Around the globe, race and ethnicity play a role in people’s health and wellness. Genetics may predispose some minorities to chronic health conditions and culture or lifestyle may also be a factor. But we must also consider health disparities among minority groups. The Centers for Disease Control and Prevention (CDC) defines health disparities as preventable… Continue reading Chronic Conditions Common in Minorities
Tag: community
A Journey Through the Four Stages of MS
Multiple Sclerosis (MS) is a complex neurological condition characterized by the immune system’s attacks on the central nervous system. As we explore the distinct stages of MS, it’s crucial to recognize the evolving nature of this journey. There are many challenges faced by individuals, and different strategies employed to manage each stage effectively. PatientsLikeMe maps… Continue reading A Journey Through the Four Stages of MS
What Lifestyle Changes Can Help Manage Lupus Symptoms?
Lupus is a complex autoimmune disease that can affect individuals in various ways, leading to a wide range of symptoms and challenges. It is an autoimmune disease, which means that the body’s immune system mistakenly attacks healthy tissues and organs. This results in inflammation, pain, and various symptoms that can affect the skin, joints, kidneys,… Continue reading What Lifestyle Changes Can Help Manage Lupus Symptoms?
The Importance of Mental Health Treatment for Black Men and Women
Mental health treatment for black men and women has emerged as a pressing and long-neglected issue. Despite the progress made in the field of mental health, racial disparities persist. Black individuals continue to face unique challenges in accessing and receiving adequate care. Today, PatientsLikeMe delves into the importance of mental health treatment for Black men… Continue reading The Importance of Mental Health Treatment for Black Men and Women
How to Ask for Help
Everyone needs it, but sometimes the hardest thing to do is to ask for help. Opening yourself up to feeling vulnerable, especially when you are already feeling compromised by your condition, can be challenging. It is important to remember; you do not have to shoulder it alone. Your chronic health condition may force your hand… Continue reading How to Ask for Help
“Everyone needs a “Me too!” moment” – Member Shannon on exposing her truth
“With every part of me that becomes less than what it used to be, a different part of me usually becomes more than what it used to be. In fact, maybe that’s the point, but it doesn’t make it any less difficult.” Shannon (Sna2164) is a wife, mother, animal lover and writer, living in southern California. She was officially… Continue reading “Everyone needs a “Me too!” moment” – Member Shannon on exposing her truth
“There were so many people asking the things that I was too afraid to ask”
It’s the 10-year anniversary of the MS community, and we’re sharing a story from one of our members, Jackie (OldSalt). Jackie was diagnosed with relapsing-remitting multiple sclerosis (RRMS) in 2007 and more recently, her condition transitioned to secondary progressive MS (SPMS). She found PatientsLikeMe in 2008 and believes that being part of the site over… Continue reading “There were so many people asking the things that I was too afraid to ask”
Patient, caregiver, wife and mother – Georgiapeach85 shares about her experiences with MS and her husband’s PTS
Ashleigh (Georgiapeach85) is a little bit different than your typical PatientsLikeMe member – not only is she living with multiple sclerosis, she also a caregiver for her husband Phil, who has been diagnosed with PTS. In her interview, Ashleigh shares her unique perspective gained from her role as a patient and caregiver, and how PatientsLikeMe… Continue reading Patient, caregiver, wife and mother – Georgiapeach85 shares about her experiences with MS and her husband’s PTS
“Don’t go it alone” – IPF member Christine shares about her health journey
Christine_Williams was diagnosed with idiopathic pulmonary fibrosis (IPF) in 2009, and ever since, she’s been managing a “rollercoaster ride that’s terrifying and not fun.” But she’s connected with your community on PatientsLikeMe for inspiration and was even referred to a new medical center to be evaluated for a lung transplant by her “rehabilitation buddies.” Below,… Continue reading “Don’t go it alone” – IPF member Christine shares about her health journey
Taking control: from PatientsLikeMe member Letitia and our friends at the Partnership to Improve Patient Care
Many of you have already met Letitia. She’s part of the PatientsLikeMe epilepsy community, and from her Patient Voice video to Twitter (@Pulchritude81), she continues to be a rockstar when it comes to sharing her experiences and advocating for patient centered research. Her latest efforts focused on patient empowerment where she headlined a webinar with our friends at… Continue reading Taking control: from PatientsLikeMe member Letitia and our friends at the Partnership to Improve Patient Care