“Today is a day of massive celebration of what health innovators have done,” said US Department of Health & Human Services’ Chief Technology Officer Todd Park this morning as he welcomed everyone to the 2nd Annual Health Data Initiative Forum (or “Health Data-Palooza,” as Park called it). The goal? To create “a self-propelled, open ‘ecosystem… Continue reading Improving the Clinical Trial Process with Shared Data
National Cancer Survivors Day: Meet a True Survivor
National Cancer Survivors Day was recently celebrated on June 5th. According to the organization behind it, the purpose of this annual event – now in its 24th year – is to “show the world that life after a cancer diagnosis can be meaningful and productive.” To help illustrate this inspiring message, we’d like to share… Continue reading National Cancer Survivors Day: Meet a True Survivor
Being an Advocate for ALS
Last month, we had the opportunity to interview PatientsLikeMe member t1961, who attended ALS Advocacy Day, held May 8-10, 2011, in Washington, DC. What does it mean to advocate for your disease on Capitol Hill? How can you personally make a difference? Check out the interview below to learn why this ALS patient felt the need… Continue reading Being an Advocate for ALS
Coping with Nerve Sensitivity
Do you suffer from nerve sensitivity – or a feeling akin to pins and needles? Known clinically as paresthesia, this uncomfortable sensation if often described as a tingling, pricking and/or creeping feeling. For some people with nerve sensitivity, it can be painful for clothing to touch your skin. Although there is no objective causes, nerve… Continue reading Coping with Nerve Sensitivity
One for All: The Opportunity to Make Patients’ Lives Better
“Patients are giving us their data, and we need to honor that by doing something that advances their disease, their cause, their power in the world.” – Jamie Heywood This week marks the fourth and final installment of our latest video series, which explores what the recent changes at PatientsLikeMe mean for you as well… Continue reading One for All: The Opportunity to Make Patients’ Lives Better
PatientsLikeMe “Express Yourself” Video Contest: Voting Ends Tomorrow!
Have you voted yet? Tomorrow, June 3, is the last day for you to decide the winner of the first-ever PatientsLikeMe “Express Yourself” Video Contest. We asked, “How has PatientsLikeMe changed your life?” to our members, and they have responded with creative and amazing videos that the entire world can now see. Five winners will… Continue reading PatientsLikeMe “Express Yourself” Video Contest: Voting Ends Tomorrow!
30 Years of AIDS
On June 5, 1981, the Centers for Disease Control’s Morbidity and Mortality Weekly Report (MMWR) described the first reported cases of AIDS in the US. Thirty years later, AIDS.gov is observing this date with a campaign called “The Federal Government and 30 Years of AIDS.” What have we learned about Human Immunodefiency Virus (HIV) and… Continue reading 30 Years of AIDS
Get to Know a Mental Health Patient Today
If one in four American adults is affected by a mental health condition, that means someone within your immediate friends and family could be struggling with a treatable condition right now. Do you know who your “1 in 4” is? Or what signs to look for in someone who may be depressed? Two weeks ago,… Continue reading Get to Know a Mental Health Patient Today
What’s Your Experience with Cinarizina?
Cinarizina is an international brand of the prescription drug Cinnarizine, an antiemetic (anti-nausea) agent used for symptoms of inner ear disorders. These symptoms may include vertigo, dizziness, tinnitus, nystagmus, nausea and vomiting. Cinarizina is also used to prevent motion sickness when taken in advance. If you’ve tried Cinarizina, we encourage you share your experiences at… Continue reading What’s Your Experience with Cinarizina?
One for All: How Medical Research Is Changing Right Before Our Eyes
“I think what’s really exciting is the scale we’re operating under. My PhD was conducted with 80 patients. Last week, I got survey responses from 4,000 patients in a week. That is unparalleled power in the research world.” – Paul Wicks, PhD This week marks the third installment of our latest video series, which explores… Continue reading One for All: How Medical Research Is Changing Right Before Our Eyes