Social media users say ‘yes’ to sharing health data

There are some new survey results that just came out from the Institute of Medicine’s Evidence Communication Innovation Collaborative (ECIC) that show social media users give the stamp of approval to sharing health data. (A big, public shout out to the more than 2,000 PatientsLikeMe members who participated in the survey.) It’s very exciting to… Continue reading Social media users say ‘yes’ to sharing health data

A day in the life of Social Media Specialist Jesse Smith

Our members give us a glimpse of their personal lives every single day when they share through their PatientsLikeMe profiles, and as the days tick down until Thanksgiving and Christmas, we’re getting into the holiday spirit by sharing a little about ourselves with you. Jesse Smith is the Social Media Specialist on the marketing team… Continue reading A day in the life of Social Media Specialist Jesse Smith

Media Roundup: PatientsLikeMe in the News

PatientsLikeMe was recently highlighted in three national media outlets: CBS News, BNET and The Washington Post. See below for an excerpt of what each said about us. CBS News Health 2.0? 7 apps and sites that may save your life. “With information on more than 500 conditions, the crowdsourced research site [PatientsLikeMe] provides treatment and… Continue reading Media Roundup: PatientsLikeMe in the News

PatientsLikeMe Refutes Published Clinical Trial

Congratulations to our R&D team here at PatientsLikeMe for its most recent paper published in Nature Biotechnology (“Accelerated clinical discovery using self-reported patient data collected online and a patient-matching algorithm”).  The full paper has been made available by Nature so you can read the results and access all of the supplemental data and figures. Below are… Continue reading PatientsLikeMe Refutes Published Clinical Trial

The Patient Voice Heard Loud and Clear at AHCJ ’11

Last week, we had the opportunity to be a part of the Association of Health Care Journalists (AHCJ) annual conference in Philadelphia, PA.  Carla Johnson, medical writer for the Associated Press, invited PatientsLikeMe to be part of her session entitled “Tapping into the e-patient phenomenon.”  It was a great opportunity for us to help healthcare… Continue reading The Patient Voice Heard Loud and Clear at AHCJ ’11

PatientsLikeMe Calls All Patients With Any Condition to Join

Today, PatientsLikeMe announces its expansion in the following news release. (You can click on the image on the right to see a visualization of real-time profile views on PatientsLikeMe.) ***** CAMBRIDGE, MA–(Marketwire – April 11, 2011) – Today, PatientsLikeMe (www.patientslikeme.com) announces the expansion of its platform and invites patients with any condition to join. The five-year-old… Continue reading PatientsLikeMe Calls All Patients With Any Condition to Join

Tell The World: A PatientsLikeMe Year in Review (Part V – Marketing)

With every new member at PatientsLikeMe, there is more data generated for research, more dialogue about individual experiences, and a more expansive support network.  Additionally, with more patients we can become the world’s largest and loudest representative of the patient voice.  To that end, our job in marketing is to share your stories and tell… Continue reading Tell The World: A PatientsLikeMe Year in Review (Part V – Marketing)

Who’s #2 in Healthcare Innovation?
You guessed it – PatientsLikeMe

It’s been an exciting few months for PatientsLikeMe.  Here’s a quick recap… Today, Fast Company released its annual  ranking of the 50 Most Innovative Companies in the World.  PatientsLikeMe made #23 on the list alongside big league companies like Facebook, Disney, Novartis and Amazon.  PatientsLikeMe was also named the second most innovative company in healthcare,… Continue reading Who’s #2 in Healthcare Innovation?
You guessed it – PatientsLikeMe

Interview with Thomas Goetz
(author of The Decision Tree)

In March 2008, a story by Thomas Goetz appeared in the New York Times magazine about PatientsLikeMe (“Practicing Patients”). Thomas has now expanded on that reporting with a new book, The Decision Tree, that explores how new tools like PatientsLikeMe can help individuals engage in their health and make better, more informed choices. We asked… Continue reading Interview with Thomas Goetz
(author of The Decision Tree)

A Year in Review: PatientsLikeMe in 2009

As 2009 comes to an end, we want to take this opportunity to thank all of our members, partners and general fans for another great year.   Here’s a recap of some of the exciting happenings at PatientsLikeMe these past 12 months.  Wishing you all a Happy New Year! Community Milestones This year, the 15+ disease… Continue reading A Year in Review: PatientsLikeMe in 2009