Back in March, we shared some of our infographics and videos on the blog, and as part of our #dataforgood initiative, PatientsLikeMe member Ed spoke about his experiences with Parkinson’s disease and why he thinks it’s all a group effort. Click above to watch his video, and keep an eye out for more interviews with… Continue reading The Patient Voice- Parkinson’s member Ed shares his story
Tag: Parkinson’s Disease
“I would just like to understand the ‘why’” – a conversation with PD community member dropsies
Right at the start of April, you might have seen us post on the blog that it’s Parkinson’s (PD) Awareness Month. And to keep Parkinson’s awareness going strong all month long, we’re sharing a recent interview with PatientsLikeMe member Betty – aka dropsies to those in the community. She was diagnosed with Parkinson’s back in… Continue reading “I would just like to understand the ‘why’” – a conversation with PD community member dropsies
Making a difference for Parkinson’s disease in April
After getting diagnosed with Parkinson’s disease (PD), PatientsLikeMe member Ed recalled “I needed to talk to people who had the disease, because only they knew what it was like…and could help me get through that initial shock… we can do much better fighting the disease as a group than we can as individuals.” And… Continue reading Making a difference for Parkinson’s disease in April
PatientsLikeMe and Sage Bionetworks launch open science study for people with Parkinson’s Disease
Companies Partner With TED Fellow Dr. Max Little to Map the Severity of the Disease CAMBRIDGE, Mass.— February 5, 2014—PatientsLikeMe and the nonprofit research organization Sage Bionetworks announced today the launch of a new crowdsourced study to develop voice analysis tools that both researchers and people with Parkinson’s disease (PD) can use to track PD… Continue reading PatientsLikeMe and Sage Bionetworks launch open science study for people with Parkinson’s Disease
Spotlighted Author: Parkinson’s Humorist Bev Ribaudo on Dispensing Laughter
PatientsLikeMe member Bev Ribaudo (“YumaBev”) was diagnosed with Parkinson’s disease (PD) at age 47, but it hasn’t dampened her flair for comedy. “Humor comes naturally to me, and a little disease like Parkinson’s can’t take it away,” she says. In fact, her condition has given her a new purpose: entertaining other “Parkies” with her deep… Continue reading Spotlighted Author: Parkinson’s Humorist Bev Ribaudo on Dispensing Laughter
Life with Parkinson’s Disease: What We’ve Learned
On Tuesday, our interview with blogger Steve Ploussard of “Attitude & Fitness Wins” revealed how one person is managing his Parkinson’s disease (PD). Today we take a closer look at this progressive neurological condition using the data and experiences shared by our 5,920 PD members. Taking a look at the makeup of our PD community,… Continue reading Life with Parkinson’s Disease: What We’ve Learned
Spotlighted Blogger: Parkinson’s Patient Steve Ploussard of “Attitude & Fitness Wins”
Last week we kicked off a new blog series featuring patient bloggers, and today, we’re pleased to present our second installment. Please meet Steve Ploussard, a longtime PatientsLikeMe member who writes a blog about living with Parkinson’s disease (PD) called “Attitude & Fitness Wins.” Steve decided that blogging was the perfect way to “come out”… Continue reading Spotlighted Blogger: Parkinson’s Patient Steve Ploussard of “Attitude & Fitness Wins”
Canine Caretakers: How Service Dogs Can Help Many Types of Patients
Now that PatientsLikeMe is open to any patient with any condition, we’ve noticed more patients with different conditions sharing similar lifestyle modifications. One example is the use of a service dog. What are the benefits – both expected and unexpected – of a four-legged assistant? We asked some of our members to talk about their… Continue reading Canine Caretakers: How Service Dogs Can Help Many Types of Patients
The Choices Patients Like You – and Like My Mother – Face
Patients like you with life-changing conditions have to make choices every day, just like anyone else. These choices, however, typically have more at stake than how to RSVP to a party or even whether to walk away from an “underwater” home. For patients like you, your lives may be at stake. I have watched my… Continue reading The Choices Patients Like You – and Like My Mother – Face
Share and Compare: A PatientsLikeMe Year in Review (Part III – more R&D)
The research team is very proud of how our team has grown in 2010 and the impact we’ve made in the academic community. In 2010 alone, PatientsLikeMe and our work were mentioned in scientific literature more than 133 times. All of this is because of what you share with us. Yesterday, we highlighted some of… Continue reading Share and Compare: A PatientsLikeMe Year in Review (Part III – more R&D)