A native of Glasgow, Scotland, Graham Steel is a longtime “Guest Researcher Member” of PatientsLikeMe. Following the death of his brother Richard at the age of 33 from a rare condition known as variant Creutzfeldt-Jakob Disease (vCJD), Graham became involved in patient advocacy work, and most recently, in lobbying for open access to published scientific… Continue reading The Importance of Open Access: An Interview with Patient Advocate Graham Steel
Learning Your Personal Genetics: An Interview with PGen Study Participant PF Anderson
Recently, PatientsLikeMe sent a message to our members about an opportunity to participate in the Impact of Personal Genomics (PGen) Study, led by researchers at Harvard and the University of Michigan. Each of the 1,000 study participants receives personal genomic testing services at a significantly subsidized discount. Using a series of surveys, the investigators will… Continue reading Learning Your Personal Genetics: An Interview with PGen Study Participant PF Anderson
PatientsLikeMe Adds Three New Executives to Its Leadership Team
New Appointments Cap Active Year, Solidify Team for Strategic Growth CAMBRIDGE, Mass. — Jun 27, 2012 — PatientsLikeMe, the leading health data-sharing website, announces the appointment of three new executives to its leadership team. The company, which recently expanded its website to invite patients with any disease, makes this move to focus on expanding the collection and use… Continue reading PatientsLikeMe Adds Three New Executives to Its Leadership Team
Surviving Multiple Sclerosis (MS)
It’s Men’s Health Week, and we’re featuring the perspectives of – you guessed it – men. Following tiredoftired’s guest post about depression on Monday, we are pleased to present this poignant essay by longtime PatientsLikeMe member and mentor Rick N, who has lived with multiple sclerosis (MS) for 23 years. I am a 58-year-old man… Continue reading Surviving Multiple Sclerosis (MS)
Mike Wallace, Depression and Me
In honor of Men’s Health Week, we are pleased to present a guest post by PatientsLikeMe member tiredoftired, a young man who has been living with major depressive disorder since 2007. Don’t miss this moving essay about how Mike Wallace’s passing earlier this year impacted and inspired him. As I was driving to therapy on… Continue reading Mike Wallace, Depression and Me
Spotlighted Blogger: Meet Psoriasis Patient Joni of “Just a Girl with Spots”
Welcome to the latest installment of our “Spotlighted Blogger” series. This spring we’ve been focusing on psoriasis patient bloggers, starting with Lissa in March and Alisha B. and Jessica in April. Today, we’d like to introduce you to Joni (girlwithspots), a PatientsLikeMe member who writes a blog called “Just a Girl with Spots.” How has… Continue reading Spotlighted Blogger: Meet Psoriasis Patient Joni of “Just a Girl with Spots”
Living with Psoriasis: PatientsLikeMe Member Lissa Featured on Patient Power
“I don’t really know too many people around here with psoriasis. It was hard to relate with somebody. My family, my friends, my husband, they’re great support, but they can only see what I’m going through, they can’t go through it the way I do. It’s really important to be able to connect with people… Continue reading Living with Psoriasis: PatientsLikeMe Member Lissa Featured on Patient Power
Someone Like Me
We are pleased to present a guest post by PatientsLikeMe member Jasmine (Jazz1982), who was diagnosed with multiple sclerosis (MS) in her mid-twenties. Don’t miss this beautiful essay about the commonalities between all patients who have lost functionality – regardless of how different their conditions might seem. I recently met someone that happened to be just like… Continue reading Someone Like Me
Spotlighted Blogger: Meet Jessica of “Jessica and Psoriasis”
Welcome to the latest installment of our “Spotlighted Blogger” series. This spring we are focusing on psoriasis patient bloggers, starting with Lissa back in March and Alisha B. a few weeks ago. Today, we’d like to introduce you to Jessica Gough, a 19-year-old from the UK who recently started a blog called Jessica and Psoriasis.… Continue reading Spotlighted Blogger: Meet Jessica of “Jessica and Psoriasis”
The “Immense Benefits” of Online Health Reporting: An Interview with ALS Study Author Dr. Thomas Meyer
Earlier this month, we told you about a new study showing that ALS patients reporting their health status over the Internet (using a rating scale known as the ALSFRS-R) is just as reliable as a trained nurse rating the patient’s score. Now, we’d like to share our interview with lead study author Dr. Thomas Meyer,… Continue reading The “Immense Benefits” of Online Health Reporting: An Interview with ALS Study Author Dr. Thomas Meyer