Life Expectancy with Amyloidosis

Medically reviewed and verified by Kate Burke, MD, MHA Amyloidosis is a group of diseases that happen when certain proteins in the body change shape, clump together, and form amyloid deposits. These build up in organs and tissues, making them stiff and damaging them over time. Different types of amyloidosis affect different organs, and their… Continue reading Life Expectancy with Amyloidosis

Mimic Diseases: Why Amyloidosis Can be Hard to Diagnose

Medically reviewed and verified by Kate Burke, MD, MHA Getting the right diagnosis in medicine is a crucial first step in treating any illness. However, diagnosing diseases is often more challenging than it seems, especially when dealing with rare conditions like amyloidosis. You may be wondering why diagnosing diseases, in general, can be difficult. Why… Continue reading Mimic Diseases: Why Amyloidosis Can be Hard to Diagnose

End-Stage Amyloidosis: What to Expect for Patients and Caregivers

Medically reviewed and verified by Kate Burke, MD, MHA End-stage amyloidosis is a phase of the disease where the condition has progressed to its most severe form. At this stage, patients experience significant symptoms affecting multiple organ systems, and the focus of care shifts towards managing symptoms and improving quality of life. It can be… Continue reading End-Stage Amyloidosis: What to Expect for Patients and Caregivers

Biomarkers: Understanding their Importance in Diagnosing Amyloidosis

Medically reviewed and verified by Kate Burke, MD, MHA Some medical terminology can lose people immediately. If you are researching a condition and come across a phrase that seems important but is complicated, you might choose to skip right past it! For a disease like amyloidosis, that may be the term “biomarkers.” Biomarkers are indicators… Continue reading Biomarkers: Understanding their Importance in Diagnosing Amyloidosis

Cerebral Amyloid Angiopathy: A Guide for Patients and Caregivers

Medically reviewed and verified by Kate Burke, MD, MHA When proteins in the body misfold, they can spread to different organs and tissues. There, they start to accumulate. Over time, this build up of proteins can damage wherever they have landed. In many cases of amyloidosis, they spread to multiple parts of the body. In… Continue reading Cerebral Amyloid Angiopathy: A Guide for Patients and Caregivers

Oral Amyloidosis: How it Can Affect the Tongue

Medically reviewed and verified by Kate Burke, MD, MHA In previous articles, PatientsLikeMe has covered how the disease amyloidosis can affect different parts of the body. The digestive system, the brain, the heart. When proteins misfold, they can spread throughout the body and cause damage to any number of organs and body parts. That includes… Continue reading Oral Amyloidosis: How it Can Affect the Tongue

The Effect of Amyloidosis on Vision

Medically reviewed and verified by Kate Burke, MD, MHA PatientsLikeMe has covered how the condition amyloidosis affects the body and various organs. This disease causes proteins to misfold, and as they build up across the body they disrupt its normal function. These protein deposits can land anywhere, although they are more commonly found in places… Continue reading The Effect of Amyloidosis on Vision

Complementary and Alternative Treatments for Amyloidosis

Medically reviewed and verified by Kate Burke, MD, MHA There is no cure for amyloidosis, but traditional treatment methods fall into one of two buckets. There are medications that can be prescribed to treat symptoms. These include chemotherapy drugs, heart medications, and targeted therapies for certain types of amyloidosis. The other approach is surgical. Stem… Continue reading Complementary and Alternative Treatments for Amyloidosis

What is AA (Secondary) Amyloidosis?

Medically reviewed and verified by Kate Burke, MD, MHA Of the various types of amyloidosis, AA amyloidosis comes about because of another long-term illness. This is often chronic inflammation or infection. Like other forms of amyloidosis, this type can affect different organs in different ways. Understanding how and why this disease progresses is the best… Continue reading What is AA (Secondary) Amyloidosis?

Tips for Caregivers of People with Amyloidosis

Medically reviewed and verified by Kate Burke, MD, MHA Caring for a loved one with amyloidosis is a significant responsibility that comes with its own set of challenges. As a condition, amyloidosis can cause various health problems across the body. It can be difficult to stay on top of everything you need to know! If… Continue reading Tips for Caregivers of People with Amyloidosis