Say hi to Gus, another member of your 2015-2016 PatientsLikeMe Team of Advisors. Gus is someone who’s been very competitive and focused, has always felt that there was nothing he couldn’t accomplish or overcome, and spreads positivity wherever he goes. So when he was diagnosed with familial ALS, positive SOD1 gene – unknown variant, in… Continue reading Meet Gus from the PatientsLikeMe Team of Advisors
Category: Patient Experiences
More than heartburn: GERD awareness around Thanksgiving
To a lot of folks, this time in November means a holiday feast with all the trimmings – turkey, stuffing, mashed potatoes, pies and other rich foods. But for people living with gastroesophageal reflux disease (GERD), it might mean something different. Today marks the beginning of the 17th Annual GERD Awareness Week (November 23-29). GERD is… Continue reading More than heartburn: GERD awareness around Thanksgiving
Meet Allison from the PatientsLikeMe Team of Advisors
Meet Allison, one of your 2015-2016 PatientsLikeMe Team of Advisors. Allison is living with bipolar II, has been a PatientsLikeMe member since 2008 and is a passionate advocate for people living with a mental health condition. Refusing to let her condition get the best of her, she partners with her family to self-assess her moods… Continue reading Meet Allison from the PatientsLikeMe Team of Advisors
“I am not a quitter, I never have been” – An interview with lung cancer member Jacquie
For Jacquie (Jacquie1961), a business owner and entrepreneur from New Mexico, 2013 was the worst year of her life – she’d lost two beloved pets to old age and then was diagnosed with lung cancer, which soon turned into colon cancer. After rigorous chemotherapy and the adoption of a new dog, Roman, Jacquie joined PatientsLikeMe… Continue reading “I am not a quitter, I never have been” – An interview with lung cancer member Jacquie
The Schwartz Center for Compassionate Healthcare names their National Compassionate Caregiver of the Year Award recipient
Last night, our partners at the Schwartz Center for Compassionate Healthcare announced the recipient of their National Compassionate Caregiver of the Year (NCCY) Award, a national recognition program that honors outstanding healthcare providers who display extraordinary devotion and compassion in caring for patients and families. Of six nominees, this year’s NCCY Award recipient is Rick Boyte,… Continue reading The Schwartz Center for Compassionate Healthcare names their National Compassionate Caregiver of the Year Award recipient
Getting “Patients Included” right Part II: Planning a patient-centric event
You may remember Part I of this blog that focused on the experiences of two PatientsLikeMe members who attended the Kidney Health Initiative’s (KHI) workshop, “Understanding patients’ preferences: Stimulating medical device development in kidney disease,” back in August. KHI is a partnership between the U.S. Food and Drug Administration (FDA) and the American Society of… Continue reading Getting “Patients Included” right Part II: Planning a patient-centric event
Compassion for all: Krista Nelson, MSW, LCSW, OSW-C – Schwartz Center NCCY Award finalist
Today, we’re happy to introduce the fourth of six nominees for the National Compassionate Caregiver of the Year (NCCY) Award, presented by our friends at the Schwartz Center for Compassionate Healthcare. We’ve already featured Rick Boyte, MD, Melody J. Cunningham, MD and Cheryl D. Kane, MEd, BSN, RN. Krista Nelson, MSW, LCSW, OSW-C Providence Cancer… Continue reading Compassion for all: Krista Nelson, MSW, LCSW, OSW-C – Schwartz Center NCCY Award finalist
World Diabetes Day: Act today to change tomorrow
Diabetes affects almost 400 million adults[1] around the world and contributes to nearly 5 million annual deaths[2]. November is American Diabetes Month, but on November 14, the entire world joins together to unite their voices against this disease on World Diabetes Day (WDD). It was started back in 1991 by the International Diabetes Federation (IDF).… Continue reading World Diabetes Day: Act today to change tomorrow
Compassion for all: Melody J. Cunningham, MD – Schwartz Center NCCY Award finalist
We’ve already introduced you to Rick Boyte, MD, one of the finalists for the National Compassionate Caregiver of the Year (NCCY) Award presented by our partners at the Schwartz Center for Compassionate Healthcare. Today, we’re happy to introduce you to another nominated healthcare provider who has displayed extraordinary devotion and compassion in caring for patients… Continue reading Compassion for all: Melody J. Cunningham, MD – Schwartz Center NCCY Award finalist
Joining the effort to find answers from brain diseases and injuries
In honor of Veterans Day, we wanted to share two stories from our partner, One Mind. First, the story of retired Colonel Gregory Gadson, who was wounded during his military service and was living with post-traumatic stress (PTS). PTS affects more than 7.7 million Americans each year. The second video shares the story of Roxana… Continue reading Joining the effort to find answers from brain diseases and injuries