FOR IMMEDIATE RELEASE Nonprofit and “Not Just for Profit” Announce Collaboration at PartneringForCures Event NEW YORK, NY – November 7, 2011 – Today, PatientsLikeMe and R.A.R.E Project, a nonprofit advocacy and support group for patients with all rare diseases, announce a new partnership to find and connect 1 million rare disease patients to share and… Continue reading PATIENTSLIKEME AND R.A.R.E PROJECT UNITE TO FIND AND CONNECT ONE MILLION RARE DISEASE PATIENTS
Tag: Awareness
Creating Wheelchair Awareness Through Photos
For someone who uses a wheelchair, there are barriers and hazards everywhere – things that others may not see. But how do you raise visibility of the issue? One of our longtime MS members, gamma, decided that a photo essay of the obstacles that exist in her neighborhood (considered a wheelchair-friendly community) and others would… Continue reading Creating Wheelchair Awareness Through Photos
Photo of the Week: Little People in Motion
Please meet the youngest supporters of MS member Not Awake, who led a PatientsLikeMeInMotion-sponsored team at a Walk MS event in Springfield, Missouri, this spring. Although our bright blue t-shirts are offered in adult sizes only, you’ll see that this young fellow was able to wear a creatively adapted version nonetheless. Congrats to Not Awake… Continue reading Photo of the Week: Little People in Motion
See the PatientsLikeMeInMotion Program in Action
We’ve shared a lot of great photos on the blog lately of run/walk teams sponsored by PatientsLikeMeInMotion this year. Now you can learn more about this dynamic program in a more dynamic format with our new PatientsLikeInMotion video. Find out how to get involved, what sponsorship entails and how much PatientsLikeMe has donated towards our sponsored… Continue reading See the PatientsLikeMeInMotion Program in Action
Photo of the Week: Three Generations in Motion
A multiple sclerosis (MS) diagnosis affects the whole family, which is why it can be great to get the whole family involved in awareness activities. Please meet PatientsLikeMeInMotion team leader PepsiGirl, who was supported by several family members at a 2011 Walk MS event in her home state of New York. Congrats to PepsiGirl and… Continue reading Photo of the Week: Three Generations in Motion
Photo of the Week: Newly Diagnosed Patients in Motion
For a newly diagnosed patient, organizing a run/walk/bike team sponsored by PatientsLikeMeInMotion can be a way to take action, “go public” and make new connections. Please meet Monkey Mamma, who was diagnosed with epilepsy last year, at the Epilepsy Foundation‘s Stroll for Epilepsy on April 9, 2011, in Dallas, Texas. Congrats to Monkey Mamma and all… Continue reading Photo of the Week: Newly Diagnosed Patients in Motion
Photo of the Week: Wheels in Motion
A number of our ALS and PLS members use wheelchairs, but that doesn’t keep them from participating in awareness walks sponsored by PatientsLikeMeInMotion. Please meet Power Mom, a grandmother of six who led a team at the Walk to Defeat ALS in Long Island, New York. Congrats to Power Mom and all of our sponsored teams… Continue reading Photo of the Week: Wheels in Motion
Photo of the Week: All Ages in Motion
When our members organize a run/walk/bike team sponsored by PatientsLikeMeInMotion, it’s often a family affair involving multiple generations. Below is a great shot of member Hapeone along with her daughter at the 2011 National Alliance on Mental Illness (NAMI) Walk in Dallas, Texas. Congrats to Hapeone and all of our sponsored teams for your efforts… Continue reading Photo of the Week: All Ages in Motion
Photo of the Day: A Glimpse of PatientsLikeMeInMotion
As we mentioned in our blog post last week, our PatientsLikeMeInMotion program is off to a running start this year with more than 30 sponsored teams thus far. What does one of these run/walk/bike teams look like? Below is Team Sylvan, a 40-person team led by ALS patient Panda155. Decked out in bright blue PatientsLikeMe… Continue reading Photo of the Day: A Glimpse of PatientsLikeMeInMotion
How Much Do You Know About Autism and IBS?
“When you have a child with special needs, you really start to feel like you’re constantly the squeaky wheel as you advocate for your child. After a while, you start to wonder…’is it me?’ But I’ve already found several other parent advocates who are going through the same thing.” – Autism Caregiver It’s Autism Awareness… Continue reading How Much Do You Know About Autism and IBS?