I Thought About the CAR-T Cells Getting into My Brain and Spinal Cord Where Other Drugs Couldn’t Welcome to PatientsLikeMe’s new series “Why I Joined a Clinical Trial” in which we feature patient perspectives on the clinical trial experience. In this first edition, we share the story of Corinna E. who is living with multiple… Continue reading Why I Joined a Clinical Trial
Category: Patient Experiences
How Your Estradiol Levels Affect Retrieval and Transfer Outcomes
Preparing to either freeze your eggs or undergo IVF means you will be learning all about female fertility hormones, including estradiol. Estradiol is an important hormone used to prepare your body for egg retrieval and transfer. We are going to break down what estradiol is (and how it differs from estrogen), why it’s tested during… Continue reading How Your Estradiol Levels Affect Retrieval and Transfer Outcomes
Regular Ovulation and Still Not Pregnant? 5 Ways To Improve Your Chances
If you’re TTC you’ve become well versed in all the things that need to fall into place in order to get pregnant. One of those being ovulation. Ovulation is key in conceiving, but ovulating isn’t a guarantee of pregnancy. By ovulating, your body might be releasing eggs, yet other factors can stand in the way.… Continue reading Regular Ovulation and Still Not Pregnant? 5 Ways To Improve Your Chances
Early Intervention for Babies: Key Signs, Services, and Support Options
Admitting or accepting your baby is behind the developmental milestones is worrisome and it takes a lot of courage to get to that point. You’ve probably scanned Reddit or searched for answers with the intention of hearing your child is fine because another person’s child was late too and look at how great they turned… Continue reading Early Intervention for Babies: Key Signs, Services, and Support Options
Why Child Milestone Charts Are Ranges Not Rules
Every baby develops at their own pace. Milestone charts can be helpful guides for tracking progress but they are not a rigid schedule your child must follow. The developmental milestones refer to the behaviors and physical abilities that infants and toddlers typically achieve at certain ages. Yet there’s a wide range of what’s considered typical. … Continue reading Why Child Milestone Charts Are Ranges Not Rules
What is Friedreich’s Ataxia
Friedreich’s ataxia (FA or FRDA) is a rare genetic disorder that affects the body’s nerves and muscles. It is an inherited recessive mutation in the gene called FXN (frataxin) which leads to a deficiency of a protein that cells need for energy production. Without enough frataxin certain cells within the nervous system, heart, and muscles… Continue reading What is Friedreich’s Ataxia
What Every Woman Needs to Know About Menopause According to an Expert OB/GYN
What To Know Menopause Decoded With Honest Answers From a Leading OB/GYN For too long, menopause has been treated like something women just have to endure in silence; an inevitable hardship you’re supposed to grit your teeth and survive. But those days are over. You don’t have to suffer through hot flashes, sleepless nights, or… Continue reading What Every Woman Needs to Know About Menopause According to an Expert OB/GYN
Kidney-Friendly BBQ Swaps for Summer Cookouts
What to Know Kidney-Friendly Summer Grilling Ideas Summer is here, and that means BBQ season is in full swing! If you’re managing chronic kidney disease (CKD), you might feel like traditional cookouts are off-limits. The good news is, you can still enjoy the flavors of summer with a few simple swaps. Whether you’re the host… Continue reading Kidney-Friendly BBQ Swaps for Summer Cookouts
Mary Ellen’s Story: Living With Multiple Sclerosis
Mary Ellen’s Story of living with multiple sclerosis and advises others to advocate for themselves before settling for the worst case scenario. We had the pleasure of talking with PatientsLikeMe member, Mary Ellen, a non-profit leader living with multiple sclerosis. Like so many others, Mary Ellen experienced symptoms of multiple sclerosis throughout her life but… Continue reading Mary Ellen’s Story: Living With Multiple Sclerosis
How to Cope with the Emotional Impact of a MASH Diagnosis
Medically reviewed and verified by Kate Burke, MD, MHA Being diagnosed with any chronic condition can feel like having a 10-ton weight dropped on your back. There are side effects to learn, treatment plans to adhere to, and appointments to schedule. For something like metabolic dysfunction-associated steatohepatitis (MASH), you may leave your doctor’s office with… Continue reading How to Cope with the Emotional Impact of a MASH Diagnosis