, she received a ligament allograft using donor tissue. How does she feel about it all today? Check out our interview with this transplant activist to learn how these experiences led… Continue reading Love Your Scars: An Interview with Transplant Recipient Amy Tippins