Say hello to Hetlena (@TheLupusLiar) from the 2016-2017 Team of Advisors. We recently caught up with Hetlena and she chatted with us about some of the challenges she faces living with lupus and why she won’t let it stop her: “Putting off your aspirations, dreams, and wants due to the fear of what an illness… Continue reading Meet Hetlena from the PatientsLikeMe Team of Advisors
Tag: 2016-2017 Team of Advisors
Meet Ginny from the PatientsLikeMe Team of Advisors
Say hello to Ginny (Mrslinkgetter), a case manager and family partner with Youth Mobile Crisis Intervention living with depression and epilepsy. She’s also a member of the 2016-2017 Team of Advisors. Check out what Ginny had to say about living with depression and epilepsy, the loss of her son, and how being her own advocate… Continue reading Meet Ginny from the PatientsLikeMe Team of Advisors
Meet Cris from the PatientsLikeMe Team of Advisors
Say hello to Cris (@Criss02), another member of the 2016-2017 Team of Advisors. Cris is a proud grandparent and a vocal advocate for the ALS community. She sat down with us and opened up about what it’s really like to live with her condition. Cris recently presented at the ALS Advocacy conference in Washington D.C.,… Continue reading Meet Cris from the PatientsLikeMe Team of Advisors
Meet Gary from the PatientsLikeMe Team of Advisors
Meet Gary (tupelo), a husband, father and grandfather who lives with Parkinson’s disease. Gary’s also a member of the 2016-2017 Team of Advisors. He believes that physical exercise slows the progression of Parkinson’s and practices Tai Chi and Qigong on a regular basis. Check out Gary’s story and his outlook on life with Parkinson’s: “Accepting… Continue reading Meet Gary from the PatientsLikeMe Team of Advisors
Meet Jacquie from the PatientsLikeMe Team of Advisors
Say hello to Jacquie (@Jacquie1961), another member of the 2016-2017 Team of Advisors. We chatted with Jacquie recently about how she lives with her condition and what it meant to become part of this year’s Team of Advisors; “Joining the team is allowing me to…help others who are newly diagnosed or those who think they… Continue reading Meet Jacquie from the PatientsLikeMe Team of Advisors
Meet Glenda from the PatientsLikeMe Team of Advisors
Meet Glenda (gagafor2), a member of the 2016-2017 Team of Advisors. Glenda is a wife, mother and grandmother who finds great joy in making others happy. She’s also living with idiopathic pulmonary fibrosis (IPF). Recently, Glenda told us about coming to terms with the “unknown” in her future and coping with anxiety: “PatientsLikeMe became… Continue reading Meet Glenda from the PatientsLikeMe Team of Advisors
Meet Laura from the PatientsLikeMe Team of Advisors
Say hello to Laura (thisdiva99), another member of your 2016-2017 Team of Advisors. Laura chatted with us about what it’s like to live with bipolar disorder and why she thinks it’s essential to find and connect with others who live with the same condition: “It is of the utmost importance to connect with other… Continue reading Meet Laura from the PatientsLikeMe Team of Advisors
Meet John from the PatientsLikeMe Team of Advisors
Have you met John (JohnJFB126)? He’s another member of the 2016-2017 Team of Advisors. John is a musician, husband and father of four. He’s also living with MS. For John, living with an “invisible” disease is challenging, and he hopes for more compassion and understanding from others in the future. Here, John shares how he finds… Continue reading Meet John from the PatientsLikeMe Team of Advisors
Meet Kimberly from the PatientsLikeMe Team of Advisors
We’d like to introduce you to Kimberly (firefly84), another member of your 2016-2017 Team of Advisors. Kimberly lives with autonomic neuropathy and describes what it’s like to manage a condition that is at times invisible, how she tackles each day by taking “baby steps” and focusing on the moment at hand. Before becoming ill, Kimberly… Continue reading Meet Kimberly from the PatientsLikeMe Team of Advisors
Meet Jim from the PatientsLikeMe Team of Advisors
We recently announced the 2016-2017 Team of Advisors, and now we’ll be introducing each member so you can get to know them better as they kick off their year-long term. First up is Jim (jangrilah), a member of the MS community. Jim is a new grandfather, a husband and an international executive and leadership development… Continue reading Meet Jim from the PatientsLikeMe Team of Advisors