(This post has been repurposed from an article written by PatientsLikeMe’s Paul Wicks for the scientific journal Clinical Investigation.) But when it comes to clinical trials, can we afford to let it be? “Information (or data) wants to be free” – so goes the mantra of hackers and data activists. In the past this meant… Continue reading Information Wants to Be Free
Category: Patient Experiences
How Heart Attack Warning Signs Differ in Women
A heart attack is unmistakable, right? Not exactly. And especially not if you’re a woman. We kicked off February by recognizing National Wear Red Day and sharing a hilarious video created by actress Elizabeth Banks for American Heart Month. In the short piece, a harried working mother begins having strange symptoms one morning, including tightness… Continue reading How Heart Attack Warning Signs Differ in Women
Behind Every Piece of Data Is a Patient
(This post has been repurposed from an article written by PatientsLikeMe’s Ben Heywood for eyeforpharma’s Patient’s Week 2011.) Real-world, patient-reported data is becoming more important to you, the patient, as well as everyone in healthcare. One source of that data is patient registries. According to the US Department of Health & Human Services’ Agency for Healthcare Research… Continue reading Behind Every Piece of Data Is a Patient
A Day in the Life of Research Assistant Shivani Bhargava
What’s it like to work at PatientsLikeMe? We are continuing to reveal just that with our monthly blog series “A Day in the Life,” which features various employees from different departments. So far, we have profiled Research Scientist Mike Massagli and User Experience Engineer Cris Necochea, and today, we share our interview with Research Assistant Shivani… Continue reading A Day in the Life of Research Assistant Shivani Bhargava
What Do You Know About Age-Related Macular Degeneration (AMD)?
February is AMD/Low Vision Awareness Month, sponsored by Prevent Blindness America. Affecting part of the back of the eye called the macula, age-related macular degeneration (AMD) can cause the center area of your vision to become blurry or wavy. It can also create a blind spot right in the center of your vision. As the… Continue reading What Do You Know About Age-Related Macular Degeneration (AMD)?
New Quality of Life Index and More for Psoriasis
Are you one of the roughly 700 patients with psoriasis at PatientsLikeMe? We’ve got some exciting new features just for you. At the end of 2011, we unveiled the Dermatology Life Quality Index (DLQI), a new 12-question survey that helps you measure how psoriasis affects your day-to-day life. Answer the questions regularly to produce a… Continue reading New Quality of Life Index and More for Psoriasis
Are You Decked Out in Red Today?
We are! Check out the PatientsLikeMe team members who donned red items (everything from ties to scarves to dresses) in support of National Wear Red Day. Here’s to increasing awareness of heart disease – the number one killer of women – in 2012. Stay tuned for more about cardiovascular health throughout February, which is Heart… Continue reading Are You Decked Out in Red Today?
Wear Red Tomorrow for Women’s Heart Health
Did you know that heart disease kills more women than all cancers combined? And that it’s largely preventable? Now you do – and there’s something you can do about it. Participate in National Wear Red Day® tomorrow, February 3, 2012. Better yet, get your friends and co-workers to dig into their closets as well. Together,… Continue reading Wear Red Tomorrow for Women’s Heart Health
Thriving Against Expectations: Ben Heywood’s Moving TEDx Cambridge Talk
Last November, we shared our takeaways from TEDx Cambridge, a one-day event featuring 30+ speakers and lots of Ideas Worth Spreading (TED’s mission). The theme for this particular gathering was “Thrive.” How can we as individuals – and communities – not just survive but thrive? One of the speakers to take a crack at that… Continue reading Thriving Against Expectations: Ben Heywood’s Moving TEDx Cambridge Talk
The Personalized Medicine World Conference in Photos and Tweets
Last week, PatientsLikeMe Co-Founder Jamie Heywood had the honor of speaking at the Personalized Medicine World Conference (PMWC), a two-day event held at the Computer History Museum in Silicon Valley. His presentation was entitled “Patient Driven Convergence of Clinical Discovery and Care.” In recognition of the conference’s venue as well as the role that technology… Continue reading The Personalized Medicine World Conference in Photos and Tweets