“Be Mine.” It’s the mantra of Valentine’s Day, but today we’re honoring those who’ve said, “Have mine.” February 14 is also National Donor Day, and it’s all about recognizing the most precious valentine of all: the gift of life. For every organ, tissue, marrow, platelet and blood donation, there are two sides to the story.… Continue reading National Donor Day: Changing lives on both sides
Tag: donation
PatientsLikeMe Encourages Sharing of Health Data for Good with 2nd Annual “24 Days of Giving”
The Gift of Health Data Can Help Others, and Advance Research CAMBRIDGE, MASS., December 1, 2015—On this #GivingTuesday, PatientsLikeMe is once again celebrating “the new tradition of generosity” by encouraging people to donate something unusual but vital: their health data. Starting today and continuing for #24DaysofGiving, PatientsLikeMe is asking anyone who is living with a… Continue reading PatientsLikeMe Encourages Sharing of Health Data for Good with 2nd Annual “24 Days of Giving”
#NotAlone: On PatientsLikeMe, no one is alone
Our co-founder Jamie Heywood calls it “the big idea my brother inspired.” A community of people learning from each other’s shared health experiences, connecting with people who get what they’re going through, and tracking their journeys to inform new research and help others understand what might work best for them. That is PatientsLikeMe, and that… Continue reading #NotAlone: On PatientsLikeMe, no one is alone
Data donations make wishes come true
Back in December 2014, the PatientsLikeMe community donated 450,000 health data points during the 24 Days of Giving campaign, and a special thanks to everyone who participated and have continued to donate their data for good. Every donation made wishes come true for children with life-threatening medical conditions, and on behalf of the community, PatientsLikeMe made… Continue reading Data donations make wishes come true
Talking Brain Donation with Dr. Deborah Mash
Dr. Deborah Mash is a professor of neurology and molecular/cellular pharmacology at the University of Miami School of Medicine. She’s also the director of the university’s Brain Endowment Bank, and she recently spoke with PatientsLikeMe about her research and exactly what goes into donating your brain to science. As she says, “we still know very… Continue reading Talking Brain Donation with Dr. Deborah Mash
Recognizing National Donor Day
It’s Valentine’s Day, and besides flowers and candy, there’s a special way you can show somebody love today – by registering as an organ donor to give the most precious Valentine of all: the promise of life. February 14th is also National Donor Day, and it’s all about recognizing those who have donated in the… Continue reading Recognizing National Donor Day
MS members share about their PatientsLikeMeInMotion™ experiences
PatientsLikeMeInMotion™ is a way to celebrate our three star members (super health data donors) and sponsor them at events so that they can raise awareness for their condition. If you’re passionate about advocacy and you’re participating in a walk, run or other fundraiser on behalf of your condition, learn more and sign up right here. … Continue reading MS members share about their PatientsLikeMeInMotion™ experiences
Today’s Photo: 2012 Ride for Dads in Minnesota
Earlier this month, we shared a video interview with PatientsLikeMe member Wayne Sticha, who founded the Ride for Dads in 2010 to raise awareness of prostate cancer. Since September is National Prostate Cancer Awareness Month, we wanted to close out the month by sharing one of Wayne’s photos from 2012 Ride for Dads, which involved… Continue reading Today’s Photo: 2012 Ride for Dads in Minnesota
Today’s Photo: Raising Epilepsy Awareness on the National Mall
Summer is here, and that means there are disease-related walk/run events happening all around the country! For inspiration, please meet epilepsy patient Monica (second from right), who led a PatientsLikeMeInMotion-sponsored team at the National Walk for Epilepsy in Washington, DC. Held on March 31, 2012, the two-mile walk occurred between Madison and Jefferson Drives on… Continue reading Today’s Photo: Raising Epilepsy Awareness on the National Mall
Today’s Photo: Mama in Motion
Please meet multiple sclerosis (MS) patient hotmama08, who led a PatientsLikeMeInMotion-sponsored team that included two four-legged advocates at Walk MS in Columbia, SC, on May 14, 2011. We especially love how the team member to the right wore bright blue shoes to match her PatientsLikeMeInMotion t-shirt! Congrats to hotmama08 and all of our PatientsLikeMeInMotion-sponsored teams… Continue reading Today’s Photo: Mama in Motion