Navigating Life with Fibromyalgia: The Power of Energy Pacing

Living with fibromyalgia or other conditions that cause extreme fatigue can be challenging, especially when everyday activities leave you feeling drained. The frustration of not having the same energy levels as before can be disheartening. However, incorporating energy pacing into your daily life may offer a valuable strategy for managing and coping with chronic fatigue.… Continue reading Navigating Life with Fibromyalgia: The Power of Energy Pacing

What are the Common Symptoms of Chronic Kidney Disease?

Chronic Kidney Disease, often abbreviated as CKD, is a progressive medical condition characterized by the gradual deterioration of kidney function over time. The kidneys play a vital role in filtering waste products and excess fluids from the blood, maintaining the body’s electrolyte balance, and regulating blood pressure. As CKD progresses, various symptoms can emerge, reflecting… Continue reading What are the Common Symptoms of Chronic Kidney Disease?

What are the Early Signs and Symptoms of MS? 

MS, or Multiple Sclerosis, is a chronic disease of the central nervous system. Thought to be an autoimmune disorder, this condition is unpredictable, and affects people differently. MS destroys the tissue surrounding and protecting nerves. As a result, the affected nerves cannot send signals to or from the brain. Some people may only have mild… Continue reading What are the Early Signs and Symptoms of MS? 

3 energy-saving tips for people with lupus

Fatigue can be a big deal when you have lupus. About 43 percent of PatientsLikeMe members with systemic lupus erythematosus (SLE) who are tracking fatigue as a symptom say that it’s “severe.” A rough day can feel like “walking through knee-deep water,” notes one member. Here’s a roundup of energy-saving tips from a few different… Continue reading 3 energy-saving tips for people with lupus

Coming together for immunological and neurological health in May

If you follow PatientsLikeMe on social media, you might have seen a few “Pop Quiz Tuesday” posts. Today, here’s a special pop quiz – what do fibromyalgia, myalgic encephalomyelitis (ME) and chronic fatigue syndrome (CFS) have in common? The answer is that they are classified as Chronic Immunological and Neurological Diseases (CINDs). And since 1992,… Continue reading Coming together for immunological and neurological health in May

Seeing [MS]: The invisible symptoms – fatigue

“It’s like I’m deflated. I don’t feel like doing anything.” That’s how Darcy McCann says he feels on most days. He’s a young Australian who was diagnosed with multiple sclerosis [MS] at the age of 10, and his most debilitating symptom is fatigue, which comes and goes as a result of his nerves being constantly… Continue reading Seeing [MS]: The invisible symptoms – fatigue

Turning blue for Myalgic Encephalomyelitis Awareness

Did you know that today is International Awareness Day for Chronic Immunological and Neurological Diseases (CINDs)? CINDs include fibromyalgia, Gulf War Syndrome, Multiple Chemical Sensitivities, Lyme disease and Myalgic Encephalomyelitis (also know as Chronic Fatigue Syndrome or ME/CFS). ME/CFS is tough to diagnose because there are no tests for it, and other conditions can cause very similar… Continue reading Turning blue for Myalgic Encephalomyelitis Awareness

Someone Like Me

We are pleased to present a guest post by PatientsLikeMe member Jasmine (Jazz1982), who was diagnosed with multiple sclerosis (MS) in her mid-twenties.  Don’t miss this beautiful essay about the commonalities between all patients who have lost functionality – regardless of how different their conditions might seem. I recently met someone that happened to be just like… Continue reading Someone Like Me

What Do You Know About Multiple Sclerosis?

March is National MS Education and Awareness Month (NMEAM), an initiative of the Multiple Sclerosis Foundation (MSF) to raise awareness for this chronic neurological disease affecting the brain, spinal cord and optic nerves. This year’s theme is “At Your Best with MS,” encouraging the more than 2.5 million people with MS worldwide to seek the… Continue reading What Do You Know About Multiple Sclerosis?

Coping with Holiday Stress and Blues

It’s the most wonderful time of the year.  Or is it? The holidays can be a time of merriment and joy marked by festive parties and family reunions.  But they can also be quite challenging. Despite the great cheer advertised everywhere you look, some people find themselves struggling with stress, anxiety, loneliness and/or depression.  This… Continue reading Coping with Holiday Stress and Blues