Living with a chronic illness or disability is already a full-time job. Managing symptoms, appointments, and daily life can take a lot of energy. On top of that, asking your employer for accommodations can feel overwhelming and even scary. What is the best way to approach having that talk? Here, PatientsLikeMe breaks the process so… Continue reading What Helped Reduce the Mental Load of Asking for Accommodations at Work
Category: Patient Experiences
Invisible Work: Energy Banking and How to Navigate Standing Room Only Events When Sitting Is Not Guaranteed
There are so many tasks throughout the day that ask you for a small amount of energy. Washing some dishes, walking to the store, helping your partner move furniture around. In a vacuum, each individual event may be easy to do. But added up over time it can very difficult, particularly for people with chronic… Continue reading Invisible Work: Energy Banking and How to Navigate Standing Room Only Events When Sitting Is Not Guaranteed
SoundsLikeMe: When Symptoms Persist Despite Treatment What Are the Next Options?
For many people, healthcare follows the same path. You notice something is not right, you see a doctor, get a diagnosis, and start treatment. Often, that treatment works! Your symptoms improve and you move forward. But for some the journey is far more complicated. Maybe the medications help, but not enough. Maybe the side effects… Continue reading SoundsLikeMe: When Symptoms Persist Despite Treatment What Are the Next Options?
Together with PLM: What Changes in a Marriage When One Partner Becomes a Caregiver
When people imagine growing older together, they picture the gentle parts of life. They imagine traveling together or visiting grandkids. What they usually do not think about is the moment when one spouse begins needing help with daily tasks. The day medications and doctor appointments start shaping the schedule. The moment marriage quietly expands to… Continue reading Together with PLM: What Changes in a Marriage When One Partner Becomes a Caregiver
The Questions You’re Allowed to Ask Clinical Trial Coordinators
For many people, a clinical trial is a pretty daunting undertaking. There were over 570,000 clinical trials being conducted around the world in 2024, according to this report. About 164,000 of these were in the United States, and the trend since the year 2000 has been more and more are being added each year. A… Continue reading The Questions You’re Allowed to Ask Clinical Trial Coordinators
How Strict Do You Really Need to Be With Your Diet After a Heart Attack?
Having a heart attack is a life-changing experience. In the days and weeks that follow, you have to contend with an onslaught of information and changes! There is a lot of advice to take in about what you should and should not do. Diet is one of the things that you will certainly need to… Continue reading How Strict Do You Really Need to Be With Your Diet After a Heart Attack?
How to Talk to a Chatbot About Your Health
PatientsLikeMe now has a new A.I. Personal Health Navigator specifically trained to help people manage their health more effectively! Called Ella, this new interface is a great source of information for people to turn to when they have questions about treatments, symptoms, or roadblocks in their care. You may have noticed chatbots popping up across… Continue reading How to Talk to a Chatbot About Your Health
Letting Go of Expectations & Creating Meaningful Holiday Traditions
The holidays can bring a lot of pressure, with endless to-do lists, packed calendars, and that feeling that everything has to be picture-perfect. This blog is all about easing up on perfectionism, setting healthy boundaries, simplifying your schedule, and paying attention to what really matters. You’ll also get ideas for meaningful, low-stress traditions that fit… Continue reading Letting Go of Expectations & Creating Meaningful Holiday Traditions
The Best Time of Day to Exercise During Menopause
Menopause can bring all sorts of changes. Fatigue, weight gain, mood swings, and restless nights, just to name a few. Staying active is one of the best ways to support your body through it all, but many women wonder: is there a best time of day to work out during menopause? In this blog, we’ll… Continue reading The Best Time of Day to Exercise During Menopause
How Organizing Your Space Helps You Sleep Better
The average person spends about one third of their life asleep. But many of us struggle with sleep. Whether it is trouble getting to sleep or staying asleep, the majority of people could benefit from improvements. A survey of over 5,000 PatientsLikeMe members found that a bad night’s sleep is the norm! 64% of people… Continue reading How Organizing Your Space Helps You Sleep Better