The term “hat trick” originated in 1858 after English cricketer HH Stephenson successfully bowled out three batsmen with consecutive bowls and he was presented with a hat to commemorate his feat. In June, PatientsLikeMe’s research team scored a hat trick of our own by publishing three new studies in scientific journals in just four days,… Continue reading PatientsLikeMe Researchers Score a Hat Trick
Category: Conditions
Living with a health condition? On the PatientsLikeMe blog, find helpful health information and patient stories about being diagnosed, trying different treatments, and living day-to-day with a chronic condition.
The Importance of Open Access: An Interview with Patient Advocate Graham Steel
A native of Glasgow, Scotland, Graham Steel is a longtime “Guest Researcher Member” of PatientsLikeMe. Following the death of his brother Richard at the age of 33 from a rare condition known as variant Creutzfeldt-Jakob Disease (vCJD), Graham became involved in patient advocacy work, and most recently, in lobbying for open access to published scientific… Continue reading The Importance of Open Access: An Interview with Patient Advocate Graham Steel
Today’s Photo: Walking Warriors for MS
As we get deeper into summer, there are disease-related walk/run events happening almost every weekend. What they all share is an opportunity for patients, friends and family to come together in solidarity and raise money for research and patient services. For inspiration, please meet multiple sclerosis (MS) patient barneyhouse and her “Walking Warriors,” who took… Continue reading Today’s Photo: Walking Warriors for MS
What We’re Reading at PatientsLikeMe
Here are some of the media items that grabbed our attention recently. What Air Traffic Can Teach Us About Kidney Transplants Air traffic rules balance fairness and efficiency. Can organ waitlists do the same? Open Access Is Not for Scientists. It’s for Patients. A guest blog post by our R&D Director, Paul Wicks, for the… Continue reading What We’re Reading at PatientsLikeMe
Take an HIV Test. Take Control.
“CDC estimates that 55 percent of adults – and 28 percent of adults with a risk factor for HIV – have not been tested. Too many people living with HIV are being tested and diagnosed too late to take advantage of effective HIV treatment and prevention options.” – Dr. Kevin A. Fenton, Director, CDC’s National… Continue reading Take an HIV Test. Take Control.
A Peek at the June Newsletter for Members
What kinds of things do we cover in our monthly newsletters for members? Take a look at the excerpt below from our June edition. Also, in case you didn’t know, anyone – whether a PatientsLikeMe member or not – can view our current and past newsletters in our Newsletter Archive. See what we’ve been up to… Continue reading A Peek at the June Newsletter for Members
A Day in the Life of PatientsLikeMe Product Manager Maureen Oakes
What’s it like to work at PatientsLikeMe? We are continuing to reveal just that with our monthly blog series “A Day in the Life,” which features employees from different departments. So far, we’ve interviewed User Experience Engineer Cris Necochea, Research Assistant Shivani Bhargava, Office Manager Alison Dutton, Research Scientist Timothy Vaughan and Biz Dev’er Arianne Graham. Today… Continue reading A Day in the Life of PatientsLikeMe Product Manager Maureen Oakes
Today’s Photo: Raising Epilepsy Awareness on the National Mall
Summer is here, and that means there are disease-related walk/run events happening all around the country! For inspiration, please meet epilepsy patient Monica (second from right), who led a PatientsLikeMeInMotion-sponsored team at the National Walk for Epilepsy in Washington, DC. Held on March 31, 2012, the two-mile walk occurred between Madison and Jefferson Drives on… Continue reading Today’s Photo: Raising Epilepsy Awareness on the National Mall
Faces Wanted: One Man’s Mission to Drive Awareness of Parkinson’s Disease
“I have a hope that this foundation has a short life. We exist to help fund and find a cure. To do that we need to generate and raise awareness of Parkinson’s disease and its impact to the public. Awareness in turn will aid in generation of funding. Funding for a cure and funding for… Continue reading Faces Wanted: One Man’s Mission to Drive Awareness of Parkinson’s Disease
Surviving Multiple Sclerosis (MS)
It’s Men’s Health Week, and we’re featuring the perspectives of – you guessed it – men. Following tiredoftired’s guest post about depression on Monday, we are pleased to present this poignant essay by longtime PatientsLikeMe member and mentor Rick N, who has lived with multiple sclerosis (MS) for 23 years. I am a 58-year-old man… Continue reading Surviving Multiple Sclerosis (MS)