7.5 million Americans and 125 million people worldwide are living with psoriasis. Some factors can make the summer months challenging for people with psoriasis, including dry air conditioning, increased sweating, and feeling self-conscious about exposing your skin. However, it is not all bad news – the summer also provides a few surprising ways to improve your… Continue reading The Surprising Benefits of Summer for Your Psoriasis
Tag: psoriasis
“Listen to yourself.” Member Daniela opens up about life with MS and psoriasis
Daniela (DanielaO) is living with multiple sclerosis and psoriasis in Puglia, Italy, and loves crafts, art history, music and traveling. She recently opened up to us about getting her first diagnosis at age 14, managing multiple conditions, and how connecting with others on PatientsLikeMe makes her feel “present and part of a whole.” Here’s what… Continue reading “Listen to yourself.” Member Daniela opens up about life with MS and psoriasis
“I really felt that we were heard” — PatientsLikeMe staff member Dan shares his experience at the FDA psoriasis conference
August is Psoriasis Awareness Month, and we’re kicking things off with a recap from the FDA’s public meeting on psoriasis back in March. The meeting was part of their Patient-Focused Drug Development Series that aims to bring the patient voice to research. Sally Okun, Vice President for Advocacy, Policy and Patient Safety at PatientsLikeMe notes that, “The… Continue reading “I really felt that we were heard” — PatientsLikeMe staff member Dan shares his experience at the FDA psoriasis conference
Uncovering psoriasis with patients like you
This is it, the last report in our 5-part series of seasonal surveys focused on uncovering the experiences our psoriasis members. Like the seasons before it, this summer more than 300 psoriasis community members added their voices to research to help everyone understand what it’s like to live with the condition. Thanks to everyone who… Continue reading Uncovering psoriasis with patients like you
“The real me” An interview with psoriasis patient and PatientsLikeMe member Maria
Here at PatientsLikeMe, we’re continuing to talk with people who are sharing their health experiences to help raise awareness about their conditions and change medicine for good. For our latest interview, we spoke with Maria who has been living with psoriasis since age 14. Some of you may know her on PatientsLikeMe as pinkdragonrider. She… Continue reading “The real me” An interview with psoriasis patient and PatientsLikeMe member Maria
“I still haven’t given up hope.” An interview with psoriasis and psoriatic arthritis patient David
Say ‘hi’ to David. Some of you may know him on PatientsLikeMe as db.09. He developed his first visible symptom of psoriasis at the very young age of 3. Now 22, he’s sharing his personal journey with this highly stigmatized autoimmune condition, along with psoriatic arthritis and Chron’s. See how his conditions have actually given… Continue reading “I still haven’t given up hope.” An interview with psoriasis and psoriatic arthritis patient David
Finding Peace, Confidence and Lifelong Friends: An Interview with Psoriasis Patient Erica
Of all the psoriasis patients we’ve interviewed, Erica was hit by this highly stigmatized autoimmune condition the earliest – she developed visible symptoms at the tender age of 9. Now 21, she shares her decade-plus journey from being the girl that people avoided in school to an increasingly confident young woman who has finally started… Continue reading Finding Peace, Confidence and Lifelong Friends: An Interview with Psoriasis Patient Erica
Psoriasis and Bullying
Teasing.Physical violence.Staring.Social isolation.Name-calling. Many of our members with psoriasis, a chronic autoimmune condition that can produce red, scaly patches and other skin symptoms, report experiencing various forms of bullying while growing up. One relays the story of a teacher who repeatedly sent her to the nurse’s office, assuming that she had a contagious condition. Another… Continue reading Psoriasis and Bullying
Taking Psoriasis Treatment to the Next Level: An Interview with Dermatologist Dr. Jerry Bagel
A nationally recognized psoriasis expert, Dr. Jerry Bagel, MD, has been an investigator on more than 45 clinical trials seeking new treatments for psoriasis and other skin conditions. In addition to treating patients at his private dermatology practice in East Windsor, New Jersey, Dr. Bagel serves as Senior Attending Physician at the Princeton University Medical… Continue reading Taking Psoriasis Treatment to the Next Level: An Interview with Dermatologist Dr. Jerry Bagel
Psoriasis, Adherence and More: An Interview with Dermatologist Dr. Steve Feldman
Dr. Steve Feldman, MD, PhD, is Professor of Dermatology, Pathology & Public Health Sciences at the Wake Forest University School of Medicine. The author of more than 500 peer-reviewed medical articles, Dr. Feldman is well-known for his research studies focused on patients’ adherence to topical treatments as well as for founding www.DrScore.com, an online doctor… Continue reading Psoriasis, Adherence and More: An Interview with Dermatologist Dr. Steve Feldman