February is AMD/Low Vision Awareness Month, sponsored by Prevent Blindness America. Affecting part of the back of the eye called the macula, age-related macular degeneration (AMD) can cause the center area of your vision to become blurry or wavy. It can also create a blind spot right in the center of your vision. As the… Continue reading What Do You Know About Age-Related Macular Degeneration (AMD)?
NFL Player Steve Gleason’s Inspiring ALS Story
Did you catch the pre-game show before Sunday’s Super Bowl XLVI? If not, you missed a beautiful NBC piece about Steve Gleason, who spent seven seasons as a safety with the New Orleans Saints. Diagnosed with ALS a year ago, Gleason now walks with a cane, and his speech has been impacted. The new father… Continue reading NFL Player Steve Gleason’s Inspiring ALS Story
New Quality of Life Index and More for Psoriasis
Are you one of the roughly 700 patients with psoriasis at PatientsLikeMe? We’ve got some exciting new features just for you. At the end of 2011, we unveiled the Dermatology Life Quality Index (DLQI), a new 12-question survey that helps you measure how psoriasis affects your day-to-day life. Answer the questions regularly to produce a… Continue reading New Quality of Life Index and More for Psoriasis
Are You Decked Out in Red Today?
We are! Check out the PatientsLikeMe team members who donned red items (everything from ties to scarves to dresses) in support of National Wear Red Day. Here’s to increasing awareness of heart disease – the number one killer of women – in 2012. Stay tuned for more about cardiovascular health throughout February, which is Heart… Continue reading Are You Decked Out in Red Today?
Wear Red Tomorrow for Women’s Heart Health
Did you know that heart disease kills more women than all cancers combined? And that it’s largely preventable? Now you do – and there’s something you can do about it. Participate in National Wear Red Day® tomorrow, February 3, 2012. Better yet, get your friends and co-workers to dig into their closets as well. Together,… Continue reading Wear Red Tomorrow for Women’s Heart Health
Thriving Against Expectations: Ben Heywood’s Moving TEDx Cambridge Talk
Last November, we shared our takeaways from TEDx Cambridge, a one-day event featuring 30+ speakers and lots of Ideas Worth Spreading (TED’s mission). The theme for this particular gathering was “Thrive.” How can we as individuals – and communities – not just survive but thrive? One of the speakers to take a crack at that… Continue reading Thriving Against Expectations: Ben Heywood’s Moving TEDx Cambridge Talk
The Personalized Medicine World Conference in Photos and Tweets
Last week, PatientsLikeMe Co-Founder Jamie Heywood had the honor of speaking at the Personalized Medicine World Conference (PMWC), a two-day event held at the Computer History Museum in Silicon Valley. His presentation was entitled “Patient Driven Convergence of Clinical Discovery and Care.” In recognition of the conference’s venue as well as the role that technology… Continue reading The Personalized Medicine World Conference in Photos and Tweets
2011 “Wow Week” Highlights
Last June, we shared how our award-winning Clinical Trials tool was a product of “Wow Week,” which takes place every sixth week here at PatientsLikeMe. It’s essentially our version of Google’s “20-percent time,” or a period of unstructured time where our engineers have the freedom to work on their own ideas. We believe it fosters… Continue reading 2011 “Wow Week” Highlights
A Peek at the January Newsletter for Members
What kinds of things do we cover in our monthly newsletters for members? Take a look at the excerpt below from our January edition. Also, in case you didn’t know, anyone – whether a PatientsLikeMe member or not – can view our current and past newsletters in our Newsletter Archive. See what we’ve been up… Continue reading A Peek at the January Newsletter for Members
A New Way to Import “Blue Button” Patient Data from the VA
I love the conveniences that come from having my data moved around online (with my permission, of course). For example, TurboTax will pull all my information from my investment bank and the IRS, and then calculate how much I owe. With me doing hardly anything, I’m done in about 20 minutes! Similarly, Mint.com can pull… Continue reading A New Way to Import “Blue Button” Patient Data from the VA