Medically reviewed and verified by Kate Burke, MD, MHA Cortisol is one of the most important hormones in your body. It helps you respond to stress, regulates your metabolism, controls blood pressure, and reduces inflammation. People with congenital adrenal hyperplasia (CAH) need to pay special attention to their cortisol levels, as their bodies may not… Continue reading The Role of Cortisol in the Body
Category: Patient Experiences
What is Hormone Therapy? Treatment for CAH
Medically reviewed and verified by Kate Burke, MD, MHA Are you familiar with hormone therapy? This treatment method is used for different medical conditions, especially those that involve hormone imbalances. One condition where hormone therapy plays an essential role is congenital adrenal hyperplasia (CAH). CAH is a genetic disorder that affects the adrenal glands, causing… Continue reading What is Hormone Therapy? Treatment for CAH
Signs of an Adrenal Crisis and How to Manage it
Medically reviewed and verified by Kate Burke, MD, MHA Parents of children with congenital adrenal hyperplasia have a lot to deal with! You need to stay on top of your child’s appointments, make sure they get the education and support they need, prepare them for adulthood and their changing responsibilities, all while living a full… Continue reading Signs of an Adrenal Crisis and How to Manage it
Understanding Kidney Disease in Children
Kidney disease in children is a critical health issue that typically goes unnoticed until it has progressed. While many people associate kidney problems with adults, children can also be affected by various conditions that impact kidney function. Understanding that children can develop kidney disease is the first step toward raising awareness, encouraging regular check-ups, and… Continue reading Understanding Kidney Disease in Children
How to Include Zucchini in Your Kidney-Friendly Diet
By: Kellsey Reed, RDN, LDN, PatientsLikeMe Contributor Zucchini is a versatile and nutritious vegetable that can be a delightful addition to your diet, even if you’re managing chronic kidney disease (CKD). However, there are some important factors to keep in mind to ensure that you enjoy zucchini in a way that aligns with your dietary… Continue reading How to Include Zucchini in Your Kidney-Friendly Diet
Managing Pregnancy and Fertility with CAH
Congenital adrenal hyperplasia (CAH) is a group of genetic disorders that affect the adrenal glands, leading to an imbalance in hormone production. Women with CAH often face unique challenges when it comes to fertility and pregnancy. They can face obstacles that women without the disease do not. Understanding these barriers is an important part of… Continue reading Managing Pregnancy and Fertility with CAH
Understanding Your Endocrinologist: A Guide For CAH Patients
If you or your child has been diagnosed with congenital adrenal hyperplasia (CAH), you’re likely to have a lot of questions. One of the most important healthcare professionals you will meet with on your journey is an endocrinologist. This guide will help you understand who an endocrinologist is, how they can assist you, and what… Continue reading Understanding Your Endocrinologist: A Guide For CAH Patients
Diet and Nutrition Advice for CAH
Medically reviewed and verified by Kate Burke, MD, MHA Raising a child with a medical condition like congenital adrenal hyperplasia (CAH) is a challenge! This is especially true when it comes to managing their diet and nutrition. CAH is a complex condition that affects the adrenal glands. Proper dietary management is an important part of… Continue reading Diet and Nutrition Advice for CAH
7 Strategies for Enhancing Health and Wellness with Chronic Conditions
Integrating Lessons Learned for Enhancing Health Over the past seven weeks, we’ve explored various ways to enhance well-being, offering insights on living a healthier and more fulfilling life. From the power of health perception to managing personal triggers, these themes combine to form a comprehensive approach to personal wellness. Here’s a summary of our key… Continue reading 7 Strategies for Enhancing Health and Wellness with Chronic Conditions
What’s the Link Between Sugar and Type 1 Diabetes?
Type 1 diabetes is an autoimmune disease where the body’s immune system mistakenly attacks and destroys the cells in the pancreas that make insulin. Insulin helps move sugar from the blood into the cells, where the body uses it for energy. Without enough insulin, blood sugar builds up in the blood, leading to high blood… Continue reading What’s the Link Between Sugar and Type 1 Diabetes?