Today’s guest post is written by PatientsLikeMe member Jeri Burtchell (TickledPink), who has been living with multiple sclerosis (MS) for 13 years. A tie dye apparel store owner and mother of two, she writes a blog entitled “Gilenya and Me: My Story of Being an MS Patient, a Hypochondriac and a Guinea Pig.” Her patient… Continue reading How Social Media Is Changing Research (Part II): A Guest Post by MS Clinical Trial Participant and Blogger Jeri Burtchell
How Social Media Is Changing Research (Part I): A Guest Post by MS Clinical Trial Participant and Blogger Jeri Burtchell
Today’s guest post is written by PatientsLikeMe member Jeri Burtchell (TickledPink), who has been living with multiple sclerosis (MS) for 13 years. A tie dye apparel store owner and mother of two, she writes a blog entitled “Gilenya and Me: My Story of Being an MS Patient, a Hypochondriac and a Guinea Pig.” Her patient… Continue reading How Social Media Is Changing Research (Part I): A Guest Post by MS Clinical Trial Participant and Blogger Jeri Burtchell
Add Your Voice During National Recovery Month
Are you in recovery from an addiction or mental health disorder – or do you know someone who is? The theme for National Recovery Month 2012, sponsored by the Substance Abuse and Mental Health Services Administration (SAMHSA), is “Join the Voices for Recovery: It’s Worth It!” There are several different ways to participate in this… Continue reading Add Your Voice During National Recovery Month
The Ride of His Life: An Interview with Prostate Cancer Survivor Wayne Sticha
“I wanted to share my story to, frankly, save other men’s lives. I discovered that very few knew anything about [prostate cancer]. Even less had had the PSA test.” – Wayne Sticha, 64, Founder of Ride for Dads Over the summer, we shared two interviews with PatientLikeMe members conducted by our partner Patient Power: one… Continue reading The Ride of His Life: An Interview with Prostate Cancer Survivor Wayne Sticha
Snapping the Glove on Prostate Cancer Awareness: An Interview with Dan Hennessey
Canadian Dan Hennessey (Goalie at PatientsLikeMe) started out as a prostate cancer patient. Today, following successful treatment, he is not only a prostate cancer survivor, but an author, speaker and activist in the prostate cancer awareness movement. In honor of National Prostate Cancer Awareness Month, we’ve interviewed Dan to learn about his experience and find… Continue reading Snapping the Glove on Prostate Cancer Awareness: An Interview with Dan Hennessey
Know Your Score for Prostate Cancer Awareness Month
Prostate cancer affects 1 in 6 men in the US and is the second leading cause of cancer-related deaths among men. As a result, it affects not just the men battling the disease but also their families, friends and communities. That’s why the White House has declared September to be National Prostate Cancer Awareness Month.… Continue reading Know Your Score for Prostate Cancer Awareness Month
Scenes from the PatientsLikeMe Company Picnic
Every summer, PatientsLikeMe pulls out the Nerf guns and throws a company picnic for our employees and their families. This year, the fun took place at Boston’s Museum of Science so that we could enjoy both the museum’s exhibits as well as its prime location on the Charles River. With the Boston skyline twinkling over… Continue reading Scenes from the PatientsLikeMe Company Picnic
The Joy of Being Helpful
Many patients with life-changing conditions report feelings of grief and guilt about no longer being able to do many of the things they did in the past. As a recent discussion in our forum revealed, however, patients are finding ways to reset their perspective and boost their self-esteem by focusing on what they are still… Continue reading The Joy of Being Helpful
PatientsLikeMe Exhibits at the American Academy of Dermatology Summer Meeting
As you know from our recent blog post, August is Psoriasis Awareness Month, and the psoriasis community at PatientsLikeMe has nearly 2,000 members. It’s only fitting that PatientsLikeMe spent last week connecting with others focused on skin health at the American Academy of Dermatology (AAD) Summer Academy Meeting, an annual educational event for dermatology-focused medical professionals.… Continue reading PatientsLikeMe Exhibits at the American Academy of Dermatology Summer Meeting
$70,000 at Stake in the “Reporting Safety Events Challenge”
How serious is the U.S. Department of Health and Human Services’ Office of the National Coordinator for Health Information Technology (ONC) about increasing patient safety? So serious that they are running a contest challenging the best and brightest developers to create a platform that makes it easier to report a patient safety event electronically. The… Continue reading $70,000 at Stake in the “Reporting Safety Events Challenge”