CAMBRIDGE, Mass. & TAMPA, Fla., March 8, 2016—Patient network PatientsLikeMe® and informatics solutions provider M2Gen® are collaborating to give patients and researchers a more complete picture of patients’ experiences with cancer treatments and to shed new light on the factors that may affect outcomes and quality of life. The partnership aims to advance cancer… Continue reading PatientsLikeMe and M2Gen Announce Partnership and Plans for Landmark Cancer Experience Study
“My data is going to empower the next patient” — PatientsLikeMe member Letitia shares her mission to #PayItForward
Many of you have already met Letitia, an active member of the epilepsy community and part of the 2014-2015 Team of Advisors. In her Patient Voice video, Letitia shares how her research on the site led her to the surgery that changed her life – she’s been seizure free for more than three years. Now,… Continue reading “My data is going to empower the next patient” — PatientsLikeMe member Letitia shares her mission to #PayItForward
Meet Phyllis from the 2015-2016 Team of Advisors
We’d like to introduce you to Phyllis, another member of your 2015-2016 Team of Advisors. Phyllis is living with Cutaneous T-Cell Lymphoma (CTCL) as well as Hodgkin’s lymphoma. Still, the former mayor of Princeton, NJ, leads an active life by spending time with her grandchildren, cheering on the Mets and taking brisk walks when she… Continue reading Meet Phyllis from the 2015-2016 Team of Advisors
Oceans of Hope: An interview with PatientsLikeMe member Beth
Beth (sailebeb) has been living with MS since 2010, but it hasn’t stopped her from leading an active lifestyle. In the spring of 2015, she joined a crew of MS patients on a sailing trip from Tahiti to American Samoa. The journey was organized by the Sailing Sclerosis project, Oceans of Hope, to change perceptions that people… Continue reading Oceans of Hope: An interview with PatientsLikeMe member Beth
Meet Cyrena from the PatientsLikeMe Team of Advisors
Say hello to Cyrena, another member of your 2015-2016 Team of Advisors. Cyrena is living with bipolar II and lupus, and currently a PhD candidate in pharmacology. Cyrena describes some days with her conditions as “swimming through a vat of molasses” — which makes managing her intensive student workload along with her health a… Continue reading Meet Cyrena from the PatientsLikeMe Team of Advisors
Leaning on loved ones—An interview with lung cancer member Clare
When Clare (Riverdale) was diagnosed with non small-cell lung cancer, her husband was already living with prostate cancer. While supporting each other through chemotherapy and radiation, the couple has made an effort to eat healthy and keep up the active lifestyle they led before. We recently connected with Clare, who emphasized “the value of a… Continue reading Leaning on loved ones—An interview with lung cancer member Clare
Meet Doug from the PatientsLikeMe Team of Advisors
We’d like to introduce you to Doug, another member of your 2015-2016 Team of Advisors. Doug is an actor, teacher and writer living with major depressive disorder (MDD). He’s been tracking his health on PatientsLikeMe since 2008. Doug feels there is a lot of stigma surrounding the term “mental illness,” and shares that one of… Continue reading Meet Doug from the PatientsLikeMe Team of Advisors
National Donor Day: Changing lives on both sides
“Be Mine.” It’s the mantra of Valentine’s Day, but today we’re honoring those who’ve said, “Have mine.” February 14 is also National Donor Day, and it’s all about recognizing the most precious valentine of all: the gift of life. For every organ, tissue, marrow, platelet and blood donation, there are two sides to the story.… Continue reading National Donor Day: Changing lives on both sides
ALS Blog: “Hope makes us strong.” – An interview with ALS caregiver Cathy
Meet Cathy (Catrin), who became a caregiver for her husband after he was diagnosed with bulbar onset ALS in January of 2015. As she learns to manage the dual roles of wife and caregiver, she has turned to the PatientsLikeMe community for help, encouragement and hope. We took time to connect with her recently and… Continue reading ALS Blog: “Hope makes us strong.” – An interview with ALS caregiver Cathy
Meet Peggy from the PatientsLikeMe Team of Advisors
Say hello to Peggy, another member of your 2015-2016 PatientsLikeMe Team of Advisors. A survivor of both kidney cancer and Stage II breast cancer, Peggy believes that most of us are “ill-prepared to be ill,” and that better health education can lead to better outcomes. After years of teaching and volunteering, patient advocacy has come… Continue reading Meet Peggy from the PatientsLikeMe Team of Advisors