Earlier this month, PatientsLikeMe Co-Founder and President Ben Heywood, along with marketing intern Jenna Tobey, went to visit the Steve Saling ALS Residence, which is part of the Chelsea Jewish Foundation’s Leonard Florence Center for Living in Chelsea, MA. The foundation has been providing high-quality care for over 90 years and includes the nation’s only specialized… Continue reading Out of the Office: PatientsLikeMe Visits ALS Pioneer Steve Saling
Category: Conditions
Living with a health condition? On the PatientsLikeMe blog, find helpful health information and patient stories about being diagnosed, trying different treatments, and living day-to-day with a chronic condition.
My War with Psoriasis: An Interview with British Blogger Simon
Welcome to the latest installment of our “Spotlighted Blogger” series. Earlier this year, we focused on psoriasis bloggers, including Lissa, Alisha B., Jessica and Joni, and today we’re pleased to add a male perspective to the mix. PatientsLikeMe member Simon’s witty blog, entitled My Skin and I, discusses his decade-long battle with psoriasis, a chronic autoimmune condition that… Continue reading My War with Psoriasis: An Interview with British Blogger Simon
Today’s Photo: Enthusiasm and Hope at Walk MS
“There is still no cure, but at least now, thanks to these fundraising events, there are advancements in patient care, and there is hope.” – Multiple sclerosis (MS) patient Judy It may be winter now, but plans for next year’s disease-related fundraising events are underway. The question is: will you be taking part? For inspiration,… Continue reading Today’s Photo: Enthusiasm and Hope at Walk MS
Innovating Healthcare Through Shared Patient Knowledge
What happens when a patient finds another patient like them – for example, someone the same age with the same disease taking the same treatments? Problems get solved, says PatientsLikeMe Co-Founder and Chairman Jamie Heywood. Click on the box below to hear more of Jamie’s thoughts in his interview with Boston.com, the online home of… Continue reading Innovating Healthcare Through Shared Patient Knowledge
Not Recognizing the “New Me”
For many newly diagnosed patients, accepting help can be as difficult as accepting the diagnosis itself. According to some of the members of our Parkinson’s disease community, here are a few signs that you may be struggling with the idea of becoming someone who might need help. Have you found yourself feeling resentful when family,… Continue reading Not Recognizing the “New Me”
Psoriasis in Fall: What We’ve Learned
Want to connect with and learn from psoriasis patients like you? Join PatientsLikeMe Now! (It’s free) How do people with psoriasis cope with the drier autumn air? Do they drink more water, use a humidifier in their house or intensively moisturize with a favorite lotion? This was just one thing we set out to discover… Continue reading Psoriasis in Fall: What We’ve Learned
A Day in the Life of Health Data and Patient Safety Clinical Specialist Christine Caligtan
What’s it like to work at PatientsLikeMe? We are continuing to reveal just that with our monthly blog series “A Day in the Life,” which features PatientsLikeMe employees from different departments. Today we’d like to introduce you to Christine Caligtan, RN, MSN, a registered nurse who has served as our Health Data and Patient Safety Clinical… Continue reading A Day in the Life of Health Data and Patient Safety Clinical Specialist Christine Caligtan
PatientsLikeMe and Dr. Max Little Team Up to Advance Parkinson’s Research Through the Patient Voice
TED Fellows Call on Parkinson’s Patients to Help Screen, Monitor Disease Progression CAMBRIDGE, Mass. — December 3, 2012 —Today, Paul Wicks Ph.D., director of research for PatientsLikeMe, and Max Little, Ph.D., founder of the Parkinson’s Voice Initiative (PVI), kick off a partnership to advance Parkinson’s disease (PD) research through the sound of the patient voice.… Continue reading PatientsLikeMe and Dr. Max Little Team Up to Advance Parkinson’s Research Through the Patient Voice
Working Together for an AIDS-Free Generation
Saturday, December 1st, is World AIDS Day (hashtag #WAD2012), a time for re-upping your vigilance and awareness levels about HIV/AIDS. The global AIDS crisis is not over until an AIDS-free society is achieved, and unfortunately, we’re not there yet. That’s why the US theme for World AIDS Day 2012 is “Working Together for an AIDS-Free… Continue reading Working Together for an AIDS-Free Generation
PatientsLikeMe at the 2nd Annual White Coat Affair for ALS TDI
On Friday, November 2nd, several PatientsLikeMe team members donned their finest to attend the 2nd Annual White Coat Affair, a charity gala benefiting the ALS Therapy Development Institute (ALS TDI). Founded by PatientsLikeMe Co-Founder and Chairman Jamie Heywood in 1999, ALS TDI is the world’s most advanced research laboratory dedicated to ALS, also known as Lou Gehrig’s… Continue reading PatientsLikeMe at the 2nd Annual White Coat Affair for ALS TDI