Multiple Sclerosis (MS) is a complex neurological condition that affects millions of people worldwide, causing a range of symptoms that can significantly impact daily life. The question on many minds is whether MS can be cured, or if there’s hope for managing the condition effectively. In this article, we’ll explore the current state of MS… Continue reading Is There a Cure for MS?
Tag: Research
Is Multiple Sclerosis Treatable if Caught Early?
Multiple Sclerosis (MS) is a complex and often debilitating autoimmune disease that affects the central nervous system. Before delving into early detection and treatment, it’s crucial to have a clear understanding of what Multiple Sclerosis is. MS is a chronic and unpredictable disease of the central nervous system, which comprises the brain and spinal cord.… Continue reading Is Multiple Sclerosis Treatable if Caught Early?
Tips for Your Physical (and Mental) Health Post-Transplant
By: Alicia McAuliffe-Fogarty, Ph.D., Vice President of Research and Client Success at PatientsLikeMe Transplant surgeries have come a long way over the years, but unfortunately, there are still many risks involved with these life-saving procedures. It is normal for patients and family members to feel a range of emotions during the transplant journey – from… Continue reading Tips for Your Physical (and Mental) Health Post-Transplant
Genomics & Medicine: Your Questions Answered!
Recently, PatientsLikeMe’s Associate Director of Community Management, Brad Hornback, sat down with Dr. Eric Topol (Founder & Director at Scripps Research Translational Institute) and Christine Von Raesefeld (Patient Advocate) to discuss the topic of genomics and medicine, including how genomic data can affect the healthcare journey and how individuals may receive their own DNA results… Continue reading Genomics & Medicine: Your Questions Answered!
It’s Clinical Trials Day, and patients are driving change
Today is Clinical Trials Day – celebrated to bring more attention to public health and also to recognize the contribution of the patients and healthcare professionals who make clinical research possible. At PatientsLikeMe, it’s members who are changing the way clinical trials are designed. Bringing the patient voice to clinical trials has long been part… Continue reading It’s Clinical Trials Day, and patients are driving change
Patients as Partners: Hallucinations and Parkinson’s disease questionnaire results
It’s time for another Patients as Partners post, and today, we’re happy to share the results of the Hallucinations and Parkinson’s disease questionnaire. In March 2014, more than 500 PatientsLikeMe members living with Parkinson’s disease (PD) took part in an Open Research Exchange (ORE) questionnaire about their condition. They worked with Dennis Chan and Ruth… Continue reading Patients as Partners: Hallucinations and Parkinson’s disease questionnaire results
Results! PatientsLikeMe diabetes members share about challenges and concerns
Earlier this year, more than 450 PatientsLikeMe members from the type 1 and type 2 diabetes communities took part in a new survey from our partners at Kaiser Permanente Colorado’s Institute of Health Research. (Thank you all for adding your voices!) Members shared about everything from the day-to-day challenges of living with diabetes to the… Continue reading Results! PatientsLikeMe diabetes members share about challenges and concerns
Gambling in online PD patients higher than previously reported
When most people think of Parkinson’s disease (PD), they think of a shuffling gait, a shaky hand, and slowness of movement. As awareness has increased of the non-movement symptoms of PD, such as hallucinations and depression, we’ve seen the psychological consequences the disease can have too. More recently, studies in the scientific literature have been… Continue reading Gambling in online PD patients higher than previously reported