“It’s only when you really get into the experience of being a patient with a life-changing illness, where you’re dealing with the uncertainty and the process, that you start to learn things. You start to learn that the experience you’re going through – the pain you’re suffering, or maybe a side effect or something that… Continue reading Patients as Partners in Personalized Medicine
Tag: jamie heywood
Quote of the Day: Jamie Heywood
“People often think of PatientsLikeMe as a social network, and I think what they miss is the fundamental part of our invention. What we’re really building is the first medical record designed to answer questions directly for patients. Not to do billing, not to do some other component of the healthcare system. To actually answer questions for patients. Paul Wicks,… Continue reading Quote of the Day: Jamie Heywood
The Future of the Personal Genome
“If you want to understand health, you have to understand what it means to be sick, at phenomic and molecular levels, so you can correct it in a holistic and effective way.” – Jamie Heywood In February, PatientsLikeMe Co-Founder and Chairman Jamie Heywood was invited to participate in a “Innovation Series” panel sponsored by the… Continue reading The Future of the Personal Genome
Jamie Heywood Is One of Hacking Work’s 100 Great Disruptive Heroes
How do you define a disruptive hero? Here is Hacking Work’s three-pronged filter: Disruptive because they are proving conventional wisdom wrong. Heroes because they are changing the rules of the game, for the better. Great because they helped to change us all for the better. Given these demanding criteria, we are pleased to announce that… Continue reading Jamie Heywood Is One of Hacking Work’s 100 Great Disruptive Heroes
Meet ALS “Treat Us Now” Steering Committee Member Tom Murphy
You may remember our interview with ALS advocate Debra Quinn from last fall. Today, we’d like to introduce you to another ALS patient activist in our midst: Tom Murphy, a PatientsLikeMe member since January 2011. As part of the ALS Treat Us Now nonprofit group, Tom and several other ALS patients around the country have… Continue reading Meet ALS “Treat Us Now” Steering Committee Member Tom Murphy
The Personalized Medicine World Conference in Photos and Tweets
Last week, PatientsLikeMe Co-Founder Jamie Heywood had the honor of speaking at the Personalized Medicine World Conference (PMWC), a two-day event held at the Computer History Museum in Silicon Valley. His presentation was entitled “Patient Driven Convergence of Clinical Discovery and Care.” In recognition of the conference’s venue as well as the role that technology… Continue reading The Personalized Medicine World Conference in Photos and Tweets
Holidays Wishes from PatientsLikeMe to You
The holidays are a time for thinking about everything you hope and wish for in the coming year. They’re also a time for appreciating everything you already have. As our season’s greetings to you, we wanted to share a wish expressed by each member of our management team. “I wish for every patient and family… Continue reading Holidays Wishes from PatientsLikeMe to You
PATIENTSLIKEME AND R.A.R.E PROJECT UNITE TO FIND AND CONNECT ONE MILLION RARE DISEASE PATIENTS
FOR IMMEDIATE RELEASE Nonprofit and “Not Just for Profit” Announce Collaboration at PartneringForCures Event NEW YORK, NY – November 7, 2011 – Today, PatientsLikeMe and R.A.R.E Project, a nonprofit advocacy and support group for patients with all rare diseases, announce a new partnership to find and connect 1 million rare disease patients to share and… Continue reading PATIENTSLIKEME AND R.A.R.E PROJECT UNITE TO FIND AND CONNECT ONE MILLION RARE DISEASE PATIENTS
“A White Coat Affair”: A Wonderful Evening Celebrating ALS TDI
Last night, the PatientsLikeMe team came together for a great cause: the “White Coat Affair” gala benefit in support of the ALS Therapy Development Institute (ALS TDI). Founded by PatientsLikeMe Co-Founder and Chairman Jamie Heywood in 1999, ALS TDI is the world’s most advanced research laboratory dedicated to ALS. Held the night before the institute’s… Continue reading “A White Coat Affair”: A Wonderful Evening Celebrating ALS TDI
H@cking Medicine: Open Up!
This weekend, MIT is hosting the first H@cking Medicine conference and PatientsLikeMe is proud to be a sponsor. The hacking encouraged here isn’t malicious, rather, it refers to a passionate subculture of computer programmers who believe in sharing, openness, and innovation (among other things). Those are three concepts near and dear to us here at… Continue reading H@cking Medicine: Open Up!