Multiple Sclerosis (MS) is a complex neurological condition that affects millions of people worldwide, causing a range of symptoms that can significantly impact daily life. The question on many minds is whether MS can be cured, or if there’s hope for managing the condition effectively. In this article, we’ll explore the current state of MS… Continue reading Is There a Cure for MS?
Tag: Research
Is Multiple Sclerosis Treatable if Caught Early?
Multiple Sclerosis (MS) is a complex and often debilitating autoimmune disease that affects the central nervous system. Before delving into early detection and treatment, it’s crucial to have a clear understanding of what Multiple Sclerosis is. MS is a chronic and unpredictable disease of the central nervous system, which comprises the brain and spinal cord.… Continue reading Is Multiple Sclerosis Treatable if Caught Early?
Tips for Your Physical (and Mental) Health Post-Transplant
By: Alicia McAuliffe-Fogarty, Ph.D., Vice President of Research and Client Success at PatientsLikeMe Transplant surgeries have come a long way over the years, but unfortunately, there are still many risks involved with these life-saving procedures. It is normal for patients and family members to feel a range of emotions during the transplant journey – from… Continue reading Tips for Your Physical (and Mental) Health Post-Transplant
Genomics & Medicine: Your Questions Answered!
Recently, PatientsLikeMe’s Associate Director of Community Management, Brad Hornback, sat down with Dr. Eric Topol (Founder & Director at Scripps Research Translational Institute) and Christine Von Raesefeld (Patient Advocate) to discuss the topic of genomics and medicine, including how genomic data can affect the healthcare journey and how individuals may receive their own DNA results… Continue reading Genomics & Medicine: Your Questions Answered!
It’s Clinical Trials Day, and patients are driving change
Today is Clinical Trials Day – celebrated to bring more attention to public health and also to recognize the contribution of the patients and healthcare professionals who make clinical research possible. At PatientsLikeMe, it’s members who are changing the way clinical trials are designed. Bringing the patient voice to clinical trials has long been part… Continue reading It’s Clinical Trials Day, and patients are driving change
ALS Reversal: A chat with Duke’s Dr. Rick Bedlack
“This is the fastest enrolling trial in ALS history.” A brightly-colored blazer and the determination to make a difference for ALS patients are two of Dr. Rick Bedlack’s defining characteristics. Dr. Bedlack is a tenured associate professor of Medicine/Neurology at Duke University. He’s also the director of the Duke ALS Clinic that’s partnering with… Continue reading ALS Reversal: A chat with Duke’s Dr. Rick Bedlack
Largest Patient Poll on ACA Shows Patients Value Health Care Law More Than the General Population, Are Less Inclined to Want a Repeal
Lowering Costs, Coverage for Pre-existing Conditions Remain Top Priorities; If Changes Are Required, Individual Mandate Should Go CAMBRIDGE, Mass., February 7, 2017—As Congress and the White House continue to discuss potential changes to the Affordable Care Act (ACA), PatientsLikeMe revealed results from the first large-scale poll to assess patient priorities for the health care… Continue reading Largest Patient Poll on ACA Shows Patients Value Health Care Law More Than the General Population, Are Less Inclined to Want a Repeal
A PatientsLikeMe researcher’s take on the opioid crisis and new prescribing regulations
Meet Emily (EmilyMcNaughton), a PatientsLikeMe researcher with more than ten years of experience in both the private and public sector. She’s here to weigh in on the recent Boston Globe article addressing the aftermath of the opioid crisis. New prescribing regulations have some doctors hesitant to prescribe these drugs, but that could prove more harmful… Continue reading A PatientsLikeMe researcher’s take on the opioid crisis and new prescribing regulations
PatientsLikeMe Launches Virtual Trial for ALS Patients
Study With Major Academic Medical Center to Evaluate the Potential of the Soy Peptide Lunasin to Reverse ALS Symptoms DURHAM, N.C., October 25, 2016—PatientsLikeMe and The Duke ALS Clinic have just completed enrollment in a virtual trial designed to test whether Lunasin, a peptide found in soy and some cereal grains, is helpful or harmful… Continue reading PatientsLikeMe Launches Virtual Trial for ALS Patients
PatientsLikeMe Names Marni Hall Senior Vice President
Former Director within the FDA to Spearhead Company’s Research and Policy Initiatives CAMBRIDGE, Mass., July 11, 2016—PatientsLikeMe announced today it has appointed Marni Hall, PhD, MPH, as its new Senior Vice President of Research and Policy. A distinguished research scientist and public policy expert, Hall will develop and direct the strategies and teams focused on… Continue reading PatientsLikeMe Names Marni Hall Senior Vice President