PatientsLikeMe member Bev Ribaudo (“YumaBev”) was diagnosed with Parkinson’s disease (PD) at age 47, but it hasn’t dampened her flair for comedy. “Humor comes naturally to me, and a little disease like Parkinson’s can’t take it away,” she says. In fact, her condition has given her a new purpose: entertaining other “Parkies” with her deep… Continue reading Spotlighted Author: Parkinson’s Humorist Bev Ribaudo on Dispensing Laughter
Tag: Parkinson’s Disease
Life with Parkinson’s Disease: What We’ve Learned
On Tuesday, our interview with blogger Steve Ploussard of “Attitude & Fitness Wins” revealed how one person is managing his Parkinson’s disease (PD). Today we take a closer look at this progressive neurological condition using the data and experiences shared by our 5,920 PD members. Taking a look at the makeup of our PD community,… Continue reading Life with Parkinson’s Disease: What We’ve Learned
Spotlighted Blogger: Parkinson’s Patient Steve Ploussard of “Attitude & Fitness Wins”
Last week we kicked off a new blog series featuring patient bloggers, and today, we’re pleased to present our second installment. Please meet Steve Ploussard, a longtime PatientsLikeMe member who writes a blog about living with Parkinson’s disease (PD) called “Attitude & Fitness Wins.” Steve decided that blogging was the perfect way to “come out”… Continue reading Spotlighted Blogger: Parkinson’s Patient Steve Ploussard of “Attitude & Fitness Wins”
Today’s Photo: Uniting for Parkinson’s
Please meet Parkinson’s disease (PD) patient Judith, who led a PatientsLikeMeInMotion-sponsored team at the Parkinson’s Unity Walk in New York City last April. Held annually in Central Park, this massive grassroots event donates 100% of funds raised to PD research. Congrats to Judith and all of our PatientsLikeMeInMotion-sponsored teams for your efforts to raise funds… Continue reading Today’s Photo: Uniting for Parkinson’s
Canine Caretakers: How Service Dogs Can Help Many Types of Patients
Now that PatientsLikeMe is open to any patient with any condition, we’ve noticed more patients with different conditions sharing similar lifestyle modifications. One example is the use of a service dog. What are the benefits – both expected and unexpected – of a four-legged assistant? We asked some of our members to talk about their… Continue reading Canine Caretakers: How Service Dogs Can Help Many Types of Patients
The Choices Patients Like You – and Like My Mother – Face
Patients like you with life-changing conditions have to make choices every day, just like anyone else. These choices, however, typically have more at stake than how to RSVP to a party or even whether to walk away from an “underwater” home. For patients like you, your lives may be at stake. I have watched my… Continue reading The Choices Patients Like You – and Like My Mother – Face
The Patient Voice: Exploring New Chapters
We’ve got more of the patient voice taking us into the weekend. Today we have an interview with AlwaysLearning, a 3-star member of our Parkinson’s Disease Community. We caught up with AlwaysLearning at the 2010 Parkinson’s Disease Unity Walk last spring. She shared with us how she learned about her diagnosis and some of the… Continue reading The Patient Voice: Exploring New Chapters
Share and Compare: A PatientsLikeMe Year in Review (Part III – more R&D)
The research team is very proud of how our team has grown in 2010 and the impact we’ve made in the academic community. In 2010 alone, PatientsLikeMe and our work were mentioned in scientific literature more than 133 times. All of this is because of what you share with us. Yesterday, we highlighted some of… Continue reading Share and Compare: A PatientsLikeMe Year in Review (Part III – more R&D)
Overcoming Obstacles – Newsletter Highlight 2010
Last week, we posted highlights from our December community newsletter interviews. As we close out 2010, we want to spotlight another question asked this month – one that is relative to all members, all patients (no matter the condition). What obstacles have you faced and overcome this year? * * * (Amy) What obstacles have… Continue reading Overcoming Obstacles – Newsletter Highlight 2010
Sharing and Learning with PatientsLikeMe
In December community newsletters (launched earlier this week), we asked some of our members to think about what they’ve shared and compared in 2010. Below are highlighted answers from each interviewee across all nine community newsletters. Thank you for your contributions. We also want to thank all of you who have contributed to the 90… Continue reading Sharing and Learning with PatientsLikeMe