Many of you have already met Letitia. She’s part of the PatientsLikeMe epilepsy community, and from her Patient Voice video to Twitter (@Pulchritude81), she continues to be a rockstar when it comes to sharing her experiences and advocating for patient centered research. Her latest efforts focused on patient empowerment where she headlined a webinar with our friends at… Continue reading Taking control: from PatientsLikeMe member Letitia and our friends at the Partnership to Improve Patient Care
Tag: community
Getting to know our Team of Advisors – Deb
You’ve been introduced to five members of the PatientsLikeMe Team of Advisors so far: Karla, Emilie, Becky, Lisa and Dana. This month, meet Deb, a freelance medical writer who was diagnosed with multiple sclerosis (MS) in 2009. Learn about her journey and what being a part of the Team of Advisors means to her. About… Continue reading Getting to know our Team of Advisors – Deb
“I am not alone in this” – PatientsLikeMe member Rikwood55 shares his journey with lung cancer
New member (and New Zealander) Rikwood55 was diagnosed at age 58 with non-small cell lung carcinoma (stage 4), and he said he joined PatientsLikeMe in the hope of connecting with people on the same or similar lung cancer immunotherapy treatments. Rick took part in a clinical trial, and is now tolerating the immunotherapy treatment well. His scans… Continue reading “I am not alone in this” – PatientsLikeMe member Rikwood55 shares his journey with lung cancer
March is Multiple Sclerosis Awareness Month
Multiple sclerosis (MS) affects more than 2.5 million people worldwide, and in the United States alone, about 200 new people are diagnosed each week. Those are just a couple of the many reasons why the Multiple Sclerosis Association of America (MSAA) recognizes March as Multiple Sclerosis Awareness Month. What more do we know about MS?… Continue reading March is Multiple Sclerosis Awareness Month
“I am slowly building my self-esteem “ – PatientsLikeMe member SuperChick shares about her journey with PTSD
PatientsLikeMe member SuperChick is a veteran living with post traumatic stress disorder (PTSD), and her story is one of learning to cope with emotions and frustrations. She’s living proof that things can get better – she’s a loving mother of two, has a great husband and is managing several other mental health conditions. Below, she… Continue reading “I am slowly building my self-esteem “ – PatientsLikeMe member SuperChick shares about her journey with PTSD
What do you know about getting enough sleep?
That’s what the National Sleep Foundation (NSF) is asking during Sleep Awareness Week to help everyone better understand why sleep matters. And what you know probably depends on your own experiences. Are you living with insomnia or a chronic condition that impacts your sleep? Or do you just have a restless night every once in… Continue reading What do you know about getting enough sleep?
Seeing [MS]: The invisible symptoms – brain fog
Australian Jessica Anderson has been living with multiple sclerosis since she was 12 years old, and she says brain fog is the scariest symptom she experiences, especially not being able to gather and make sense of her own thoughts. During her worst moments, she can barely focus on a thought for more than 30 seconds.… Continue reading Seeing [MS]: The invisible symptoms – brain fog
Recognizing National Donor Day
It’s Valentine’s Day, and besides flowers and candy, there’s a special way you can show somebody love today – by registering as an organ donor to give the most precious Valentine of all: the promise of life. February 14th is also National Donor Day, and it’s all about recognizing those who have donated in the… Continue reading Recognizing National Donor Day
“You can get better” – PatientsLikeMe member jeffperry1134 shares about his journey with PTSD
Many veterans are a part of the PTSD community on PatientsLikeMe, and recently, jeffperry1134 spoke about his everyday life after returning home from military service. In his interview, he touched upon his deployment to Somalia in the early 1990s, and how his memories of Africa cause daily symptoms like anxiety, hallucinations and nightmares. But despite… Continue reading “You can get better” – PatientsLikeMe member jeffperry1134 shares about his journey with PTSD
Getting to know our Team of Advisors – Karla
This past Monday on the blog, Emile shared about her fibromyalgia and what being a part of the PatientsLikeMe Team of Advisors means to her, including how she hopes to help doctors understand that patients need to be treated as individuals, rather than just disease names. Today, we’re featuring Karla. She’s also a member of… Continue reading Getting to know our Team of Advisors – Karla