What kinds of complementary treatments can help people with Parkinson’s disease (PD)? PatientsLikeMe blog partner Karl Robb recently shared with us about his complementary therapies of choice: Reiki and Qigong. Karl has been living with young-onset PD for more than 30 years and practicing Reiki for nearly 20 years. He and his wife, Angela, are… Continue reading Practicing Reiki and Qigong with Parkinson’s disease: Karl Robb shares the benefits of these complementary therapies
Tag: guest post
Team of Advisors member Laura takes over the PatientsLikeMe Instagram for World Mental Health Day
In honor of World Mental Health Day, we asked PatientsLikeMe member Laura (thisdiva99) to take over our Instagram feed for the day. Laura is a professional opera singer, Massachusetts native, a member of the PatientslikeMe Team of Advisors, and is living with bipolar disorder. She gave us a glimpse into a day in her life, Check… Continue reading Team of Advisors member Laura takes over the PatientsLikeMe Instagram for World Mental Health Day
“It started tearing me down early”: Illustrator and writer Howie Noel shares about his upcoming graphic memoir on life with generalized anxiety disorder
Today is World Mental Health day, a day for education, awareness and advocacy, and that’s where Howie Noel’s story comes in. There are more than 30,000 members living with Generalized Anxiety Disorder on PatientsLikeMe, and it’s for people like these, people like him, that Noel wrote his semi-autobiographic illustrated memoir, Float. We recently sat down with him to talk… Continue reading “It started tearing me down early”: Illustrator and writer Howie Noel shares about his upcoming graphic memoir on life with generalized anxiety disorder
From “What happened to you?” to “You’re so inspirational”: 5 ways Anne navigates stigma as a wheelchair user
Member Anne Thomas (AnneBT), a civil rights attorney turned professional storyteller, has shared her stories with everyone from elementary schoolers and medical students to corporate leaders and World Bank officials. Anne sustained a spinal cord injury in a car accident at age 18. Her wheelchair is often the first thing people notice about her, so… Continue reading From “What happened to you?” to “You’re so inspirational”: 5 ways Anne navigates stigma as a wheelchair user
Attending Partnering with Patients…as a Patient
Last Friday we heard from PatientsLikeMe Head of Community Liz Morgan about her experiences at the Institute of Medicine’s Partnering with Patients workshop. Today we hear from multiple sclerosis (MS) patient Laura Phillips, a PatientsLikeMe member who spoke at the event. As a speaker at the workshop, Sally Okun, PatientsLikeMe’s Health Data Integrity & Patient Safety Director,… Continue reading Attending Partnering with Patients…as a Patient