Are you in recovery from an addiction or mental health disorder – or do you know someone who is? The theme for National Recovery Month 2012, sponsored by the Substance Abuse and Mental Health Services Administration (SAMHSA), is “Join the Voices for Recovery: It’s Worth It!” There are several different ways to participate in this… Continue reading Add Your Voice During National Recovery Month
Category: Patient Experiences
The Ride of His Life: An Interview with Prostate Cancer Survivor Wayne Sticha
“I wanted to share my story to, frankly, save other men’s lives. I discovered that very few knew anything about [prostate cancer]. Even less had had the PSA test.” – Wayne Sticha, 64, Founder of Ride for Dads Over the summer, we shared two interviews with PatientLikeMe members conducted by our partner Patient Power: one… Continue reading The Ride of His Life: An Interview with Prostate Cancer Survivor Wayne Sticha
Snapping the Glove on Prostate Cancer Awareness: An Interview with Dan Hennessey
Canadian Dan Hennessey (Goalie at PatientsLikeMe) started out as a prostate cancer patient. Today, following successful treatment, he is not only a prostate cancer survivor, but an author, speaker and activist in the prostate cancer awareness movement. In honor of National Prostate Cancer Awareness Month, we’ve interviewed Dan to learn about his experience and find… Continue reading Snapping the Glove on Prostate Cancer Awareness: An Interview with Dan Hennessey
Know Your Score for Prostate Cancer Awareness Month
Prostate cancer affects 1 in 6 men in the US and is the second leading cause of cancer-related deaths among men. As a result, it affects not just the men battling the disease but also their families, friends and communities. That’s why the White House has declared September to be National Prostate Cancer Awareness Month.… Continue reading Know Your Score for Prostate Cancer Awareness Month
Scenes from the PatientsLikeMe Company Picnic
Every summer, PatientsLikeMe pulls out the Nerf guns and throws a company picnic for our employees and their families. This year, the fun took place at Boston’s Museum of Science so that we could enjoy both the museum’s exhibits as well as its prime location on the Charles River. With the Boston skyline twinkling over… Continue reading Scenes from the PatientsLikeMe Company Picnic
The Joy of Being Helpful
Many patients with life-changing conditions report feelings of grief and guilt about no longer being able to do many of the things they did in the past. As a recent discussion in our forum revealed, however, patients are finding ways to reset their perspective and boost their self-esteem by focusing on what they are still… Continue reading The Joy of Being Helpful
$70,000 at Stake in the “Reporting Safety Events Challenge”
How serious is the U.S. Department of Health and Human Services’ Office of the National Coordinator for Health Information Technology (ONC) about increasing patient safety? So serious that they are running a contest challenging the best and brightest developers to create a platform that makes it easier to report a patient safety event electronically. The… Continue reading $70,000 at Stake in the “Reporting Safety Events Challenge”
Redesigning Healthcare: Guest Post by Kirt Hine
Today’s guest post is written by Kirt Hine, who was a research intern at PatientsLikeMe in June and July. On his last day, Kirt gave a presentation to the entire company about his experience at the 2012 Healthcare Experience Design Conference, held in Boston last March. It made such an impression that we asked him… Continue reading Redesigning Healthcare: Guest Post by Kirt Hine
PatientsLikeMe and Merck Establish Health Information Collaboration Focused on Psoriasis
Patient-Based Research Aims to Produce New Insights Into Most Common Autoimmune Disease in U.S. CAMBRIDGE, Mass. — Aug 13, 2012 — PatientsLikeMe announces it has entered into a collaboration with Merck, known as MSD outside the United States and Canada, to evaluate the impact of psoriasis on patients and to inform a novel approach to improving outcomes. “A… Continue reading PatientsLikeMe and Merck Establish Health Information Collaboration Focused on Psoriasis
Know Thyself. Quantify Thyself.
Are you someone who likes to track things about yourself? For example, do you keep an exercise log of how many reps you did – or a food journal that details what (and how much) you consumed? Do you monitor your health and disease progression at PatientsLikeMe? If so, you might not know it, but… Continue reading Know Thyself. Quantify Thyself.