Since the launch of the PatientsLikeMe Transplants Community in March, more than 1400 patients have come together to share and learn from their transplant journeys. Thanks to our partnership with the National Kidney Foundation serving New England, BionicMan was one of the first transplant recipients to sign up and played a critical role in helping… Continue reading Meet Our Transplant Community’s BionicMan
ALS Awareness 2010: A Four Year Journey With Our PALS
Four years ago this Spring, PatientsLikeMe launched the ALS community with very specific goals in mind – to help patients like you take control of your disease, share and learn from one another, have a voice in real-world research and inform the companies that make your drugs and can improve your care. Together, we have… Continue reading ALS Awareness 2010: A Four Year Journey With Our PALS
Transparency, Openness and Privacy
The following message was sent this morning to all members of PatientsLikeMe. Please read what we have to say about openness, sharing and its privacy implications and join the conversation. **** Dear PatientsLikeMe Members, What are the privacy implications of sharing in this open, online community? We talk a lot about this and, as a… Continue reading Transparency, Openness and Privacy
ALS Awareness Month: ALS Patients Are “In Motion”
Did you know there are more than 4,500 patients in the PatientsLikeMe ALS community sharing and learning from each other every day? Outside of our community, patients are also teaming up to raise awareness and money for ALS research. Here is a highlights video of ALS members who have participated in our PatientsLikeMeInMotionTM program, stepping… Continue reading ALS Awareness Month: ALS Patients Are “In Motion”
PatientsLikeMe Teams Up With The National Kidney Foundation Serving New England
We are proud to announce a new partnership between PatientsLikeMe and the National Kidney Foundation serving New England. In the beginning stages of developing the PatientsLikeMe Transplant Community, we worked together with the National Kidney Foundation serving New England to give interested patients an opportunity to share their transplant journey and help shape this new… Continue reading PatientsLikeMe Teams Up With The National Kidney Foundation Serving New England
An Interview with DannyD to Kick-Off ALS Awareness Month
It’s ALS Awareness Month! Did you know there are more than 4,500 patients with ALS (PALS) in PatientsLikeMe’s flagship community? We’ll be updating you all month on what is being learned by and from our PALS, so stay tuned. To kick us off, here is an interview with one of our long-time, three-star members –… Continue reading An Interview with DannyD to Kick-Off ALS Awareness Month
PatientsLikeMeInMotion at 2010 Parkinson’s Unity Walk
Last weekend, we headed to New York City in great anticipation of the 2010 Parkinson’s Unity Walk held each year in Central Park. We were excited once again to meet members of Team PatientsLikeMe, a group of patients who travel from across the country to meet one another and work tirelessly to raise money each… Continue reading PatientsLikeMeInMotion at 2010 Parkinson’s Unity Walk
Tell the World: Daddytom Shares His Experiences with Parkinson’s
To continue our series in honor of Parkinson’s Awareness Month, here’s another interview to bring you “the patient voice.” We recently featured this interview with three-star member daddytom in the April edition of our Parkinson’s Community newsletter. Read on to learn what he has to say about finding courage, recognizing mentors and raising awareness about… Continue reading Tell the World: Daddytom Shares His Experiences with Parkinson’s
Tell The World: Parkinson’s Patients are “In Motion”
The PatientsLikeMeInMotion sponsorship program has been a tremendous success so far this year! Sponsorship requests from members participating in nonprofit events are flying in by the second from all over the country. It’s exciting to see our members are as active offline as they are online about raising awareness of their condition. The PatientsLikeMeInMotion program… Continue reading Tell The World: Parkinson’s Patients are “In Motion”
Tell the World: Parkinson’s Patients Unite Online and Off
At PatientsLikeMe, thousands of patients are uniting online to share health data, find patients like them, and to learn from one another. Since this is Parkinson’s Awareness Month, we wanted to highlight an off-line event that also represents unity – aptly named the Unity Walk. The annual event, which takes place next weekend in New… Continue reading Tell the World: Parkinson’s Patients Unite Online and Off