Many PatientsLikeMe members have talked in the forum about the dietary impact of lung cancer treatment and how it has hindered their eating. As many as 40 to 60 percent of patients with lung cancer experience unintentional weight loss. Eating well (or as best you can) during and after cancer treatment can help you keep… Continue reading How cancer affects diet + pointers for trying to eat well
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MS and Bowel Incontinence
More than 14,000 members living with MS report bowel problems (difficulty in passing feces including constipation, bowel incontinence [loss of bowel control], and diarrhea). So, what’s the deal with bowel incontinence and MS? What can you do to manage symptoms? We checked in with Meaghan Zisk, RN MPH, a nurse and Health Data and Patient… Continue reading MS and Bowel Incontinence
“Dealing and healing” together: Karl and Angela Robb team up with PatientsLikeMe and share about living with young-onset Parkinson’s disease
PatientsLikeMe is pleased to announce a new collaboration with Karl and Angela Robb, the husband-and-wife team behind Karl’s blog, “A Soft Voice in a Noisy World: Dealing and Healing with Parkinson’s Disease,” and the authors of two books. You might’ve already seen Karl’s #MoreThan story. Karl and Angela recently shared even more with us in… Continue reading “Dealing and healing” together: Karl and Angela Robb team up with PatientsLikeMe and share about living with young-onset Parkinson’s disease
Raising awareness and taking action for Psoriasis Awareness Month
August is Psoriasis Action Month, and this month when those living with psoriasis raise awareness about what it’s like living with a condition that is often misunderstood and stigmatized. We asked members of the PatientsLikeMe community to share what they wish others knew about life with psoriasis and psoriatic arthritis, here’s what they said… Like… Continue reading Raising awareness and taking action for Psoriasis Awareness Month
GF + DF recipe from LupusChick: Berry Bliss Smoothie Bowl
Our partner Marisa Zeppieri-Caruana, founder of LupusChick, blogs about healthy cooking and living with lupus and other chronic conditions. Check out this gluten-free, dairy-free recipe she wanted to share with the lupus community (or anyone who’d like to try it) before berry season winds down! One of my favorite aspects about summer is seeing berries… Continue reading GF + DF recipe from LupusChick: Berry Bliss Smoothie Bowl
75k [virtual] hugs on PatientsLikeMe – and how social connections are good for your health
Newsflash: “Social Interaction Is Critical for Mental and Physical Health,” as The New York Times recently reported. Decades of research support the theory that social connections can have a positive effect on your health. Having social ties may help prevent illness and is still a boon to your health when you’re sick or living with… Continue reading 75k [virtual] hugs on PatientsLikeMe – and how social connections are good for your health
Want to know more about Radicava (edaravone)? Here’s a snapshot:
With the recent FDA approval of Radicava (edaravone), we wanted to know more about how it works and what it means for patients living with ALS. We asked Maria Lowe, Pharm.D., BCPS, and our Health Data Integrity team, to give us a snapshot of the drug, how it’s used and what you should know. Maria’s rundown… Continue reading Want to know more about Radicava (edaravone)? Here’s a snapshot:
5 tips for practicing self-care when your chronic illness is trying to take over
As a woman with bipolar disorder I and PTSD, I can pretty safely say that no two days are the same. There are days when the world is sunshine and roses; life is grand! Then there are days when the inside of my brain is trying to run the show without me, and it’s leaving… Continue reading 5 tips for practicing self-care when your chronic illness is trying to take over
New graphic: See (and add to) the power of 60+ #MoreThan stories
What are all the roles you play in life beyond “patient”? When we kicked off the #MoreThan campaign – asking our members about all the ways they’re more than their diagnoses – we didn’t know just how many stories we’d hear. This new graphic captures what the PatientsLikeMe community has shared so far – about… Continue reading New graphic: See (and add to) the power of 60+ #MoreThan stories
Ocrevus: You asked, we answered
Last month, we asked the MS community to share their questions about Ocrevus. Now, PatientsLikeMe’s Maria Lowe, Pharm.D., BCPS, sheds more light on what it is, how it works and what patients need to know. Maria’s rundown is meant to give you more context so you can have better conversations with your care team –… Continue reading Ocrevus: You asked, we answered