Meet member David (david61060), a United States Air Force veteran who’s living with multiple conditions including PTS, sleep apnea, and epilepsy. When we caught up with him, David shared what it was like to grow up as a “navy brat,” his experience in the military, and how It took him more than nine years to… Continue reading “I am working on all of it slowly” — Member David opens up about his experience with PTS
Category: Conditions
Living with a health condition? On the PatientsLikeMe blog, find helpful health information and patient stories about being diagnosed, trying different treatments, and living day-to-day with a chronic condition.
“These lungs are a precious gift” — Member John shares his new “new normal” for National Donate Life Month
April is National Donate Life Month, an annual awareness effort to encourage Americans to register as organ, eye and tissue donors — and to celebrate those who have donated and saved lives. We recently caught up with IPF member John (John_R), who we interviewed back in 2014. At that time, John described what his “new… Continue reading “These lungs are a precious gift” — Member John shares his new “new normal” for National Donate Life Month
“Each day is different and you do what you can” — Member Rick shares his story for Myeloma Action Month
A few weeks ago, we shared Marcia’s story for Myeloma Action Month. Today, we’re introducing Rick (ricktowner), another member of the multiple myeloma community. Before he was diagnosed in 2012, Rick and his wife led active lives volunteering in private, state and federal parks. Now in remission, he still travels when he can and rides… Continue reading “Each day is different and you do what you can” — Member Rick shares his story for Myeloma Action Month
MS and Pregnancy – From our Partners at MotherToBaby for MS Awareness Month”
It’s MS Awareness Month, and this year, we’re focusing on how the condition affects pregnant women and their babies. Our partners at MotherToBaby recently shared an article that answers some of the questions that might come up for women who have MS and are thinking about having children. Check it out below… MS: The Diagnosis… Continue reading MS and Pregnancy – From our Partners at MotherToBaby for MS Awareness Month”
Oceans of Hope: An interview with PatientsLikeMe member Beth
Beth (sailebeb) has been living with MS since 2010, but it hasn’t stopped her from leading an active lifestyle. In the spring of 2015, she joined a crew of MS patients on a sailing trip from Tahiti to American Samoa. The journey was organized by the Sailing Sclerosis project, Oceans of Hope, to change perceptions that people… Continue reading Oceans of Hope: An interview with PatientsLikeMe member Beth
Leaning on loved ones—An interview with lung cancer member Clare
When Clare (Riverdale) was diagnosed with non small-cell lung cancer, her husband was already living with prostate cancer. While supporting each other through chemotherapy and radiation, the couple has made an effort to eat healthy and keep up the active lifestyle they led before. We recently connected with Clare, who emphasized “the value of a… Continue reading Leaning on loved ones—An interview with lung cancer member Clare
ALS Blog: “Hope makes us strong.” – An interview with ALS caregiver Cathy
Meet Cathy (Catrin), who became a caregiver for her husband after he was diagnosed with bulbar onset ALS in January of 2015. As she learns to manage the dual roles of wife and caregiver, she has turned to the PatientsLikeMe community for help, encouragement and hope. We took time to connect with her recently and… Continue reading ALS Blog: “Hope makes us strong.” – An interview with ALS caregiver Cathy
Rheumatoid Awareness: 7 Things You Might Not Know About RA
Rheumatoid disease can manifest in many different ways – fatigue, joint pain, stiffness and fever, to name a few — so it can be hard to understand the full scope of this condition. Learning from Community No matter which condition you are living with, you don’t have to do it alone. At PatientsLikeMe, there are thousands… Continue reading Rheumatoid Awareness: 7 Things You Might Not Know About RA
“I had no idea that my thyroid controls so much” — PatientsLikeMe member Barbara shares her experience for Thyroid Awareness Month
January is Thyroid Awareness Month. So, how much do you know about the small, butterfly-shaped gland that influences the way your heart, brain, liver, kidneys and skin function? To help spread #thyroidawareness, we asked member Barbara to tell us about living with thyroid cancer and hypothyroidism, a condition that affects over 6,000 PatientsLikeMe members. Barbara… Continue reading “I had no idea that my thyroid controls so much” — PatientsLikeMe member Barbara shares her experience for Thyroid Awareness Month
CHSG founder Chris Hannah shares how he tracks cluster headaches on PatientsLikeMe
In an interview last June, Chris Hannah, the founder of Cluster Headache Support Group (CHSG), discussed his experience with and thoughts on cluster headaches, clinical trials and more. We recently caught up with Chris to learn how he uses PatientsLikeMe to manage his condition, and the advice he gives to others living with cluster headaches.… Continue reading CHSG founder Chris Hannah shares how he tracks cluster headaches on PatientsLikeMe