Before you were diagnosed with your condition, how long did you live in “limbo” with your symptoms and what was that like? Living with the unknown is a common part of the patient experience — PatientsLikeMe data shows that people with a wide range of health conditions live with their symptoms for several months or… Continue reading Pre-diagnosis limbo: “I knew something was wrong”
Tag: symptoms
Spoons and forks – not just for summer picnics
There are a ton of activities to do during the “lazy, hazy, crazy days of summer.” And whether you’re living with a chronic condition or not, it’s good to learn how to manage your energy. Christine Miserandino, who lives with lupus, created her “Spoon Theory” as a way to think about how much energy we… Continue reading Spoons and forks – not just for summer picnics
Life with Bipolar I Disorder: What We’ve Learned
Yesterday, our interview with bipolar blogger Andrea gave you a glimpse into what it’s like to live with bipolar I disorder. Today we take a deeper look into this mental health condition using the data and experiences shared by our 1,237 bipolar I members. First off, however, you may have heard of something called bipolar… Continue reading Life with Bipolar I Disorder: What We’ve Learned
It’s the Season for Seasonal Affective Disorder
Now that daylight savings time has ended, the days are shorter, and before you know it, it’s nightfall. Has this affected your mood? Seasonal affective disorder (SAD), also known as seasonal depression, is a condition marked by a period of depression that occurs during the same season year after year. In most cases, that season… Continue reading It’s the Season for Seasonal Affective Disorder
American Diabetes Month Kicks Off with “T1 Day”
As we mentioned in our blog about the “Calling All Types” campaign last week, November is American Diabetes Month. Today, November 1st, is also “T1 Day,” a new event sponsored by the Juvenile Diabetes Research Foundation (JDRF) to raise awareness about type 1 diabetes (previously known as juvenile diabetes), which is often diagnosed in children,… Continue reading American Diabetes Month Kicks Off with “T1 Day”
One for All: A Cross View of Patient Sharing
With more than 82,000 patients on PatientsLikeMe, there’s a lot of information being shared with one another. Last month, we highlighted how your sharing affects the experience of many on our site. Today, we continue that theme by taking a look at information being shared across all of our communities that many of you may… Continue reading One for All: A Cross View of Patient Sharing
Sharing and Learning with PatientsLikeMe
In December community newsletters (launched earlier this week), we asked some of our members to think about what they’ve shared and compared in 2010. Below are highlighted answers from each interviewee across all nine community newsletters. Thank you for your contributions. We also want to thank all of you who have contributed to the 90… Continue reading Sharing and Learning with PatientsLikeMe
Mental Health Awareness: What do you know about Mood Conditions?
In honor of this month’s Mental Illness Awareness Week, here’s a snapshot of what’s happening in our PatientsLikeMe Mood community. Launched in 2008, the community now has more than 18,000 patients. Below are some interesting facts about the community, so please read and share on! DID YOU ALSO KNOW… How are our members treating their… Continue reading Mental Health Awareness: What do you know about Mood Conditions?
Sharing to Feel Better
Sharing. It’s a concept we all learn at a very young age. Oftentimes reminisced as happening in the sandbox, we think back to our young selves giving up what we hold most dear (in this case, some cheap plastic toy) to allow someone else to benefit from it. It seems so simple and obvious, but… Continue reading Sharing to Feel Better
Announcing the PatientsLikeMe ALS Genetics Search Engine
This month marks the 3-year anniversary of our flagship ALS community. While there have been so many exciting milestones we’ve reached in that time, we’re always looking at ways to bring new insight to this disease. Today, we’re announcing the launch of our Genetics Search Engine for people with ALS. Imagine finding other patients just… Continue reading Announcing the PatientsLikeMe ALS Genetics Search Engine