14 Questions You Should Ask to Prepare for a Clinical Trial

A clinical trial is a research study that tests a medical, surgical, or behavioral intervention to find out whether they are safe and effective! Because of clinical trials we now enjoy modern conveniences like pacemakers and the covid vaccine. You may be in a position to participate in one, but have questions going in. That… Continue reading 14 Questions You Should Ask to Prepare for a Clinical Trial

The Importance of Calcium-Rich Foods for Lupus Management

How Calcium Can Help Manage Lupus Symptoms Living with Lupus presents unique challenges, and maintaining bone health might not always be top of mind. However, ensuring an adequate intake of calcium-rich foods is crucial for those living with Lupus. Let’s talk about why calcium is vital for those with Lupus and explore some delicious and… Continue reading The Importance of Calcium-Rich Foods for Lupus Management

Why Am I Suddenly Getting Rashes? Early Signs of Lupus

Our skin is the largest organ in the body. It protects us from germs and helps regulate temperature. Every inch of our skin has about 19 million skill cells, 1,000 nerve endings, 20 blood vessels, and 60,000 melanocytes. Lupus is an autoimmune disease that can cause a number of different symptoms, including skin rashes. One… Continue reading Why Am I Suddenly Getting Rashes? Early Signs of Lupus

Genetics vs. Environment: The Factors Contributing to Lupus Risk

The Lupus Foundation of America estimated that 1.5 million Americans have some form of lupus, with an additional 16,000 new cases each year. Lupus is still a very under-researched and misunderstood condition, so today, we’ll unravel the factors that contribute to lupus risk, exploring the interplay between genetics, the environment, and common symptoms. Let’s dive in!… Continue reading Genetics vs. Environment: The Factors Contributing to Lupus Risk

Understanding Early Signs of Lupus in Women

Lupus, a chronic autoimmune disease, affects women more often than men. This condition can cause damage to any part of the body as the immune system mistakenly attacks healthy cells, tissues, or organs. Women with lupus have a higher risk of experiencing other health problems, such as heart disease and osteoporosis. In this overview, PatientsLikeMe… Continue reading Understanding Early Signs of Lupus in Women

New Exercise Recommendations For Those With SLE

An international task force, made of experts from various disciplines, including rheumatology, internal medicine, and physiotherapy, has developed evidence-based recommendations for adding physical activity into the lives of people living with systemic lupus erythematosus (SLE). These recommendations aim to improve well-being while considering individual health conditions and disease severity. 15 Lupus Exercise Recommendations By following… Continue reading New Exercise Recommendations For Those With SLE

Clinical Trials: What Are They, and Should You Participate?

Clinical trials play a vital role in advancing medical knowledge and developing new treatments for chronic conditions. If you’re living with a chronic illness, you may have considered participating in a clinical trial but felt uncertain about what it entails. What are clinical trials? These research studies are conducted with human volunteers to evaluate the… Continue reading Clinical Trials: What Are They, and Should You Participate?

A New Treatment Method? Machine Learning and Lupus

A new study has looked into the transformative impact of machine learning (ML) on the study of lupus disease. ML offers a range of possibilities, such as building predictive models, identifying novel biomarkers, and enhancing our understanding of disease pathogenesis and progression. The researchers conducted a thorough review of 192 studies on ML and SLE… Continue reading A New Treatment Method? Machine Learning and Lupus

Can Lupus Lead to a Rash? Prioritizing Skin Health

Lupus is a complex autoimmune disease that can affect various organs and systems in the body, including the skin. PatientsLikeMe has covered lupus extensively. Lupus flares, how it manifests in men vs. women, hair loss and bone density. These are just a few of the topics we’ve covered. Skin health, however, is not an area… Continue reading Can Lupus Lead to a Rash? Prioritizing Skin Health

Drug Found to be Effective Long-Term Lupus Treatment

A study out of Japan has found tacrolimus, an immunosuppressant, to be an effective lupus treatment. Over a ten year period, researchers followed a group of 1,355 people with lupus nephritis who received treatment with tacrolimus. The drug was well-tolerated and effective with nearly half (49.3%) of the participants. It should be noted that here… Continue reading Drug Found to be Effective Long-Term Lupus Treatment