PatientsLikeMeInMotion™ is a way to celebrate our three star members (super health data donors) and sponsor them at events so that they can raise awareness for their condition. If you’re passionate about advocacy and you’re participating in a walk, run or other fundraiser on behalf of your condition, learn more and sign up right here. … Continue reading MS members share about their PatientsLikeMeInMotion™ experiences
You’re Not You
There’s a greater sense of awareness around ALS lately. The IceBucketChallenge really shined a spotlight on a condition that many have heard of, but maybe not that many really understand. (If you missed it, see everyone here at PatientsLikeMe taking on the challenge, and what Steve, an ALS community member, thinks about it. So it… Continue reading You’re Not You
PatientsLikeMe and Cancer Treatment Centers of America Eastern team up to support survivors
Online Network Connects Patients, Offers Valuable Information and Tools CAMBRIDGE, Mass.—October 8, 2014—PatientsLikeMe and Cancer Treatment Centers of America (CTCA) at Eastern Regional Medical Center (Eastern) have joined forces to help ease patients’ transitions from cancer treatment to survivorship. The collaborative effort is designed to give patients undergoing or completing treatment direct access to a… Continue reading PatientsLikeMe and Cancer Treatment Centers of America Eastern team up to support survivors
Jamie delivers keynote presentation at DIA 2014
Our co-founder, Jamie Heywood, recently traveled to San Diego to receive the Drug Information Association’s (DIA) 2014 President’s Award for Outstanding Achievement in World Health. With the award in his hand and speaking to everyone who was attending the event, he accepted it on behalf of the quarter million PatientsLikeMe members (this is for all… Continue reading Jamie delivers keynote presentation at DIA 2014
It’s time to recognize mental illness in October
Think about this for a second; according to the National Alliance of Mental Illness (NAMI) 1 in 4 people, or 25% of American adults, will be diagnosed with a mental illness this year. On top of that, 20 percent of American children (1 in 5) will also be diagnosed. And so for 7 days, October… Continue reading It’s time to recognize mental illness in October
Getting to know our 2014 Team of Advisors – Dana
Just last month, we announced the coming together of our first-ever, patient-only Team of Advisors – a group of 14 PatientsLikeMe members that will give feedback on research initiatives and create new standards that will help all researchers understand how to better engage with patients like them. They’ve already met one another in person, and… Continue reading Getting to know our 2014 Team of Advisors – Dana
Food for Thought: September weather and autumn recipes
Around the PatientsLikeMe office in Boston, the leaves are beginning to turn red, yellow, orange and gold, and everyone is starting to bundle up as the weather gets colder. In turn, PatientsLikeMe members have been sharing their favorite fall recipes and some thoughts about how the weather impacts the conditions they live with. Here’s what… Continue reading Food for Thought: September weather and autumn recipes
Every three minutes
That’s how often a person is diagnosed with blood cancer in the United States, according to the Leukemia and Lymphoma Society (LLS). This means that 156,420 Americans will be diagnosed in 2014, and hundreds of thousands more worldwide. But that’s just the start of what everyone can learn during National Blood Cancer Awareness Month. Check… Continue reading Every three minutes
Ovarian cancer – taking early action
Do you know why teal is the official color for Ovarian Cancer Awareness Month? It’s an acronym for Take Early Action and Live. This September, we can all do our part to help people understand what it’s like to live with this condition, including spreading awareness and education for early signs and symptoms. In 2014, the American… Continue reading Ovarian cancer – taking early action
The Patient Voice- Epilepsy member Letitia shares her story
What would you do if you were living with seizures from epilepsy since you were ten years old? And you weren’t even able to drive a car? Letitia turned others living with epilepsy on PatientsLikeMe and shared about her journey in a recent video. Watch above to see her inspiring story, and how… Continue reading The Patient Voice- Epilepsy member Letitia shares her story