Today, October 3rd, is World MSA Day. MSA stands for multiple system atrophy, a degenerative neurological disorder that causes symptoms similar to Parkinson’s disease. As a result, it is included in a group of diseases called “Parkinson-plus syndromes,” which have the classical symptoms of Parkinson’s (such as tremor and stiffness) as well as additional physical… Continue reading “A Mile and a Candle” for World MSA Day
Be of Good Heart Today
Today, September 29th, is World Heart Day. Sponsored by the World Heart Federation, this annual event was started in 2000 to raise awareness about heart disease and stroke, the world’s leading cause of death with more than 17.1 million lives lost each year. All around the globe, activities such as talks, screenings, walks, concerts and… Continue reading Be of Good Heart Today
How’s Your HDL and LDL?
September is National Cholesterol Education Month, which means it’s a good time to find out your total cholesterol levels as well as your HDL (“good” cholesterol) and LDL (“bad” cholesterol) levels. Have you had them checked in the last five years? More than 102 million Americans have a total cholesterol level at or above 200… Continue reading How’s Your HDL and LDL?
How Privacy Impacts Personalized Medicine
“We are standing on the edge of a new information age, and this new information age is going to clash with our existing understanding of concepts such as privacy and how we think about healthcare data and what should be done with it.” – Jamie Heywood PatientsLikeMe Chairman Jamie Heywood recently traveled to Zurich, Switzerland,… Continue reading How Privacy Impacts Personalized Medicine
See the PatientsLikeMeInMotion Program in Action
We’ve shared a lot of great photos on the blog lately of run/walk teams sponsored by PatientsLikeMeInMotion this year. Now you can learn more about this dynamic program in a more dynamic format with our new PatientsLikeInMotion video. Find out how to get involved, what sponsorship entails and how much PatientsLikeMe has donated towards our sponsored… Continue reading See the PatientsLikeMeInMotion Program in Action
TWO OUT OF THREE PATIENTS REPORT DISCONTINUING TYSABRI WITHOUT DOCTORS’ ADVICE
FOR IMMEDIATE RELEASE TWO OUT OF THREE PATIENTS REPORT DISCONTINUING TYSABRI WITHOUT DOCTORS’ ADVICE PatientsLikeMe Releases First in Series of Reports on Real-World Patient Experiences with Top Multiple Sclerosis Drugs CAMBRIDGE, Mass. — September 22, 2011 — In the first report of a series on Multiple Sclerosis (MS) disease modifying therapies(DMTs), PatientsLikeMe reveals that nearly two-thirds (64%)… Continue reading TWO OUT OF THREE PATIENTS REPORT DISCONTINUING TYSABRI WITHOUT DOCTORS’ ADVICE
Do You Know Someone with Dementia?
Today, September 21st, is World Alzheimer’s Day. For this annual event, Alzheimer’s associations around the globe are coming together to raise awareness about Alzheimer’s disease, which affects an estimated 36 million people worldwide. This degenerative brain syndrome impacts memory, thinking, behavior and emotion. Eventually, those affected require assistance with all aspects of daily life. The… Continue reading Do You Know Someone with Dementia?
Photo of the Week: Hamming It Up for MS Awareness
Sometimes you have to hog the spotlight to bring attention to your condition – in this case, multiple sclerosis. Please meet PatientsLikeMeInMotion team leader Pjohns, who was supported by family and friends as well as “Hammy Hog,” the mascot of the Rockford Icehogs hockey team, at a 2011 Walk MS event in Northwest Illinois. Congrats… Continue reading Photo of the Week: Hamming It Up for MS Awareness
PatientsLikeMeOnCall: Monitoring Health Hazards with Modern Tools
Welcome to the fifth installment of our latest PatientsLikeMeOnCall podcast series, entitled “It’s Friday – Let’s Journal Club.” This week’s guest is Dr. Taha Kass-Hout, Deputy Director of the Division of Notifiable Diseases and Healthcare Information at the CDC. He came by PatientsLikeMe headquarters recently to discuss the BioSense project, an initiative launched following 9/11… Continue reading PatientsLikeMeOnCall: Monitoring Health Hazards with Modern Tools