Last November, we shared our takeaways from TEDx Cambridge, a one-day event featuring 30+ speakers and lots of Ideas Worth Spreading (TED’s mission). The theme for this particular gathering was “Thrive.” How can we as individuals – and communities – not just survive but thrive? One of the speakers to take a crack at that… Continue reading Thriving Against Expectations: Ben Heywood’s Moving TEDx Cambridge Talk
Category: Research
Our Patients’ Hopes, Thoughts and Resolutions for 2012
Many people look at a new year as a fresh start – a chance to begin new routines, eliminate bad habits and shift priorities. But not everyone believes in making resolutions. Here are several different patient perspectives on approaching the new year: “In 2012, I will make daily exercise a priority. Research reveals it is the… Continue reading Our Patients’ Hopes, Thoughts and Resolutions for 2012
Life with Parkinson’s Disease: What We’ve Learned
On Tuesday, our interview with blogger Steve Ploussard of “Attitude & Fitness Wins” revealed how one person is managing his Parkinson’s disease (PD). Today we take a closer look at this progressive neurological condition using the data and experiences shared by our 5,920 PD members. Taking a look at the makeup of our PD community,… Continue reading Life with Parkinson’s Disease: What We’ve Learned
A Day in the Life of PatientsLikeMe Research Scientist Mike Massagli
What’s it like to work at PatientsLikeMe? We’ll be revealing just that with our new blog series “A Day in the Life,” which features various employees from different departments. To start this new series off with a veteran perspective, we interviewed Research Scientist Mike Massagli, PhD, one of the longest tenured employees of the company. … Continue reading A Day in the Life of PatientsLikeMe Research Scientist Mike Massagli
Results from PatientsLikeMe Diabetes Poll
FOR IMMEDIATE RELEASE PATIENTSLIKEME POLL REVEALS UPCOMING HOLIDAY SEASON MOST DIFFICULT FOR DIABETES PATIENTS CONTROLLING BLOOD GLUCOSE PatientsLikeMe Introduces Daily Glucose Monitoring Feature in December CAMBRIDGE, MA – November 22, 2011 – According to a recent PatientsLikeMe® Poll, one out of every two type 2 diabetes patients (50%) and nearly two out of every three type… Continue reading Results from PatientsLikeMe Diabetes Poll
Act Now for World Diabetes Day
Today is World Diabetes Day, sponsored by the International Diabetes Federation. An official United Nations Day since 2007, World Diabetes Day is held every year on November 14th to commemorate the birthday of Frederick Banning. Along with Charles Best, Banning is credited with the life-saving discovery of insulin in 1922. Why is there a need for a global diabetes… Continue reading Act Now for World Diabetes Day
PATIENTSLIKEME AND R.A.R.E PROJECT UNITE TO FIND AND CONNECT ONE MILLION RARE DISEASE PATIENTS
FOR IMMEDIATE RELEASE Nonprofit and “Not Just for Profit” Announce Collaboration at PartneringForCures Event NEW YORK, NY – November 7, 2011 – Today, PatientsLikeMe and R.A.R.E Project, a nonprofit advocacy and support group for patients with all rare diseases, announce a new partnership to find and connect 1 million rare disease patients to share and… Continue reading PATIENTSLIKEME AND R.A.R.E PROJECT UNITE TO FIND AND CONNECT ONE MILLION RARE DISEASE PATIENTS
Medication Non-Adherence: The Costs and Complexities
On October 24-25th, PatientsLikeMe attended the 8th Annual Patient Adherence, Communication and Engagement (PACE) Conference in Philadelphia. The event focused on how the healthcare industry can deliver measurable improvements in patient adherence (i.e., taking medications as prescribed by your doctor). Put simply, how can we help patients like you take the correct dosages at the correct… Continue reading Medication Non-Adherence: The Costs and Complexities
“A White Coat Affair”: A Wonderful Evening Celebrating ALS TDI
Last night, the PatientsLikeMe team came together for a great cause: the “White Coat Affair” gala benefit in support of the ALS Therapy Development Institute (ALS TDI). Founded by PatientsLikeMe Co-Founder and Chairman Jamie Heywood in 1999, ALS TDI is the world’s most advanced research laboratory dedicated to ALS. Held the night before the institute’s… Continue reading “A White Coat Affair”: A Wonderful Evening Celebrating ALS TDI
Moving Genetic Data Discovery Forward
In August, we proudly announced that PatientsLikeMe Research Scientist Catherine Brownstein, PhD, MPH, had won a prestigious “Young Investigator Award” from the International Congress for Human Genetics (ICHG). As promised, here is Catherine’s first-person report from the conference, held October 11-15, 2011, in Montreal. *********************************************************** The 12th International Congress for Human Genetics (ICHG) was a… Continue reading Moving Genetic Data Discovery Forward