Last week, we had the opportunity to be a part of the Association of Health Care Journalists (AHCJ) annual conference in Philadelphia, PA. Carla Johnson, medical writer for the Associated Press, invited PatientsLikeMe to be part of her session entitled “Tapping into the e-patient phenomenon.” It was a great opportunity for us to help healthcare… Continue reading The Patient Voice Heard Loud and Clear at AHCJ ’11
PatientsLikeMeOnCall™: “A Look Ahead” at Openness in Healthcare (Episode 4)
“I think we can see there are a lot of ways where openness can be powerful. What’s necessary is to help facilitate openness and reduce the barriers to sharing medical information.” – Ben Heywood PatientsLikeMe Co-Founder Ben Heywood has blogged previously about openness and sharing – and how important they are for patients. In this… Continue reading PatientsLikeMeOnCall™: “A Look Ahead” at Openness in Healthcare (Episode 4)
Have you experienced Lumiday side effects?
Wondering where you can learn about Lumiday Mood Enhancer or report Lumiday side effects? You’ve come to the right place. At PatientsLikeMe, more than 125,000 patients are sharing their experiences with all types of treatments, including prescription drugs, over-the-counter drugs, supplements and more. A dietary supplement, Lumiday Mood Enhancer contains Vitamins B1, 3, 5, 6,… Continue reading Have you experienced Lumiday side effects?
PatientsLikeMe® Poll Reveals Patients Share Health Data Online Prefer to Keep Quiet With Doctors, Employers
Patients Unveil Top Reasons Not to Share Health Information CAMBRIDGE, MA–(Marketwire – April 13, 2011) – According to a new PatientsLikeMe® Poll, almost one in three (29%) patients have withheld certain health information from their doctor. Of the 4,364 poll respondents, all of whom are members of PatientsLikeMe’s online health data-sharing community (www.patientslikeme.com), nearly half (47%)… Continue reading PatientsLikeMe® Poll Reveals Patients Share Health Data Online Prefer to Keep Quiet With Doctors, Employers
News Release: Survey Reveals PatientsLikeMe® Helps People With Epilepsy Improve Seizure Understanding and Medication Adherence
In today’s news… ******** BRUSSELS, BELGIUM and CAMBRIDGE, MA–(Marketwire – April 12, 2011) – In a survey amongst people with epilepsy in the U.S. who have joined PatientsLikeMe®, the leading health data-sharing website for patients, respondents indicate that better seizure understanding and improved adherence are key benefits of using the site. The majority of respondents… Continue reading News Release: Survey Reveals PatientsLikeMe® Helps People With Epilepsy Improve Seizure Understanding and Medication Adherence
PatientsLikeMe Calls All Patients With Any Condition to Join
Today, PatientsLikeMe announces its expansion in the following news release. (You can click on the image on the right to see a visualization of real-time profile views on PatientsLikeMe.) ***** CAMBRIDGE, MA–(Marketwire – April 11, 2011) – Today, PatientsLikeMe (www.patientslikeme.com) announces the expansion of its platform and invites patients with any condition to join. The five-year-old… Continue reading PatientsLikeMe Calls All Patients With Any Condition to Join
What Kind of Scars Do You Have?
A recent search of the PatientsLikeMe forum reveals that there are thousands of posts that mention the word “scar.” Looking closer, you’ll see that there are discussions of physical scars – for example, from certain procedures or diseases – as well emotional scars. One moving thread – entitled “A letter to help others understand you… Continue reading What Kind of Scars Do You Have?
How Would You Evaluate Your Experience with Myrin P-Forte?
Myrin P-Forte is an anti-tuberculosis agent that contains ethambutol, rifampicin, isoniasad and pyrazinamide. An anti-mycobacterial treatment, ethambutol eliminates certain bacteria that cause tuberculosis and is used in combination with other drugs to treat tuberculosis and prevent transmission to others. At PatientsLikeMe, where more than 120,000 patients are sharing their experiences with conditions, symptoms, treatments and… Continue reading How Would You Evaluate Your Experience with Myrin P-Forte?
Tell the World: The PatientsLikeMe “Express Yourself” Video Contest
It’s time to dust off your home video skills! We are excited to announce the first-ever PatientsLikeMe “Express Yourself” Video Contest. Every day, patients like you are sharing your health data and experiences at PatientsLikeMe in order to take control of your health and help others. Now we are inviting you to create a video… Continue reading Tell the World: The PatientsLikeMe “Express Yourself” Video Contest
See What Other Patients Are Saying About Metoprolol Succ ER
Metoprolol Succ ER (the common abbreviation for Metoprolol Succinate ER and a generic form of Toprol XL) is an extended release formulation of the drug metoprolol, which is used for the treatment of angina or hypertension and to reduce mortality/hospitalization in patients with heart failure who are already receiving cardiac and diuretic medications. At PatientsLikeMe,… Continue reading See What Other Patients Are Saying About Metoprolol Succ ER