Look Ahead with PatientsLikeMeOnCall™

PatientsLikeMeOnCall™  is proud to present a new podcast series called “A Look Ahead.”  Through these dynamic podcasts, we will be diving into the major shifts PatientsLikeMe sees ahead for patients, patient care and patient/industry collaboration. At the end of 2010, PatientsLikeMeOnCall released an episode called “The Patient Rules.” In this group podcast, we sat down with… Continue reading Look Ahead with PatientsLikeMeOnCall™

Have you experienced Catalyn side effects?

Looking for a place to share and learn about Catalyn side effects – either the side effects you experienced while taking this supplement or the lack thereof?  You’ve come to the right place. Catalyn is a multivitamin, mineral and trace mineral concentrate that contains Vitamin B6, Riboflavin, Thiamine, Vitamin D, Vitamin C, Vitamin A and… Continue reading Have you experienced Catalyn side effects?

What Other Patients Are Saying About Solupred

Solupred is an international brand of prednisolone, a widely prescribed corticosteroid that modifies the body’s immune response and decreases inflammation. It is used to treat a host of inflammatory and autoimmune health conditions, including multiple sclerosis (acute exacerbations), organ rejection, lupus, psoriasis, asthma and ulcerative colitis. At PatientsLikeMe, where more than 120,000 patients are sharing… Continue reading What Other Patients Are Saying About Solupred

One for All: Ways You Can Share, Find and Learn at PatientsLikeMe

When patients join our site, a common question we get is, “Now that I’ve signed up, what can I do here?” One answer is that you can chart the real-world course of your disease and compare it against other patients. But that sounds a little complex, doesn’t it? If we break it down into simpler… Continue reading One for All: Ways You Can Share, Find and Learn at PatientsLikeMe

Share and Compare: What Have You Learned with InstantMe?

How are you feeling today – honestly? In December, PatientsLikeMe launched a new feature called InstantMe. It’s designed to allow you to chart how you are feeling day in and day out. Is today a bad day? Record it on InstantMe (found on your profile), and if you’d like, add a note explaining what’s going… Continue reading Share and Compare: What Have You Learned with InstantMe?

How Would You Evaluate Your Experience with Muscadol?

Muscadol is an international brand of medication that combines acetaminophen, a widely used analgesic (pain reliever), with orphenadrine citrate, a skeletal muscle relaxant. It is used in the treatment of muscle spasm and tremors associated with various musculoskeletal conditions. At PatientsLikeMe, where more than 120,000 patients are sharing their experiences with conditions, symptoms, treatments and… Continue reading How Would You Evaluate Your Experience with Muscadol?

Learn from Others with BVVP (Positional Vertigo)

BVVP (more commonly abbreviated as BPPV) stands for benign paroxysmal positional vertigo.  A disorder caused by inner ear problems, it is characterized by repeated episodes of positional vertigo that are triggered by repositioning or moving the head.  This produces a spinning sensation that disorients the BVVP/BPPV patient. At PatientsLikeMe, where more than 120,000 patients are… Continue reading Learn from Others with BVVP (Positional Vertigo)

Patient Choices: The Deciding Factors

In a recent series on patient choices, we’ve highlighted a lot of the decisions patients like you have to make on a daily basis.  A few weeks ago, David S. Williams kicked off the series with a blog about the treatment and career decisions that patients like you, and his mother, have made.  Kate Brigham… Continue reading Patient Choices: The Deciding Factors

Rare Disease Day 2011: “Rare, But Equal”

For patients with prevalent diseases, it may be easy to find others with your condition.  You meet them at clinics; you run into them when seeing your specialist; or you participate in one of the support groups in your area.  For those with rare diseases, the simple act of finding another patient like you isn’t… Continue reading Rare Disease Day 2011: “Rare, But Equal”

What Does it Mean When You Have Cold Legs?

If you’ve experienced cold legs yourself, we encourage you to share your experiences to help other patients. PatientsLikeMe’s unique data-sharing platform allows you to share detailed data about all types of treatments, interventions, and lifestyle modifications that have helped you or simply had no effectHave you suddenly realized that your legs are cold? You’re sitting… Continue reading What Does it Mean When You Have Cold Legs?