A few weeks ago, Amy shared about living with a rare genetic disease in her Team of Advisors introduction post. Today, it’s Steve’s turn to share about his unique perspective as a scientist who has been diagnosed with ALS. Below, learn about Steve’s experience with ALS research, his views on patient centeredness and what being… Continue reading Getting to know our Team of Advisors – Steve
Tag: PatientsLikeMe
Arthritis Awareness 101
You may have heard that arthritis affects the joints, but did you know that it’s an umbrella term used to describe over 100 medical conditions and diseases (known as rheumatic diseases)?1 Conditions that fall underneath forms of “arthritis” include rheumatoid arthritis, gout, lupus, and fibromyalgia. And the symptoms can vary depending on the type of arthritis and the person… Continue reading Arthritis Awareness 101
PatientsLikeMe and Partners HealthCare Collaborate to Improve Patient Outcomes
CAMBRIDGE, MA., May 26, 2015 – PatientsLikeMe and Partners HealthCare announced today that they are working together to give Partners HealthCare patients access to tools and information that can help improve decision making with their clinical teams and enhance health outcomes. PatientsLikeMe Executive Vice President of Marketing and Patient Advocacy Michael Evers said the agreement… Continue reading PatientsLikeMe and Partners HealthCare Collaborate to Improve Patient Outcomes
“In my own words” – PatientsLikeMe member Edward shares about living with schizoaffective disorder
Meet Edward, a member of the PatientsLikeMe mental health community. He’s been living with schizoaffective disorder since the late 1970s, and over the past 35 years, he’s experienced many symptoms, everything from paranoia and euphoria to insomnia and deep depression. Below, he uses his own words to take you on a journey through his life… Continue reading “In my own words” – PatientsLikeMe member Edward shares about living with schizoaffective disorder
Schizophrenia: Living well and working towards a cure
Today marks the start of Schizophrenia Awareness Week, and what better way to begin than with the story of an inspiring woman who is living with schizophrenia and advocating for better treatments. Dr. Elyn Saks was diagnosed with schizophrenia as a college student. At first she struggled with her diagnosis, and it took a while… Continue reading Schizophrenia: Living well and working towards a cure
PatientsLikeMe Appoints Jason Johnson Executive Vice President and Head of R&D
CAMBRIDGE, MA, May 18, 2015—PatientsLikeMe today announced it has appointed Jason Johnson, PhD, as Executive Vice President and head of research and development (R&D). Johnson leads the company’s research, data science, and informatics teams, which focus on analyzing and merging patient-reported and other data types to develop models of disease progression and generate new insights… Continue reading PatientsLikeMe Appoints Jason Johnson Executive Vice President and Head of R&D
Putting on purple for lupus awareness
If you’ve got something purple to wear, today’s your day – the Lupus Foundation of America (LFA) is encouraging everyone to “Put on Purple” to help raise awareness for lupus. Lupus is an autoimmune disorder that affects millions of people worldwide, and the majority of these patients are women. Common symptoms include extreme fatigue, swollen… Continue reading Putting on purple for lupus awareness
Getting to know our Team of Advisors – Amy
We’re been introducing the PatientsLikeMe Team of Advisors on the blog over the past 6 months, and today, we’re happy to announce Amy, a member living with a rare genetic disease called Fabry. Below, she shares about the importance of being aware of patients as individuals, and how she’s learned to live (and thrive!) with… Continue reading Getting to know our Team of Advisors – Amy
Coming together for immunological and neurological health in May
If you follow PatientsLikeMe on social media, you might have seen a few “Pop Quiz Tuesday” posts. Today, here’s a special pop quiz – what do fibromyalgia, myalgic encephalomyelitis (ME) and chronic fatigue syndrome (CFS) have in common? The answer is that they are classified as Chronic Immunological and Neurological Diseases (CINDs). And since 1992,… Continue reading Coming together for immunological and neurological health in May
PatientsLikeMeInMotion™ 2015: Celebrating 7 years of PatientsLikeMe members giving back to their communities and raising awareness
For those of you who don’t know, our PatientsLikeMeInMotion™ program has been running since 2009—how time flies! Join us in celebrating our 7th year with a recap of 2014, our biggest year so far! Last year, we had the honor of supporting 2192 members across 32 states that participated in a range of events and… Continue reading PatientsLikeMeInMotion™ 2015: Celebrating 7 years of PatientsLikeMe members giving back to their communities and raising awareness