“I’m a filmmaker, husband of my NYU film school classmate, father of two children and bipolar. Of these labels, the one I’m certain stands out in your mind is bipolar – and not in a good way.” Being bipolar is not something that new PatientsLikeMe member Paul has ever tried to hide. On the contrary,… Continue reading Meet Paul, an artist “touched with fire”
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Meet Peggy from the PatientsLikeMe Team of Advisors
Say hello to Peggy, another member of your 2015-2016 PatientsLikeMe Team of Advisors. A survivor of both kidney cancer and Stage II breast cancer, Peggy believes that most of us are “ill-prepared to be ill,” and that better health education can lead to better outcomes. After years of teaching and volunteering, patient advocacy has come… Continue reading Meet Peggy from the PatientsLikeMe Team of Advisors
A Q&A with Mara Gaudette, MS, CGC, Teratogen Information Specialist, MotherToBaby
MotherToBaby, a service of the non-profit Organization of Teratology Information Specialists (OTIS), is dedicated to providing evidence-based information to mothers, healthcare professionals and the general public about medications and other exposures during pregnancy and while breastfeeding. Check out our Q&A with Mara Gaudette, a certified genetic counselor with MotherToBaby in California. Mara also counsels women who… Continue reading A Q&A with Mara Gaudette, MS, CGC, Teratogen Information Specialist, MotherToBaby
We can. I can. Start talking about cancer.
Every February 4, all corners of the world unite in the fight against cancer on World Cancer Day (WCD). What’s the purpose? To get as many people around the globe talking about a disease that continues to claim 8.2 million lives every year.[1] How can you get involved? Every action counts and the more people… Continue reading We can. I can. Start talking about cancer.
Meet David from the PatientsLikeMe Team of Advisors
We’d like to introduce you to David, another member of your 2015-2016 PatientsLikeMe Team of Advisors. David has been living with Stage IV lung cancer for four years and hopes to be an inspiration to other cancer patients. He has worked to raise awareness for his condition as a political advocate for the NGO Lung… Continue reading Meet David from the PatientsLikeMe Team of Advisors
Rheumatoid Awareness Day: 7 things you might not know about RA
Today is Rheumatoid Awareness Day, and we’re spreading the word about the condition that affects over 9,000 PatientsLikeMe members. Rheumatoid disease can manifest in many different ways – fatigue, joint pain, stiffness and fever, to name a few — so it can be hard to understand the full scope of this condition. To show the… Continue reading Rheumatoid Awareness Day: 7 things you might not know about RA
“I had no idea that my thyroid controls so much” — PatientsLikeMe member Barbara shares her experience for Thyroid Awareness Month
January is Thyroid Awareness Month. So, how much do you know about the small, butterfly-shaped gland that influences the way your heart, brain, liver, kidneys and skin function? To help spread #thyroidawareness, we asked member Barbara to tell us about living with thyroid cancer and hypothyroidism, a condition that affects over 6,000 PatientsLikeMe members. Barbara… Continue reading “I had no idea that my thyroid controls so much” — PatientsLikeMe member Barbara shares her experience for Thyroid Awareness Month
Food for thought: healthy eating in 2016
A lot of people talk about smartening up their diets at the start of a new year. Over the past month, many PatientsLikeMe members have shared eating habits they’re going to keep and the new ones they’d like to start in 2016 — everything from cutting down on salt to going vegan. Take a look… Continue reading Food for thought: healthy eating in 2016
CHSG founder Chris Hannah shares how he tracks cluster headaches on PatientsLikeMe
In an interview last June, Chris Hannah, the founder of Cluster Headache Support Group (CHSG), discussed his experience with and thoughts on cluster headaches, clinical trials and more. We recently caught up with Chris to learn how he uses PatientsLikeMe to manage his condition, and the advice he gives to others living with cluster headaches.… Continue reading CHSG founder Chris Hannah shares how he tracks cluster headaches on PatientsLikeMe
“I try my best to make the most of each new day”– An interview with ALS member Brian
Brian (Dunric) is a former game developer and has been living with ALS since 1998. Unable to find a local ALS support group where he lives in Lodi, CA, he discovered PatientsLikeMe in 2012. In a recent interview, Brian opened up about dealing with the uncertainty of his condition the best way he knows how… Continue reading “I try my best to make the most of each new day”– An interview with ALS member Brian