Tag: sharing

MS members share about their PatientsLikeMeInMotion™ experiences

PatientsLikeMeInMotion™ is a way to celebrate our three star members (super health data donors) and sponsor them at events so that they can raise awareness for their condition. If you’re passionate about advocacy and you’re participating in a walk, run or other fundraiser on behalf of your condition, learn more and sign up right here. … Continue reading MS members share about their PatientsLikeMeInMotion™ experiences

Early – regularly – recommended: all for Cervical Health Awareness Month

If you follow our blog, you’ve probably noticed that we post a bunch about awareness months, weeks and days. It’s part of our mission to bring a bit more attention to what’s going on out there and how you can get involved. This will be our first awareness post for 2014, and it’s for National… Continue reading Early – regularly – recommended: all for Cervical Health Awareness Month

H@cking Medicine: Open Up!

This weekend, MIT is hosting the first H@cking Medicine conference and PatientsLikeMe is proud to be a sponsor. The hacking encouraged here isn’t malicious, rather, it refers to a passionate subculture of computer programmers who believe in sharing, openness, and innovation (among other things).  Those are three concepts near and dear to us here at… Continue reading H@cking Medicine: Open Up!

Patient Choices: The Shape of Sharing

In these days of Facebook and Twitter, the media is abuzz with news of “over sharing” of sensitive, personal or trivial information – everything from your current location to what you were up to over the weekend.  Members on our site may choose to share some of this, but what about some of the less… Continue reading Patient Choices: The Shape of Sharing

The Choices Patients Like You – and Like My Mother – Face

Patients like you with life-changing conditions have to make choices every day, just like anyone else. These choices, however, typically have more at stake than how to RSVP to a party or even whether to walk away from an “underwater” home. For patients like you, your lives may be at stake. I have watched my… Continue reading The Choices Patients Like You – and Like My Mother – Face

Learning from Others: Newsletter Highlights 2011

In the spirit of the New Year, here are some highlights from our recent newsletter.  Read what patients like you have to say about what they’re most interested in learning from other patients this year. * * * (Amy) What are you most interested in learning from other patients this year? (bradley25 – Mood Conditions… Continue reading Learning from Others: Newsletter Highlights 2011

The Patient Rules. A Discussion with the PatientsLikeMe Executives

We recently sat down with our executive team here at PatientsLikeMe in our first-ever roundtable-format podcast.  In this PatientsLikeMeOnCallTM interview, we ask Co-founders Ben and Jamie Heywood, Chief Marketing Officer David S. Williams III, and R&D Director Paul Wicks PhD to discuss why our recent series themes are so important to the history and future… Continue reading The Patient Rules. A Discussion with the PatientsLikeMe Executives

One for All: Interview with Diamondlil58 (Welcomer of 15k Patients)

We’ve been learning about how connected our patients are this week in our blog series called “One for All.”  In the first two blogs by Jeff Cole, we read (and saw through cool graphics) how some of our members are initiating an unparalleled universe of dialogue.  Today, we sit down with one of those members,… Continue reading One for All: Interview with Diamondlil58 (Welcomer of 15k Patients)

One for All: The PatientsLikeMe “Welcome Wagon”

In yesterday’s post, we looked at some of the ways members of the PatientsLikeMe community are connecting with other patients and the value they are getting from it.  Today, we’ll highlight how one person can make an enormous difference and inspire you with her ability to connect with others. One method of reaching out to… Continue reading One for All: The PatientsLikeMe “Welcome Wagon”