What Patients Are Saying About Yoga

Never done a downward dog? Now is your chance. September is National Yoga Awareness Month, a grassroots campaign to inspire a healthy lifestyle. As part of this national observance, those who have never experienced yoga can try it for free for a week at more than 1,600+ participating studios. Also, beginners and veterans alike are… Continue reading What Patients Are Saying About Yoga

Photo of the Week: A Gathering of Hearts

Last month, we featured a blog interview with ALS advocate Debra Quinn, who is the spokesperson for the Hearts for ALS NY organization. Today we’d like you to meet her PatientsLikeMeInMotion-sponsored team for the 2011 Hearts for ALS NY Walk, which took place on August 21, 2011, in Angelica, New York. Congrats to Debra (far… Continue reading Photo of the Week: A Gathering of Hearts

What Do You Know About Celiac Disease?

Gluten-free products are now readily available in many grocery stories – and for good reason. One in 133 Americans has celiac disease, an autoimmune digestive disease that damages the villi of the small intestine and interferes with the absorption of nutrients from food. As a result, people with celiac disease cannot tolerate gluten, a protein… Continue reading What Do You Know About Celiac Disease?

Our Pledge to You, the Patient

“We founded PatientsLikeMe on the concept that sharing health data could lead to a more empowered patient and better overall healthcare system. It’s an exciting and giant step forward for us as an industry as we unite around making health data more accessible to those that matter most – the patients.” – Ben Heywood, PatientsLikeMe… Continue reading Our Pledge to You, the Patient

“Go Back for the Future” of Parkinson’s Research

Haven’t heard of the Nike MAG shoe? Perhaps that’s because it’s only been worn by one person – the indelible Marty McFly (Michael J. Fox). Yet today, this rarest of Nike Footwear will become a reality for a lucky few. 1,500 pairs of “the most famous shoe never made” are being auctioned off on Ebay… Continue reading “Go Back for the Future” of Parkinson’s Research

Photo of the Week: Three Generations in Motion

A multiple sclerosis (MS) diagnosis affects the whole family, which is why it can be great to get the whole family involved in awareness activities. Please meet PatientsLikeMeInMotion team leader PepsiGirl, who was supported by several family members at a 2011 Walk MS event in her home state of New York. Congrats to PepsiGirl and… Continue reading Photo of the Week: Three Generations in Motion

September Is Recovery Month

Every September, the Substance Abuse & Mental Health Services Administration (SAMHSA) observes Recovery Month.  The goal is to promote the societal benefits of treatment for substance use and mental disorders, celebrate people in recovery, recognize treatment providers and spread the message that recovery is possible.  As the SAMHSA slogan says, “Prevention works, treatment is effective… Continue reading September Is Recovery Month

PatientsLikeMeOnCall: How Genetics Bears on Your Condition

Welcome to the fourth installment of our new PatientsLikeMeOnCall podcast series entitled “It’s Friday – Let’s Journal Club.” This week’s interview is with PatientsLikeMe’s own Catherine Brownstein, PhD, MPH, who recently won a highly competitive award from the International Congress of Human Genetics (ICHG). One of our in-house Research Scientists, Dr. Brownstein captivated PatientsLikeMe headquarters… Continue reading PatientsLikeMeOnCall: How Genetics Bears on Your Condition

Help Patients Live Well with ALS

In February, we told you about veteran ALS member SmoothS and his efforts to bring to life the first and only fully automated, skilled service residence specializing in ALS. The Leonard Florence Center for Living opened in November 2010 in Chelsea, Massachusetts, and now SmoothS is working on bringing his groundbreaking concept to other cities.… Continue reading Help Patients Live Well with ALS

Photo of the Week: Newly Diagnosed Patients in Motion

For a newly diagnosed patient, organizing a run/walk/bike team sponsored by PatientsLikeMeInMotion can be a way to take action, “go public” and make new connections. Please meet Monkey Mamma, who was diagnosed with epilepsy last year, at the Epilepsy Foundation‘s Stroll for Epilepsy on April 9, 2011, in Dallas, Texas. Congrats to Monkey Mamma and all… Continue reading Photo of the Week: Newly Diagnosed Patients in Motion